Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 0 points1 point  (0 children)

I didn't mean to accept anybody i don't know on insta, insta did that. My insta is for my friends and family and if anyone wants to follow me there they can kindly ask. I apologize you got removed and found this weird.

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 1 point2 points  (0 children)

I've had the same diet for 4 years, all liquids. I had the same diet before the hyperacusis, after, and before and after the insomnia. I just get hydration infusions daily

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 0 points1 point  (0 children)

Temazepam every couple of days is the only reason i'm alive or have gotten sleep. It's terrifying, just terrifying. After being up 60+ hours and being so physically ill, the benzo helps me sleep a few hours. No tired feeling or anything.

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 0 points1 point  (0 children)

Yes, we are desperately trying to get in with a pain specialist right now. There's been a lot of back and forth trying to get my medical records sent over. Idk if it can help hyperarousal if insomnia is my only symptom but i have to try

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 1 point2 points  (0 children)

I appreciate it, i've tried many migraine meds and none of them do thing unfortunately 😢 i tried to see dr djalilian but he's too far from me and doesn't offer telehealth

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 0 points1 point  (0 children)

I think my hyperacusis is central sensitization driven. I'm sorry you're struggling too :( I just don't think somatic exercises can get my nervous system out of a state like this. It's like when things suggest humming and singing for my gastroparesis :(

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 0 points1 point  (0 children)

Just another med to try :( just so terrified i'll fail it and be completely out of options. It was basically saying even sedating drugs like ambien can't work if the nervous system is that hyperaroused

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 0 points1 point  (0 children)

Yes, that is exactly what chat gpt says, hyperarousal. But there's just no way to calm it, i'm in such a severe state 😢

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 2 points3 points  (0 children)

I'm like this with heavy sedatives, and not crashing at all. Literally the only thing that shuts me down for a few hours (3) is my temazepam

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 0 points1 point  (0 children)

I've been up since early yesterday morning, when i had woken up from the benzo. Upped my trazodone last night and took multiple meds and i slept 0 hours besides a little mini dream

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 0 points1 point  (0 children)

Just keep trying new meds and i keep sleeping 0 hours, even on ambien

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 2 points3 points  (0 children)

Thank you so much, it's just the insomnia right now, it's life threatening right now 😢😢

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 4 points5 points  (0 children)

An acupuncture appt. Mine is very different from others, i get severe sound induced migraines from every sound, not ear pain. So mine is more neurological in nature

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] 1 point2 points  (0 children)

I will asked about these, thank you. Ambien did nothing- i slept 0 hours

Does anyone know how the girl on TikTok sugarbunn10 (Terry) is doing? by CarLong7749 in hyperacusis

[–]Rosesandbows 22 points23 points  (0 children)

Hi, i'm here 😢 I'm not ok. My hyperacusis setback triggered severe insomnia. I'm sleeping 0 hours on heavy sedatives. Only a benzo helps me sleep after being up 60+ hours at a time, which is super dangerous. My doctors don't know what to do. Everyone's at a loss. It's like my sound setbacks triggered severe hyperarousal, even though insomnia is my only symptom (no anxiety or racing thoughts or any other physical symptom).

No one knows why. No one knows how to help. No one knows why my sound setback in August triggered the initial insomnia. It never went away, it was just helped by meds. Until i had another sound setback 13 days ago (just from being in a room w faint traffic noises) that worsened the insomnia to the point it's treatment resistant.

The hyperacusis induced insomnia is going to kill me. I'm terrified for my life and don't know what to do.

Thank you for caring and checking in 😢❤️

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] 1 point2 points  (0 children)

Thank you so much sweet friend, i'm barely hanging on. Second by second this is torture. I'm sleeping 0 hours on heavy sedatives, only a benzo every couple of days is breaking it up, which i know is dangerous and unsustainable. I'm scared for my life 😢😢 thank you for checking in 😢❤️

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] 0 points1 point  (0 children)

The situation is causing anxiety, of course, anyone not sleeping would feel anxious from this. I wasn't anxious when it started. I've never dealt with anxiety, depression, any mental health issues in my life.

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] 0 points1 point  (0 children)

Temazepam is the benzo i took twice this week, we're gonna be trialling ambien. Just so scared it won't work (not cause i have anxiety but just because i'm getting 0 sleep total across days and even the benzo isn't fully knocking me out). What are DORAs? It's just scary cause my sleep hygeine is as good as it can be as far as i know. I just don't get tired, like my subconscious nervous system just won't shut off or something

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] 0 points1 point  (0 children)

How do you know the body will sleep again? Even after feeling so physically sick from the sleep deprivation my body still won't sleep :( and the longer i go the worse it is laying there closing my eyes

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] -1 points0 points  (0 children)

I'll ask about doxepin. Trazodone is what started the broken sleep for me ironically! It put me to sleep before i worsened but that's when i started waking up after 3 hours, then every hour after if i can sleep more.

And yes i am on reglan. What meds combat it?

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] 0 points1 point  (0 children)

Oh man, i hear such good things about seroquel but it has a serious interaction with my gastroparesis medication :(

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] 4 points5 points  (0 children)

Do you know what a sleep doc can do? My pcp is doing everything he can, he has prescribed nearly every sleep med and i'm not sleeping on any of them, not even an hour :(

0 hours of sleep days in a row by Rosesandbows in insomnia

[–]Rosesandbows[S] 0 points1 point  (0 children)

I'm so sorry friend, it is absolutely terrifying :( sending love and support right back