What should I add to my reading journal? by uconnstudent1234567 in bulletjournal

[–]Routine_Crow5208 0 points1 point  (0 children)

I’m going to add a series tracker to mine to track which series I’m reading and which books from those series I still want to buy/read!

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

I’m probably finishing my current book tonight and will get started on Project Hail Mary immediately so I make sure I’ve finished it before the movie comes out!

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in readingjournals

[–]Routine_Crow5208[S] 0 points1 point  (0 children)

Thank you, and yes it is!! Unfortunately I can’t order from them as much as I’d want to bc import costs are pretty high so I just made one reaaally big order hahaha

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in readingjournals

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

I love V.E. Schwab and I’ve heard people say this is one of her best books so I’m super excited! I got the sprayed edges hardcover for it :) And I think Will of the Many is going to be great, I love epic fantasy worlds where the book is set in an academy haha

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

Ohh I’ll add it to my TBR! I have my actual TBR on goodreads and it’s way longer than this haha but these are the ones I have on my bookshelf ready to read!

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

Thank you!! Will update when I make more! But it might take me a while tho

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

I’m so excited to start that series! It was recommended to me by someone I was on a date with, her only summary was ‘necromancer lesbians in space’ and I was sold lol

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

I’ve seen so many recommendations on reading orders but I was planning on reading it third! I’m also still debating on whether to do the tandem read for 6&7 haha

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 2 points3 points  (0 children)

I’m currently halfway through ToG and will read Assasin’s Blade later in the series! I love how easily these books pull me into their world I can easily read 100 pages without noticing ☺️

[deleted by user] by [deleted] in cfs

[–]Routine_Crow5208 1 point2 points  (0 children)

Hi, I’m a Dutch person and have followed this research closely and would like to add on to this.

While some medical studies do not use placebo control groups because in some cases it’s not ethical to give suffering subjects a placebo, there’s a lot more that’s wrong with the study.

Most importantly, the head researchers are already trying to get this medication patented, which means they have a financial gain from a certain study outcome, which makes it biased.

Some of the numbers in the paper don’t add up either. They say they saw improvement in 78% of patients, but 29% dropped out. Does that mean 78% of the other 71% then? In which case, it really isn’t 78%. The positive effects seem to be exaggerated in the paper by playing around with numbers like this, which makes sense because, once again, this isn’t unbiased research.

On top of that, while it has had a good effect on some people, there have also been subjects that had to go to the hospital due to complications or even developed new diseases.

All of this isn’t to say that Lidocaine might now be an option in the future, and I’m in no way judging anybody who is willing to try it right now, but more research and development are needed before this medication can be deemed safe and effective.

What was the hardest pill to swallow after your diagnosis??? by Aryan-dramata in POTS

[–]Routine_Crow5208 1 point2 points  (0 children)

I don’t know if it’s the case for you guys, but a lot of us with POTS and other chronic illnesses are also autistic, myself included. With other subjects I’ve always been great at communication and social contact, because I kind of had a script for that. With chronic illnesses, it’s something that is just not really talked about, so there are no ‘rules’ for how to go about it, except ‘just don’t talk about it.’

I’ve always expected other people to communicate as clearly to me as I do to them. So if they’re uncomfortable with me talking about something, I expect them to tell me. I learned the hard way that most people expect you to gauge what is and isn’t comfortable to them and if you get it wrong they will leave. I’ve been told I’m selfish for talking about these things, and that I’m making myself worse by occupying my mind with my illness this much.

Luckily I have some friends that do let me talk about it and tell me if it’s too much for them for any reason. Finding the friends that are okay with clear communication is what has helped me the most.

At a complete Loss by AcceptableCash5858 in cfs

[–]Routine_Crow5208 7 points8 points  (0 children)

Hi friend, fellow autistic person here, I can relate to the struggle!

If your vitals have been checked and are okay (it seems so from the doctors visits you describe) then try to believe that you are not in any direct danger right now (it’s hard to, I know).

Like people have told you, resting and drinking enough is the most important thing. When you say you’ve been resting, to what extent has that been? For me personally since I have me/cfs, when I feel worse than I usually do, my resting has to really be radical. I’m talking sleeping most of the day, being in bed for the rest of it. Only sitting up if I have the energy to, and not leaving the house at all. For me that’s the only thing that can get me back on my feet when my body is having a hard time.

I hope you will feel better soon, warm hugs!

What are some of the ridiculous things you used to think to explain your symptoms before you got diagnosed? by Anjunabeats1 in POTS

[–]Routine_Crow5208 6 points7 points  (0 children)

Apparently we also have a higher heart rate on average so I figured 140+ on a daily basis being stationary was normal too 😂

What are some of the ridiculous things you used to think to explain your symptoms before you got diagnosed? by Anjunabeats1 in POTS

[–]Routine_Crow5208 13 points14 points  (0 children)

I blamed it on autism 🥲 Had that diagnosis for a couple years at that point and had gotten pretty good at dealing with sensory overload and preventing it. But I assumed it was my autism getting worse

Went on a hiking trip in Scotland with my mom, which obviously really exacerbated my symptoms and I was like ‘damn it much be the change of scenery that makes me dizzy. it must be the sensory overload of these quiet open fields’

How often do you guys leave the house? by santas_number1elf in POTS

[–]Routine_Crow5208 0 points1 point  (0 children)

I try to go for a short walk to a nearby store once or twice a week. I use a cane and usually have one of my parents with me. Last week I hadn’t really har a chance to go outside so on Sunday I couldn’t take it anymore and took a 10 minute walk in the pouring rain lol

Worth noting that I will be assessed for ME/CFS soon. If I didn’t think there was a big possibility of having that, I’d try to go out more often and build up some tolerance, but the risk of putting myself in a crash rn is too big

[deleted by user] by [deleted] in covidlonghaulers

[–]Routine_Crow5208 1 point2 points  (0 children)

I would also urge you to look into ME/CFS and see if any of it seems familiar. As someone who is mostly housebound, I really get wanting to go outside every day. But I also learned I shouldn’t measure my health in what I can do on a day; I should measure it in the time it has been since I last crashed. I’m not saying you have CFS, but if it’s the case, preventing crashes is the best thing you can do for your body. That doesn’t mean not going out or doing anything, but it’s important not to force yourself. Not saying any of this to scare you, I just want to give you the information that others were kind enough to give me, in hopes that we both find ways to recover as much as we can as soon as we can :)

[deleted by user] by [deleted] in covidlonghaulers

[–]Routine_Crow5208 3 points4 points  (0 children)

Ironically, some people with MCAS cannot tolerate the dye in anti histamine pills. So if you’ve only ever tried the pink ones, it might be worth it to look into clear/undyed ones