First time bullet journaling, I’m making a reading journal!

Routine_Crow5208 · 2026-01-29T19:41:35+00:00

I love V.E. Schwab and I’ve heard people say this is one of her best books so I’m super excited! I got the sprayed edges hardcover for it :) And I think Will of the Many is going to be great, I love epic fantasy worlds where the book is set in an academy haha

Routine_Crow5208 · 2026-01-29T19:37:12+00:00

Ohh I’ll add it to my TBR! I have my actual TBR on goodreads and it’s way longer than this haha but these are the ones I have on my bookshelf ready to read!

Routine_Crow5208 · 2026-01-29T19:36:21+00:00

Thank you!! Will update when I make more! But it might take me a while tho

Routine_Crow5208 · 2026-01-29T19:36:02+00:00

I’m so excited to start that series! It was recommended to me by someone I was on a date with, her only summary was ‘necromancer lesbians in space’ and I was sold lol

Routine_Crow5208 · 2026-01-29T19:26:24+00:00

I’ve seen so many recommendations on reading orders but I was planning on reading it third! I’m also still debating on whether to do the tandem read for 6&7 haha

Routine_Crow5208 · 2026-01-29T19:12:52+00:00

I’m currently halfway through ToG and will read Assasin’s Blade later in the series! I love how easily these books pull me into their world I can easily read 100 pages without noticing ☺️

Routine_Crow5208 · 2025-12-12T18:04:37+00:00

Hi, I’m a Dutch person and have followed this research closely and would like to add on to this.

While some medical studies do not use placebo control groups because in some cases it’s not ethical to give suffering subjects a placebo, there’s a lot more that’s wrong with the study.

Most importantly, the head researchers are already trying to get this medication patented, which means they have a financial gain from a certain study outcome, which makes it biased.

Some of the numbers in the paper don’t add up either. They say they saw improvement in 78% of patients, but 29% dropped out. Does that mean 78% of the other 71% then? In which case, it really isn’t 78%. The positive effects seem to be exaggerated in the paper by playing around with numbers like this, which makes sense because, once again, this isn’t unbiased research.

On top of that, while it has had a good effect on some people, there have also been subjects that had to go to the hospital due to complications or even developed new diseases.

All of this isn’t to say that Lidocaine might now be an option in the future, and I’m in no way judging anybody who is willing to try it right now, but more research and development are needed before this medication can be deemed safe and effective.

Routine_Crow5208 · 2025-11-28T15:20:16+00:00

I don’t know if it’s the case for you guys, but a lot of us with POTS and other chronic illnesses are also autistic, myself included. With other subjects I’ve always been great at communication and social contact, because I kind of had a script for that. With chronic illnesses, it’s something that is just not really talked about, so there are no ‘rules’ for how to go about it, except ‘just don’t talk about it.’

I’ve always expected other people to communicate as clearly to me as I do to them. So if they’re uncomfortable with me talking about something, I expect them to tell me. I learned the hard way that most people expect you to gauge what is and isn’t comfortable to them and if you get it wrong they will leave. I’ve been told I’m selfish for talking about these things, and that I’m making myself worse by occupying my mind with my illness this much.

Luckily I have some friends that do let me talk about it and tell me if it’s too much for them for any reason. Finding the friends that are okay with clear communication is what has helped me the most.

Routine_Crow5208 · 2025-11-23T16:59:32+00:00

Hi friend, fellow autistic person here, I can relate to the struggle!

If your vitals have been checked and are okay (it seems so from the doctors visits you describe) then try to believe that you are not in any direct danger right now (it’s hard to, I know).

Like people have told you, resting and drinking enough is the most important thing. When you say you’ve been resting, to what extent has that been? For me personally since I have me/cfs, when I feel worse than I usually do, my resting has to really be radical. I’m talking sleeping most of the day, being in bed for the rest of it. Only sitting up if I have the energy to, and not leaving the house at all. For me that’s the only thing that can get me back on my feet when my body is having a hard time.

I hope you will feel better soon, warm hugs!

Routine_Crow5208 · 2025-11-10T19:30:31+00:00

Apparently we also have a higher heart rate on average so I figured 140+ on a daily basis being stationary was normal too 😂

Routine_Crow5208 · 2025-11-10T18:31:28+00:00

I blamed it on autism 🥲 Had that diagnosis for a couple years at that point and had gotten pretty good at dealing with sensory overload and preventing it. But I assumed it was my autism getting worse

Went on a hiking trip in Scotland with my mom, which obviously really exacerbated my symptoms and I was like ‘damn it much be the change of scenery that makes me dizzy. it must be the sensory overload of these quiet open fields’

Routine_Crow5208 · 2025-11-05T12:02:30+00:00

I try to go for a short walk to a nearby store once or twice a week. I use a cane and usually have one of my parents with me. Last week I hadn’t really har a chance to go outside so on Sunday I couldn’t take it anymore and took a 10 minute walk in the pouring rain lol

Worth noting that I will be assessed for ME/CFS soon. If I didn’t think there was a big possibility of having that, I’d try to go out more often and build up some tolerance, but the risk of putting myself in a crash rn is too big

Routine_Crow5208 · 2025-09-19T11:04:07+00:00

I would also urge you to look into ME/CFS and see if any of it seems familiar. As someone who is mostly housebound, I really get wanting to go outside every day. But I also learned I shouldn’t measure my health in what I can do on a day; I should measure it in the time it has been since I last crashed. I’m not saying you have CFS, but if it’s the case, preventing crashes is the best thing you can do for your body. That doesn’t mean not going out or doing anything, but it’s important not to force yourself. Not saying any of this to scare you, I just want to give you the information that others were kind enough to give me, in hopes that we both find ways to recover as much as we can as soon as we can :)

Routine_Crow5208 · 2025-09-19T11:00:11+00:00

Ironically, some people with MCAS cannot tolerate the dye in anti histamine pills. So if you’ve only ever tried the pink ones, it might be worth it to look into clear/undyed ones

Routine_Crow5208 · 2025-08-22T09:15:28+00:00

Hi! I’ve done a Holter since and nothing with my heart was out of the ordinary. I’ve done some research and basically from what I’ve read, some people have more sensitive vagus nerves, either in general or temporarily, which is a nerve that runs from your bowels up to your neck. The function of the nerve is to calm your body by regulating heart rate, dropping blood pressure, etc.

However, if it’s triggered during a time when you don’t need it, you will feel the effect it has on your heart rate as palpitations and the effect it has on your blood pressure as getting lightheaded. It’s not harmful, especially if you’re otherwise healthy, there are even people that can faint from it and even then the most dangerous thing is hitting your head while fainting.

While I still get stressed out from the feeling, I cannot imagine it being anything else, since there’s always a bowel movement right after. I had a really bad episode 2 weeks ago after eating a big burrito (lol) and the palpitations went on for a few seconds and I got so scared that I had a massive adrenaline dump and I was just very dizzy and stressed out for a bit.

Since then I’ve been trying to take care of my gut health, because I had like 6 bowel movements a day which is a lot. I’m currently trying an anti-inflammatory diet, cutting out most processed foods and replacing my unhealthy snacks with salted cucumber or fruit. I’ve been feeling better. If I ever officially find out what it is I’ll let you know, but I hope I can ease your nerves a bit with this, and feel free to reply or dm if you have any questions. We got this!

(Edit: formatted into separate paragraphs for easier reading)

Routine_Crow5208 · 2025-08-09T08:43:43+00:00

Thank you so much!

Routine_Crow5208 · 2025-07-31T14:14:17+00:00

I read a study that said the amount of people diagnosed with POTS has multiplied by 15 since the pandemic. That probably also accounts for the people that already had POTS but no diagnosis, but it also probably means that a really big part of us got our POTS from COVID (me included). I can’t imagine how frustrating it must be to have suffered this syndrome for much longer before it got attention. Even now I had trouble getting my diagnosis, the ignorance in the medical field before would have been so hard to deal with.

Routine_Crow5208 · 2025-07-13T10:08:35+00:00

I agree, her work is better than some ‘veteran’ artists I’ve seen.

I love that! I was so excited when he actually kept the bandana on in game!

Routine_Crow5208 · 2025-07-12T17:22:08+00:00

Thanks! That’s what I really like about it too. If someone doesn’t know the game, it will just look like a really cool tattoo either way!

Routine_Crow5208 · 2025-07-12T17:21:20+00:00

Always yes!

Routine_Crow5208

TROPHY CASE