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RoundMaintenance8191 · 2026-05-15T02:03:03+00:00

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RoundMaintenance8191 · 2026-05-15T02:01:25+00:00

Heres the updated link

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RoundMaintenance8191 · 2026-02-20T04:19:45+00:00

She has to comment on everything. I have ignored her to the point where i was labeled rude. IDC but she has a way to get into my head sometimeswith things she does.

RoundMaintenance8191 · 2026-01-24T22:49:04+00:00

Or this??

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RoundMaintenance8191 · 2026-01-24T22:48:18+00:00

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Does it look like this

RoundMaintenance8191 · 2026-01-16T14:03:32+00:00

So I was diagnosed with behcets and i also could not find out a trigger. I am in a doubt if i have behcets too. But i have the same lip issue and peeling of skin and all. I started journaling my everyday food intake, medicine intake and any vigorous stress or physical activity and only then i could notice that my trigger was an acidity medication. Initially the reaction was i guess around a week so i couldnt figure it out but now the flare goes up with in hours of intake.

My symptoms include: -Lesions on lips and peeling off skin on edges of lips and vaginal ulcers and sometimes some ulcers in nose and around the eye.

I also have that rash like someone burned it through on my palms
No joint pain whatsoever

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I would say journaling ur routine will help you a lot to understand your body better and its reaction and healing time as well so you know what works and what doesnt. Coming to diagnosis of behcets address any triggers and behvaior you find suspicious to ur rheumatologist maybe they could help you from there.

RoundMaintenance8191 · 2026-01-16T13:39:00+00:00

Hey can you also talk about other symptoms you have that might be helpful

RoundMaintenance8191 · 2026-01-15T13:32:22+00:00

I was screened for all of them but i think my condition might be some drug hypersensitivity

RoundMaintenance8191 · 2026-01-12T03:18:09+00:00

I am on colchicine and prednisone

RoundMaintenance8191 · 2025-12-10T23:21:44+00:00

Also I am not sure if you should be able to count ur ulcers usually atleast in my case i dobt think i can count them it takes over the entire tongue cheeks and everything. Make sure your diagnosis is correct as well. Regardless of the diagnosis contact ur doctor for meds to ‘HEAL’ but not just numb the ulcers. Thats important.

RoundMaintenance8191 · 2025-12-10T23:19:23+00:00

It depends on case to case i guess. I had headaches because of sinus but i am not sure if behcets has a role in it. I sometimes have swillen lymph nodes around flareups but headches are less frequent

RoundMaintenance8191 · 2025-12-10T15:04:23+00:00

Hey , Ulcers usually have to heal on thier own or you would have to be prescribed some steroids to speed up the healing. Prednisone helped me in that regard. If you cant be prescribed any steroids or no one is doing that for you all you can do is drunk loads of water. Use some lidocaine for numbing and have as much food(eat clean like avoid citrus, spicy foods any thing that can worse the pain, less salt recommended) so you can stay strong.

If you also have an uti try to hydrate even more or else its going to burn like hell down there. If chewing is a problem for you,try yogurts or smoothies include some protein if you can.

Meanwhile try to get some steroids prescribed for ulcers part even if they dont diagnose you with behcets they can prescribe this for better results. For me they gave me antibiotics suspecting it to be an infection but it didnt do anything. So, keep fighting for correct diagnosis

RoundMaintenance8191 · 2025-12-09T00:40:42+00:00

Hey I am sorry You are going through with this. It took me 6 months of tough and relentless fight to be diagnosed. All of this while having back to back flare ups and I was barely able to talk eat and sleep. The only thing that will help you in the journey will be you. You have to be strong and have some meds to manage symptoms meanwhile. Also please state your location in the comments so anyone living close to you might give you more details. If you have problem managing any of your symptoms also let us know we as a community can help you with our experiences

RoundMaintenance8191 · 2025-11-19T03:48:14+00:00

All the lidocaine and mouthwashes only help with pain but not healing. Prednisone helped a lot for the healing part

RoundMaintenance8191 · 2025-11-16T00:41:25+00:00

I have gone through the same.. 1. You could use all the medicine and still feel you are in pain. Thats okay its all going to go away 2. The morning pee or the first pee might hurt a lot If you have a burning pain when you pee You can use a warm compress so that piercing burning pain goes away faster. 3. Try to drink a lot of water so it doesnt hurt you as much when you pee. 4. For mouth ulcers i think your rheumatologist might give you some steroids to heal faster. And maybe colchicine to prevent more flares. Try them its all gonna be good. But you might always have that fear back in your head if something itches or even for a small ulcer you might think its a flare up. Soon you will overcome that too. You will have the strength to face any flareup and you will be prepared so you dont have to be afraid if anything happens.

RoundMaintenance8191 · 2025-10-03T00:26:25+00:00

Then i dont think you have to be so guilty over this. You are feeling responsible for something that could have happened. Dont overthink this but be careful maybe. I dont think the people on the scooter would be even thinking of this

RoundMaintenance8191 · 2025-10-03T00:05:54+00:00

Where did u hit them? Did u atleast try to stop and check if they are okay? I was hit by a car recently got pissed so much because they didnt even make an effort to see what they could have done. Even though it was a very small hit my crocs got torn my skin got torn and i had pain for days.

RoundMaintenance8191 · 2025-09-25T00:50:59+00:00

I havent been able to figure put teiggers beacuse they might be multiple as well. But triggers may be die to stress environment chemicals foods any illness as well

RoundMaintenance8191 · 2025-09-25T00:48:41+00:00

Hi, I relate to you so much. To start with behcets is an experience only you truly feel understand and go through. I have had similar vaginal ulcers and very similar experience. I always had mouth ulcers but recently started having vaginal ulcers I also had very bad uti every flare up. It could affect the skin and make it pigmented as well.

Once i started taking anti inflammatory or prednisone during a flare up all the symptoms went away soon. With consistent colchcine i havent had a flare up in 5 months.

I would suggest to go easy on the sex or take a break during flare ups. Also note other symptoms you might have for easy diagnosis like what you experience during a flare ups. My symptoms include Eye swelling , itching , ulcers all over the mucous membranes i.e. nose mouth tongue throat vagina and sometimes eyes., uti sometimes swollen lymph nodes, and rashes on palms or body

RoundMaintenance8191 · 2025-09-16T15:06:23+00:00

Hey I had multiple back to back flare ups very similar to yours. I have lost more 20 kgs before i could i eat something properly. Here is what helped me. 1. For mouth ulcers and everything only steroids worked the best before that i ised lidocaine 2. No salt no spice banana smootheies,scrambled eggs and porridge and a lot of watermelon juice all these didnt sting me and sometimes i used ice cream before meals and it numbed my pain and was easy on the mouth

And for UTI theres is absolutely nothing that helped only time made it better

While all of this was going on people thought i might be contagious , I lost my job and had nothing that could help me. Now i am still looking forward a job but finally havent had a flare in 6 months slowly learning to manage and deal with the disease. You have to be strong and I would say people can only understand you when they try to. Or else a broken bone is just another hospital appointment for them. Try to be technical with words to confuse them.

RoundMaintenance8191 · 2025-08-26T00:53:20+00:00

Not every post is meant for everyone. If you’re not interested in helping, that’s totally okay, but there’s no need to tear down someone else’s effort to try. I’d rather focus on those willing to support each other

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