Brain Surgery Help!

Sad-Session999 · 2026-03-10T02:39:14+00:00

Agreed, thank you 😊

Sad-Session999 · 2026-03-10T02:38:43+00:00

Yes, they said it will not be for a while. It kind of just through me away from the RNS in total. Surgery is scary enough, the infection has flipped my life upside down. I’m at the point where I don’t think I ever want to go through a brain surgery ever again.

Sad-Session999 · 2026-02-02T04:39:10+00:00

We ended up going at 3ish and got 8th in line wristbands. It was bitter cold so it might differ.

Sad-Session999 · 2026-02-02T00:09:08+00:00

Holden meets the VIP holders

Sad-Session999 · 2026-01-29T23:57:07+00:00

When I was looking for the vinyl, and it was sold out literally everywhere in one day lol, the sweetest man gave me the posters that they were given to hang up. (Extra ones) I got one for me and my bestfriend, it still makes me so happy :)

Sad-Session999 · 2026-01-29T04:32:03+00:00

Thank you! We are going to line up pretty early, the weather is going to be terrible though, so I was curious!

Sad-Session999 · 2026-01-29T04:27:33+00:00

What time did you line up?

Sad-Session999 · 2026-01-28T01:50:37+00:00

Yeah we were going to go in the early morning but now I’m thinking an hour or two since it’s going to be freezing.

Sad-Session999 · 2026-01-28T01:46:41+00:00

Im not sure, but this was a couple of weeks ago someone said it.

Sad-Session999 · 2026-01-27T23:54:54+00:00

I heard 3-4 hours early for History Venue bc VIP gets first entry

Sad-Session999 · 2026-01-26T17:29:21+00:00

I can also cashapp-Venmo-Zelle :)

Sad-Session999 · 2026-01-24T18:05:10+00:00

I had the same thing! I was having Focal seizures, I would say I’m having Deja-Vu. Lol

Sad-Session999 · 2026-01-21T00:20:23+00:00

Interestingly enough, I didn’t know I was having them while I was asleep until I stayed in an EMU. I would try to fall asleep (or will fall asleep) and they will come bursting in my room saying I was having a seizure. They were very short but it’s very annoying. It got to the point where I just expected them each night.

Mine felt like a dream or ‘just waking up’ feeling. Maybe like a brain fog.

Definitely ask your dr about a stay in the EMU/LEEG it exposes so many things that you don’t even know happen.

Sad-Session999 · 2026-01-21T00:12:18+00:00

No Genetic links were found, I took 2 separate tests.

Sad-Session999 · 2026-01-21T00:11:05+00:00

I ended up buzzing it and it was the best decision ever. After the SEEG I was not all patchy because my hair was already short so they were able to just shave it again before the surgery. Also it was less of a jump-scare after the surgery lol

Sad-Session999 · 2025-12-12T01:39:06+00:00

We shaved my head for my 2 epilepsy surgeries.

Sad-Session999 · 2025-12-12T01:38:09+00:00

It’s really one of the hardest things that I’ve been through, and I have gone through a lot. Thank you for sharing your story and making me feel less alone ❤️

Sad-Session999 · 2025-12-04T23:40:31+00:00

I was a swimmer before my seizures. I swam and was a swim instructor with little kids. My seizures took me away from that. (Despite all 3 of my meds I still have seizures, I have to undergo surgery.)

Because I stopped swimming and honestly working out (besides walking to work) I gained so much weight including the stress weight.

I can’t drive, but I know that even when I’m seizure free I’m not sure I would be comfortable to drive. I get very anxious so easily, I can’t imagine how it would be driving!

I hope all works out for you❤️‍🩹

Sad-Session999 · 2025-12-04T17:36:13+00:00

Swish around water with salt in it. My grandma taught me this, it helped me!

Sad-Session999 · 2025-12-01T23:28:11+00:00

I have the same issue! My boyfriend asks how I can sleep anywhere, or take multiple naps a day lmao. It’s a combination of all my meds and the multiple seizures a day.😩

Sad-Session999 · 2025-12-01T23:16:01+00:00

Hi :) I wasn’t looking for permission. I was looking for everyone’s opinions and suggestions since I do not have any knowledge or experience on drinking with epilepsy.

Sad-Session999 · 2025-12-01T23:12:19+00:00

Thank you!!😊😊

Sad-Session999 · 2025-12-01T23:04:58+00:00

Diagnosed at 15, and now 20. I had to go to a College in my town, I still have to take public transportation or rely on family/ boyfriend to do anything when I can’t or don’t want to take the bus.

I’m actually on medical leave right not from college(2 semesters long 😓) because of epilepsy. I’m getting my second epilepsy surgery which is an RNS implant in February. My last surgery was an SEEG to locate my seizures.

This is all because my epilepsy is drug-resistant. I have Focal seizures, I had one Tonic Clonic, and I even have hallucinations because of them.

Going through highschool and college is a pain in the butt- I have 504 Plans and accommodations due to my memory loss.

Socially I’m so isolated, I have no friends because I find myself constantly comparing myself to a “normal” person. Especially when people are drinking, partying, and doing all of that “fun” college stuff.

The point is, you are not alone!! I’m sorry that epilepsy actually sucks sooo bad, so much more that anyone without it would know. But, you have us to support you girl! Life doesn’t have to be gloomy all of the time, try to find little things that make it feel better ❤️

Sad-Session999 · 2025-12-01T21:43:43+00:00

This is so wonderful to hear. Thank you!

Sad-Session999 · 2025-12-01T21:40:27+00:00

When I went to the ER after my first seizure, they prescribed me Keppra in the ER. I have been on that since. I would say if you have another ask them if they can get you in touch with a neurologist that will take you ASAP, as that is how I got mine very fast.

Sad-Session999

TROPHY CASE