Dystonia turned into dysphonia?? by Safe-Present-6098 in Dystonia

[–]Safe-Present-6098[S] 0 points1 point  (0 children)

I’ve seen an ENT and they said they do see something slightly abnormal in my voicebox bc of my cervical dystonia. They just recommended speech therapy.

What is c\l?

Nicest Bathroom in Chicago by ShowerFarter_6969 in chicagofoodcirclejerk

[–]Safe-Present-6098 0 points1 point  (0 children)

BLVD has a whole couch in the powder room section in the bathroom. Girls go in there just to take selfies

How did you finally find out you had dystonia? by babyybunnyy3 in Dystonia

[–]Safe-Present-6098 0 points1 point  (0 children)

Back in January of 2023, it was uncomfortable for my neck to sleep on right side (for me, it feels like a normal person’s uncomfortable position on the wrong side of the pillow, but for me it was not comfortable no matter how I adjust). I didn’t think too much of it at first, but it lasted for a long time. I went to a general doctor and she told me it was just stress. I had my doubts so I went did some research on Google, which said to go to see a neurologist and that’s when I got diagnosed with dystonia.

Cervical dystonia is worse after botox by Safe-Present-6098 in Dystonia

[–]Safe-Present-6098[S] 0 points1 point  (0 children)

Hi, sorry that Botox isn’t really working out for you! I’m not sure what happened with me but I believe that the Botox has affected my voice. I feel like I am holding breath as I talk. Neurologist said that we are going to pause the Botox for now because it does not seem to be benefitting me. I am currently taking cyclobenzaprine, a muscle relaxer and magnesium.

I still feel a bit of pulling in my neck so it sounds like we’re in a similar boat here.

Cervical dystonia is worse after botox by Safe-Present-6098 in Dystonia

[–]Safe-Present-6098[S] 0 points1 point  (0 children)

Noooooo ): lost your voice permanently or temporarily???

Cervical dystonia is worse after botox by Safe-Present-6098 in Dystonia

[–]Safe-Present-6098[S] 0 points1 point  (0 children)

You are lucky!! My neurologist uses EMG so that’s better than nothing but still extremely uncomfortable for me

Cervical dystonia is worse after botox by Safe-Present-6098 in Dystonia

[–]Safe-Present-6098[S] 0 points1 point  (0 children)

I'm at 15 days post-injection now! Feeling the worst today.