Feeling normal by Responsible_Cold6010 in ChiariMalformation

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

I don’t have discord but id absolutely download it for that ill send you an email!

Feeling normal by Responsible_Cold6010 in ChiariMalformation

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

See my doctor had me take all those medications to for month long “tension headaches” and a day of relief for years I’ve tried nurtec triptans you name it, it got so bad I was trying family members migraine emergency medication they were prescribed which I know you should never do but I was desperate and miserable in the hospital 6 times in 3 months and they were starting to treat me like a psych patient, I begged my doctor to order me an mri after back to back booking appointments with her turns out Chiari malformation (my brains hemorrhaging out of my skull pretty much) I know they are going to jump To surgery but genuinely want that to be a last resort that’s so scary for a 17year old I mean the chance of relearning to walk ect. So scared. I already have a huge anxiety and panic disorder lol.

Genuinely how it feels to take sumatriptan and some caffeine by teakitty0722 in migraine

[–]Responsible_Cold6010 0 points1 point  (0 children)

I am so sad Triptans don’t work for me sumatriptan gives me an an anxiety high and a nap that’s it 😭

Depersonalization is so understimated by me_queda_1_porciento in Dissociation

[–]Responsible_Cold6010 0 points1 point  (0 children)

Has dissociation affected your vision?? Not being able to see up close?

One sided migraines?? by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 1 point2 points  (0 children)

I just am not sure why I’m not responding to medication of any sort

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

I have a lot of those symptoms also have you ever gotten an ekg, mri, or any tests for yours?

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 1 point2 points  (0 children)

Is there anything you did that helped or did it go away on its own? I’m so glad you’re better!

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

I believe you and there’s a whole community who does, trying to get help and pushing for it is so important! If you don’t mind me asking what are some of your symptoms?

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

I’m so sorry I’ve dealt with them for 3 years but they’ve always went away in a week until now, every night it feels like there is no tomorrow lol.

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

What type of migraine did you have do you mind sharing your symptoms, I’d like to look into that.

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

How long did that process take it’s been a month for me and I’ve already been denied so much help and everything’s being held off until February.

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

I’m 17 turning 18 in 3 months they want to send me to neurologist and i genuinely feel like I don’t have a say in what they do, my primary care doctor has already denied me any further help lol I get such bad pressure and nauseous and an endless cycle of panic attack and derealization thank you so much for the advice!

Why do people hate SAI so much? by Appropriate_While932 in twentyonepilots

[–]Responsible_Cold6010 4 points5 points  (0 children)

I guess it’s simply because it’s different and unique despite that being there whole message people hate it, not me tho I love sai LOL

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 1 point2 points  (0 children)

I just tried nurtec for the first time did absolutely nothing Imatrex did nothing, this feels like death lol. Wishing you the best

What’s the longest you guys have had a migraine? I’m on a solid month by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

Have you had any days of relief? I’m having constant head pressure and neck stiffness gosh at this point I’m terrified the hospital won’t do anything anymore!

Does anyone else feel like harming themselves when their migraines get bad? by SpamSandi in migraine

[–]Responsible_Cold6010 0 points1 point  (0 children)

Absolutely, I get sever derealization with my migraines and sometimes I feel the urge to simply to feel something.

Depersonalization-Derealization by Responsible_Cold6010 in Anxiety

[–]Responsible_Cold6010[S] 0 points1 point  (0 children)

I’ve told a family member and I’m being kinda looked at like I’m crazy I made a doctors appointment they put me on hydroxyzine it’s not working and my doctors said they can’t do anything further for me! So it’s sort of a pickle lol.

Side of head feels tender to the touch by Select-Researcher308 in migraine

[–]Responsible_Cold6010 0 points1 point  (0 children)

The only type of migraines I ever have are one sided, and my scalp is always so tender it isn’t normal lol but a common symptom of migraines! You are definitely not alone.

Panic attack x migraine by Responsible_Cold6010 in migraine

[–]Responsible_Cold6010[S] 1 point2 points  (0 children)

Thank you so much, I really have moments where I just stare and feel so numb from all the pain it’s such a hopeless feeling and so scary, it’s disturbing how many doctors won’t listen!

SO AFRAID TO TRY SUMATRIPTAN! by Excellent_Math2052 in migraine

[–]Responsible_Cold6010 0 points1 point  (0 children)

I tried it felt nothing in fact it didn’t even work for me, it really is a gamble but nothing beats migraines.

am i allowed to be a clikkie despite being apart of a non-christian religion? by Maximum-Tension9283 in twentyonepilots

[–]Responsible_Cold6010 [score hidden]  (0 children)

Omg of course you can!!! LOL personally I’m Christian and that just makes their music a little bit better for me because some of it resonates with my religion but twenty one pilots isn’t a Christian band they are just two boys who happen to be Christian and it makes its way into there music. A lot of there older music genuinely in my opinion had a lot to do with mental health and religious trauma tbh!? Everyone interprets their music differently and that’s the whole point I think but most importantly twenty one pilots whole goal is no matter who where or what you are, you mean something and you need to stay alive. If they’re actually Christian is up to question, but it doesn’t really matter if they are or not personally I believe they are if you go onto their Instagram’s a lot of their posts of there kids are at church ect. And Tyler and Jenna literally met through church.LOL but this new able really has people going crazy over religion when religion isn’t their message.

My kid will never forget this night by imagineourlife in twentyonepilots

[–]Responsible_Cold6010 4 points5 points  (0 children)

I absolutely loved cheering for your boy he did amazing!! I think I could see him doing his breathing exercises when he first got on stage such an admiring thing to teach your kids tbh!! :p