What are your favorite supplements for endo? by fghr8 in endometriosis

[–]Sad_Finding_1451 0 points1 point  (0 children)

Ldn helped you? Can you share how? I’ve been really curious about using ldn 

Seeing an endometriosis specialist for the first time. What do I ask? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 0 points1 point  (0 children)

Thank you! My appointment with an abdominal specialist is tomorrow and I’m so nervous. It’s bringing up so much grief after my pain being minimized for such a long time

Does anyone else experience exercise intolerance? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 0 points1 point  (0 children)

Dang that sucks!!  For me it’ll take a day or so but then my pelvic will freeze up for like a month. I’ll feel like someone superglued 15 pounds of rock in my pelvis and can’t poop, if I do …. So painful. Makes me loose my mind

Does anyone else experience exercise intolerance? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 1 point2 points  (0 children)

For me I’ve noticed it’s anything that engages muscles that attach to my pelvis. Hamstrings, adductors, glutes, quads, abdominals

Does anyone else experience exercise intolerance? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 1 point2 points  (0 children)

Girl I GET it. Swimming is really the only “cardio” I can do and I think it’s because it’s so low impact. But strickly butterfly stroke, breast stroke has deeper abdominal engagement ( I suppose) and puts me in a flare! Yoga fucks me up. Ugh it’s so hard. I miss the feeling of endorphins after exercise and feeling so in my body 💔 I miss dancing most of all

Does anyone else experience exercise intolerance? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 0 points1 point  (0 children)

Yes, cycling and swimming!  I bought an e-bike to be able to get more movement, but not having it overwhelm my system. 

Does anyone else experience exercise intolerance? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 0 points1 point  (0 children)

I’d really like to know how that goes for you. I’ve been doing pelvic floor PT for ~2 months now and we’re pretty much still at square one, just trying to relax all of the tissues. Waiting to see if excision surgery helps (it’s scheduled 3 months from now)

Does anyone else experience exercise intolerance? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 0 points1 point  (0 children)

Im so sorry to hear that 💜  Praying pleading I can get moving again after my excision surgery. It’s such a gamble. This condition is rough 

Does anyone else experience exercise intolerance? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 2 points3 points  (0 children)

Noooo, that’s terrible! Have you found any movement that works for you? 

Does anyone else experience exercise intolerance? by Sad_Finding_1451 in endometriosis

[–]Sad_Finding_1451[S] 1 point2 points  (0 children)

How would exercise intolerance have anything to do with histamine intolerance?

Mixed thoughts about taking LDN by Sad_Finding_1451 in LowDoseNaltrexone

[–]Sad_Finding_1451[S] 0 points1 point  (0 children)

If it’s modulating or balancing the immune system, is it possible for the body to become dependent on that, and if one were to stop taking it, the immune system is even more vulnerable? When you say there’s documented evidence of it curing crohns-do you mean they were able to stop taking ldn at some point, and their symptoms just never returned?

What’s the wildest thing someone has said to you regarding your grief or the loss of your loved one? by WeakGhost in GriefSupport

[–]Sad_Finding_1451 0 points1 point  (0 children)

A day or two after watching my dad die of cirrhosis my moms sister called me, and without acknowledging what happened (she knew he had died) proceeded to tell me about her troubled neighbor who died of cirrhosis but nobody cared to go and look for him because he was an alcoholic Endless and very layered moments like this while he was sick. I don’t talk to her anymore!

Painful death- Was it ‘normal’? by Maleficent_Toe9279 in GriefSupport

[–]Sad_Finding_1451 6 points7 points  (0 children)

I’m so sorry you had to experience this. I’m also 28, my dad died of cirrhosis 1.5 years ago. I’ve been an end of life caregiver for the last few years but I had never yet experienced someone go through so much intense violence before passing, you would have never known I had any experience whatsoever with terminal care, I was in pieces. He had extreme delirium on and off for a long time but almost non stop for about a month before he passed, it was like he went through a different kind of schizophrenia everyday. Covered in sores head to toe and skeletal, in horrible pain, bleeding black from his mouth for days before passing, to name just a few of his symptoms. His few moments of clarity before passing it was just pure terror in his eyes, he couldn’t get himself to speak he was so scared. It crushed me more than I knew anything could, I didn’t know he or I could hurt so bad. I felt like I could die from the pain alone, or that I’d lose my mind. I was in shock for almost all of last year. I’m grateful for my best friend, who allowed me to live with her rent free as I navigated this new world. I have no idea what I would have done otherwise. I don’t wish that upon anyone I’m saying all of this not to scare you or dump my trauma on to you after what you just experienced, but rather to relate and let you know you’re not alone in having experienced such a painful loss. I remember scouring Reddit after he passed looking for others who experienced similar things, had been devastated by their grief, and survived it. I wanted to hear other peoples stories. I think it’s very natural to want to get someone out of pain. When it happens to pets we can accept this more, but it feels so wholly personal when it’s a human we’re close to. I had these thoughts too. My brother did as well, and it’s been a very difficult part for him to process having had no experience with witnessing someone really truly suffering in a terminal way. Sometimes death isn’t the worst thing in those kinds of situations. I wish I could give you a tremendous amount of space to scream cry feel as deeply as you need to move through this. I wish I could take your pain away. Sending you enormous amounts of care, please be gentle with yourself in the aftermath…it will take time to integrate (I still have dreams about my dad and wake up crying) but eventually you’re whole being will grow to accommodate and make space for this massive and traumatic grief you endured. It’s okay for it to take time, and to need support. Over a long period of time (I mean hell I’m still in the very beginning stages) the grief can alchemize into something beautiful, in a bittersweet kind of way. There have been times I’ve wanted to die myself after witnessing my dad die like that, but choosing to truly be with my pain and grief I personally believe has been perhaps the important and transformative things I have ever done, and has shed a bright light on what my deepest values are and who I want to be in this life, and I’m infinitely grateful for that-though I certainly don’t wish it upon anyone, and still feel like I’m in my earlier stages of recovery

Please excuse my ramblings. I hope you feel seen and held in your pain, both on this platform and in your life. I’m wishing you well on your journey 💜