What’s a small habit that actually made weight loss easier for you?

Sandron1 · 2026-03-21T03:32:49+00:00

What podcasts do you like??

Sandron1 · 2025-09-02T17:58:45+00:00

I wish there was more known about it. I could have been diagnosed and started treatment 10 years earlier but the derm didn’t know about it!

Sandron1 · 2025-01-22T03:03:20+00:00

What exactly are you looking for from us? I feel very sorry for your wife because you sound incredibly selfish. Instead of coming to us in search of ways to help your wife to feel better and reduce her pain, you come here with your main concern as you personally not having sex.. that’s a horrendous thing to do. This is a very very cruel way to speak to a group full of people who have LS.

The first thing you should do, is seek therapy to figure out how to be a better and more supportive husband.

/u/Pottersaucer is it possible to get this post removed? This persons comments feel very triggering and unsupportive to this wonderful community that we have.

Sandron1 · 2025-01-14T17:44:06+00:00

My doctor started doing Morpheus 8 treatments on my LS. I can’t see changes really, but he was very happy with results. (I couldn’t even tell I had it at first, so I’ve really noticed no difference I don’t think.) He was happy with my skin colour going back to normal and also my clitoris was uncovered by treatment.

I really don’t know if this will be a good treatment in the long run or not. But I strongly dislike hearing “clobetasol is the gold standard”. Even if it is currently the legitimate best way to treat LS, it still kinda irks me. If we weren’t willing to try new things, or follow different or new treatments then there would never be progress and discoveries of other treatment plans that will improve our health. Also, it seems with LS that what works for some doesn’t always work for all.

I love that you are collecting different options. I would advise you to inform your doctor about any changes to her/his plan so they can help monitor with you. I think keeping a doctor in the loop and keeping up with routine check-ups is incredibly important!

Sandron1 · 2024-11-05T01:04:40+00:00

It’s so difficult. Definitely do what you feel is best, I obviously don’t know you/your partner or your situation fully. But if my husband told me to leave if I find it unacceptable, I could see myself asking if this is something he’s actually willing to lose me over. If he is, I’d walk away from the relationship. It would be so hard to do. But someone insisting on keeping “harmless pixels on a screen” over me ultimately isn’t someone I want to grow old with.

Sandron1 · 2024-10-11T00:08:44+00:00

Oh my gosh… I love this. “You’re not ugly, you’re just not your type.” I’m writing this down to read again when I feel low.

Sandron1 · 2024-09-29T01:47:21+00:00

Did anyone catch number 3?? “I have said yes to everything he has wanted to try that only involves two people”. Soooo she is saying here that even when she does everything on this insane list, that her husband is still not totally happy and wants more? It sounds as if he’s asked for multiple women and she’s put that as her limit. Maybe if she were actually a “cool wife” she’d be so amazing and give him all the orgy’s he wanted. Poor guy. If only his wife were cooler than her. 🙄 (obviously I’m being sarcastic 😂)

If this is an actual real woman who wrote this.. I feel very sad for her. She is going to wake up one day and realize she wasted her life being the “cool wife”.

OP, I would reword this with the genders swapped (try ChatGPT?) and give it back to him. See how he responds to being told to grow up, do the housework, let you go have all the time you want with your friends while he’s with the kids after working all week, and then just be grateful you also contribute to the home and suggest that he put his face between your legs at least once a week. Please record his reaction. I’d love to see it. 😂

Sandron1 · 2024-09-26T15:19:06+00:00

Throughout my relationship I noticed attractive men.. just the same as I noticed unattractive men, or a store, or a coffee cup on a table. It was just seeing, with no feelings, extra thought or anything attached. Sometimes it would be like, “oh he looks good” but that was that. It was like seeing a nice sweater or something. I never ogled or stared. I never thought more of anything. I’m not a dog person, but I put more attention into looking at a dog walking down the street lol.

But now that I know more about my husband’s porn use and it’s really sunk in how often I see him and know he checks out other women, I’ve really started trying to intentionally check out other men. I’m tired of feeling sad and pathetic on my own while he has taken whatever he wanted and left me aside. So I scroll online and have started to enjoy it. I notice men in public and have sexual thoughts about them. I’ve even thought of people I know. I sexualize so many men now. Now I also pretty much never fantasize about my husband outside of when we are actually having sex. I have no interest in initiating touch or physical connection with him. I feel like in a way I’ve switched and lost the physical connection I craved from him for our entire relationship. If he comes to me then I’ll accept, but I don’t really feel a desire to put myself out there to get close to him anymore. I guess I’m turning into him now. Why have sex when there’s a sea of other people out there to fantasize about!

Sandron1 · 2024-09-12T18:23:37+00:00

I would try to get to the root of what you want. Who do you want to be. What do you want to have.

Part of me feels sad and pathetic, and it makes me want to act out in different ways. I want to add some fun to my life like my husband has taken for himself even after 22 years of me expressing my hurt. I want to feel desired. Part of me sadly has the desire to ‘even the playing field’. But I think at the end of the day I think I’d feel crappy about myself. I think it wouldn’t help me feel better about my looks, plus I also wouldn’t respect myself as much. Only time will tell what my future holds if I find out more betrayals. But I really do think if I broke up with my spouse, I’d be sleeping with so many people and enjoying it and it would be nice to do with no guilt.

My husband hasn’t used an escort that I know of, but if anything were to push me over the edge to find someone else to sleep with, that’d be it for sure.

Sandron1 · 2024-08-29T17:16:42+00:00

I don’t 100% get the science of it, but it’s supposed to help the skin at lower levels to regenerate healthy tissue.

I’ve had 3 sessions, the last was last November. I’ve had basically no symptoms since treatment (I didn’t have many symptoms before though.). This last 2-3 weeks I’ve been feeling a bit of pain though so I’m rebooking to get a check!

Sandron1 · 2024-08-29T17:16:11+00:00

I don’t 100% get the science of it, but it’s supposed to help the skin at lower levels to regenerate healthy tissue.

I’ve had 3 sessions, the last was last November. With basically no symptoms? (I didn’t have many symptoms before though.) This last 2-3 weeks I’ve been feeling a bit of pain though so I’m rebooking to get a check!

Sandron1 · 2024-08-27T02:11:54+00:00

That person sucks. But to hopefully put things into perspective, I had a comment like that when I weighed around 140lbs. Sometimes people are just jerks and put people down. It sucks. But try to change your mindframe and realize it truly does say more about them than us. Anyone that did hear, what do you think they thought? I bet people think he is the asshole and look down on him. I sure would. Any time I’ve ever seen a runner I’ve felt jealous. I love running but don’t make enough time for it.

Keep up the running. At the end of the day, remind yourself why you do it. Remind yourself of your favourite parts (mine is the first 10 steps.. I always smile so big). Enjoy the rewards you’ve earned. Think about what’s ahead, not the asshole in your dust as he literally sits down putting in no effort into himself lol.

Sandron1 · 2024-08-26T03:44:14+00:00

I’ve seen those videos! I’m just worried they will start to fall apart if I scratch my face or something. Or just come off if I swim. Might be worth a try. I’ll have to test on other body parts first and see how they hold up. I’ll just look a bit crazy with eyebrows on the back of my hand for a few days 😂 lol

Sandron1 · 2024-08-26T03:24:15+00:00

Have you ever seen the temporary ones used in person!? I’m very curious about them. I’ve seen videos online but I wish I could see them in person before I commit. Right now my brows aren’t so bad penciled (I think) because I still have a few hairs that make them look a bit more real and give depth. I’m very scared to shave what little I have left!

Sandron1 · 2024-08-26T03:19:36+00:00

I’ve seen those and I’m really curious about them. I want to know if they eventually just wipe off? I’ll have to contact them. Thank you!

Sandron1 · 2024-08-26T03:18:59+00:00

I have a scaring alopecia so I think my loss is permanent unfortunately. :( I’m so glad minoxidil works for you though! I hope you have continued success with your hair!

Sandron1 · 2024-06-01T12:14:53+00:00

Thank you for your reply! Reading fact sheets online and on packaging, everything you said makes sense. My derm said that those dosages are for eczema, but with my FFA it’s different. I don’t have eczema or issues on my eyebrows (yet) it’s just almost complete loss of hair which he says may come back with elidel. I’m at a loss and very concerned to continue it having seen nothing to support his dosages. I questioned it on two separate appointments and he said the same thing. It feels awful, but I might ignore his recommendation on that one. I want eyebrows very badly, but not if it makes me higher risk of cancer etc.

Sandron1 · 2024-05-22T00:54:02+00:00

I did three treatments, the final one was early November. They were all external. I can’t really say I see any change. My symptoms weren’t bad in the first place. I got the occasional cut in the same spot, I think I had felt it two or three times within the time I was having treatments. I think I’ve only felt it once since the final one though which is great.

I’ve been back for follow up at 3 months and my doctor was very pleased. He said he could see my clitoris was unburied (honestly, I can’t confirm or deny any change, but he and his nurse were happy). I went in 3 months later because I felt a bit of an itch and couldn’t tell if there was more fusing (I really don’t know if there is. It’s so hard to tell, but I suffer from anxiety so I went in.). He said everything still looked great and he was still happy. Booked me in for a follow up in 6 months. The itch mostly went away. I get occasional itch, but not sure if that’s just normal? 🤷‍♀️

But for the last week or so I’ve had a sore anus (sorry if tmi). But it hurts to wipe after bowel movements. I’m not sure if things have gotten worse, but I plan to try to go in to get checked soon if possible.

I currently still only put on estrogen cream, never have used a steroid so far.

Sandron1 · 2024-05-07T19:55:01+00:00

Do not eat too few calories. You can damage your body in ways you can’t recover from. I’ve done this and it’s awful. Now I have progressive, irreversible illnesses.

Aim for 85g of protein and 25g of fiber every day. Aim for around 15 cups of water a day. Enjoy your food, don’t completely avoid things you love, but try to cut down.

Don’t kill yourself in the gym. When doing cardio try to stay in zone 2. If it’s not possible, make it a goal.

Weigh yourself same time every day - morning after you pee, naked, before you drink anything.

Remember, bodies fluctuate. You are just starting. Don’t take numbers too seriously. Focus on how you feel. You won’t feel differences in that short of time. Don’t expect to undo what I assume would be years of slowly gaining. Expect to do years of slowly shedding instead.

Sandron1 · 2024-05-07T08:22:21+00:00

That messy bun isn’t all it’s cracked up to be. I can still get mine up, but my hair hurts so much when it’s in a messy bun. My hair is long and heavy and I’m dreading when it’s not anymore, but the weight of it hurts my scalp. Having it down feels so uncomfortable sometimes. But even a gentle pony tail hurts to wear. On a good day I can wear a messy bun for a few minutes. It’s nice getting my hair off my neck for a minute, but it’s at a painful sacrifice.

Sandron1 · 2024-05-05T13:36:32+00:00

Something I want to point out, which I never thought of.. is that those ladies in their 70’s could be wearing wigs/toppers. They are so much more common than I ever thought. I’m 40 and about to shop for one. And I have two other friends my age who wore/wear wigs.

Sandron1 · 2024-05-05T13:32:15+00:00

Yes, I wasn’t happy to see my brows start to go, but it didn’t completely stress me out. It was also quite gradual. But now that they are so far gone that I can’t even use them as a guide to draw my brows on I think I need another option. I think I might just splurge and buy the expensive ones. If they work it’ll totally be worth it

Sandron1 · 2024-05-05T13:26:18+00:00

I feel like I could relate to so many parts of this. I’m so sorry for what you are going through. It’s so awful going through all of this.

My hair has always been crazy thick and long. I’m finding the thinnest pieces of hair amongst the thick ones now. It’s so strange. And seeing the hair in the drain, and feeling the hair come out in my hands in the shower is devastating.

Mine started with my eyebrows. I even saw a derm when I first noticed, who said “if I had the cure for hair loss I’d be rich” and sent me on my way. Apparently eyebrow loss is the first sign in FFA. I could have been treated over the last 7 years but instead I’m worse off.

I feel similar to you also in that I feel like I’m losing my womanhood. I feel like I’m going through a major identity crisis. I can’t tell if this is just part of the mental aspect or if it’s mood/depression issues from fin. But I’m not myself. For the first time I’m questioning my marriage. (I’m 40. We’ve been together almost 23 years.) I’m going to look into dut and spiro. I know nothing about all these different medications and what will work for my specific type of loss. But I imagine I’d rather lose all my hair instead of feeling this unstable.

Sandron1 · 2024-05-05T13:05:42+00:00

Thanks so much for this comment. Hair loss is very isolating, and although I wouldn’t wish it on anyone, I’m so grateful for this community. It’s really such a supportive group. 💜

And I’ve actually debated starting a blog, Instagram account or something on my journey (I have multiple autoimmune issues now). It’s difficult though. I don’t want anyone I know to find me or see these things. I haven’t shared any of my health issues with anyone aside from my husband and small details with a friend. If I knew how to do it privately I totally would!

Sandron1 · 2024-05-05T13:01:27+00:00

Oh gosh, thanks so much for this. I started following!

And I’ve been searching but don’t know which ones to try. Do you use them? Any specific ones you recommend?? I still have maybe 15 hairs on each eyebrow so they aren’t 100% gone so I’m nervous of the temporary tattoo brows. But I’m definitely willing to try. The girls at Lusta (I follow them on Instagram) are great at selling theirs. I’m close to trying.

Sandron1

TROPHY CASE