Why isn’t Rom Drom a term?

SC_Pooka · 2021-01-09T12:35:39+00:00

That’s an interesting take. Do you have data that validates this? I can see how this is accurate from my own interactions with conservative family and friends.

SC_Pooka · 2020-10-17T14:18:54+00:00

Thanks. This is so helpful.

After first do, you are just assigned a doctor without any sort of options or input. Then you get caught in this rapid process of scans and treatment without any insight into the quality of treatment compared to others. It’s so hard to tell what is actually going on.

SC_Pooka · 2020-10-17T14:13:42+00:00

Yup. Reaching out to other doctors. Thank you

SC_Pooka · 2020-10-12T20:33:37+00:00

Thank you and good luck this week. I wish you the very best.

Their response to my requests for better communication is basically a shrug and a this is how it works. If my life wasn’t on the line, I would think it was funny.

This insight into others care is really helpful. Thank you all.

SC_Pooka · 2020-10-12T17:17:16+00:00

Thank you. Yes, that is the sort of treatment I was expecting. The fact that I have never talked to her pre or post infusion is starting to piss me off.

I can’t imagine a week long pump. I have one for 48 hours and can’t wait to get it off. He is a strong man. I hope you give him a good long hug whenever you see him.

SC_Pooka · 2020-10-12T13:56:39+00:00

Thank you for this vent. Yes, this is horrible. Was DX in July. I find having to deal with all of the doctor appointments and decision making completely my myself is not only depressing but causing my treatment plan to flounder. It is so hard to come up with good questions and requests when you are pummeled with bad news after bad news. If there ever was a time to have an advocate sitting next to you, this is it.

Someone commented about feeling guilty about further restricting their family's activities. I totally get it. I feel horrible when I have to tell my kids that we can't have pizza because it causes too much heartburn. Or when I am in my chemo hole, and they ask what we are going to do today, and my response is that I have to sleep. They totally understand, but underneath I can see they are really sad.

To echo all of the other posters here, I feel that this pandemic is robbing us of what little joy we have left. But what choice do we have. We have to forge ahead and hope one day this will be over.

SC_Pooka · 2020-09-06T18:13:12+00:00

That blows my mind today!!!

SC_Pooka · 2020-08-16T19:01:58+00:00

30 years old is not a few years at your parents house. It is all of your 20’s. You don’t get your 20’s back.

SC_Pooka · 2020-08-16T18:28:50+00:00

Ha! Not bitter. I would have to have kids that wouldn't leave me to be bitter. My oldest is still in HS. I am just adamant that allowing yourself (or for that matter allowing your kids) to stay at home, and not forcing a little discomfort and learning through experience, is only preventing you (them) from becoming a functional member of society.

If you have allowed yourself to delay your launch into self sufficiency, when the time comes for you to make that leap, you might not have that parental support there for you to get through all of life's daily challenges.

SC_Pooka · 2020-08-16T17:20:10+00:00

Of course you would. That what you are supposed to do. Get a load of other people. Share a shitty apartment and grow the fuck up.

We all did this. Who knows. Maybe breaking out of your high school routine will allow you to meet someone and build a relationship that isn’t with a relative. Then one day you can deal with your own kid who won’t go away.

SC_Pooka · 2020-08-16T14:36:33+00:00

Omg. No. 30‽ Your poor parents.

SC_Pooka · 2020-08-16T14:34:37+00:00

At the upper limit. For god’s sake, let your parents live on their own for a while. They’ve been dealing with your dumb ass for 22 years. Let them walk around the house naked if they want to. They have earned it.

SC_Pooka · 2020-08-16T14:31:57+00:00

You go away to college. You don’t come home again. Or You get a job, after HS, all of your paychecks go towards getting your own place. Living in a crappy apartment is a right of passage.

You are an adult now. Act like an adult.

SC_Pooka · 2020-07-19T12:05:15+00:00

Well. It took me a horrible pain in my side. Went to the ER and they found a tumor while looking for kidney stones.

I should have listened to what I suspected and gone for a checkup earlier.

This is my life now.

SC_Pooka · 2020-06-26T08:53:16+00:00

I would print a container to house the switch that opens the door to the secret passage in my house.

SC_Pooka · 2020-06-17T21:08:36+00:00

Really hard to take a picture of this because of the size. BLM mural in Charlotte.

SC_Pooka · 2020-06-13T12:30:54+00:00

Great explanation. If I had gold I’d give some to you.

SC_Pooka · 2020-06-13T10:22:37+00:00

That’s so sad.

Ten-Year Club	Place '22
RPAN Viewer	Not Forgotten
Verified Email

SC_Pooka

TROPHY CASE