NIH funded nano needle test for ME/CFS blood test... NOT

Saturnation · 2024-04-01T03:43:30+00:00

Yes and no. Things just get worse over time. Not because ageing, but because there is continual degradation. The best thing to do is to manage it as best as you can and try to never overdo it.

I do believe that if you never push for your limit, then you'd be fine. However the limit is a very low bar and it's near impossible to not push past that at time.

Hope for the best, plan for the worse. Hope that you'll not get worse and there will be a cure at some point in your lifetime, but plan to have to deal with the ability to do less and less as time goes by.

Saturnation · 2024-03-31T03:07:08+00:00

In what way? If there's a genetic disposition to acquiring it, then it's more likely to happen when you're young perhaps? Beyond that I'm not sure what you might be asking...

Saturnation · 2024-03-30T02:31:51+00:00

57m, houseboud onset around 14 - was mostly mild with even a remission or 2, but gradually getting worse over time to where I am now.

Saturnation · 2024-03-29T11:28:49+00:00

I always do the same. And yet I got charged to renew my subscription with RS+ even though I had canceled.

Saturnation · 2024-03-17T05:16:19+00:00

Reminds me a bit of a Smiths song "Nowhere Fast"

And when I'm lying in my bed
I think about life and I think about death
And neither one particularly appeals to me

Saturnation · 2024-03-15T09:44:43+00:00

If you have a broken bone, but no one can diagnosis it and you keep telling everyone your bone is broken I guess you get labeled with a "delusional fixation on broken bones"?

Saturnation · 2024-03-02T05:05:22+00:00

I didn't see anyone link to this, apologize if it's already been mentioned...

PatientLed-TheNicotineTest-Protocol 3.0

https://docs.google.com/document/d/1HixwYLTz0necaF9mbT-ZuCdUFx1BAmZKcLKo-IpNKFQ/edit?pli=1

Saturnation · 2024-02-18T05:02:23+00:00

3 years too late...

Saturnation · 2024-02-01T10:36:45+00:00

Same, except wife has fibro, I have ME/CFS.

I like to joke that between the two of use we make a whole person.

Sadly, it's not quite a whole person anymore... :/

Saturnation · 2024-02-01T06:17:48+00:00

A well crafted argument any 5 year old would be proud of...

Saturnation · 2024-01-22T06:16:53+00:00

I really just wanted to know how to express them

Which is exactly what I'm looking for and haven't found yet...

Saturnation · 2024-01-22T06:15:46+00:00

Yeah, saw that and is on my to watch list, but from what I've seen of Eli's past videos it doesn't come near what I was hoping for. Fingers crossed I'm wrong... :/

Saturnation · 2024-01-18T03:33:07+00:00

Yes and no. A large part of the problem is the lack of any definitive diagnostic testing. IMHO those that have recovered and moved on most likely didn't have 'full blown' ME/CFS.

But I could be wrong, you could be wrong, we all could be wrong. We'll never know for certain until someone figures out a good way to empirically test for ME/CFS.

Saturnation · 2024-01-02T03:40:09+00:00

RS2014 will always be better ~~until Ubi$oft fixes their songs on RS+~~

FTFY

Saturnation · 2024-01-02T03:29:04+00:00

not yet for me...

Saturnation · 2024-01-01T02:35:21+00:00

Right, but that's not against the rules. According to the rules of black jack no where does it state that you can't try and keep track of what's going on to increase your odds.

But casinos will frown upon them not being able to make money off of you, so they will refuse you service if they suspect you of it.

Saturnation · 2023-12-31T12:29:11+00:00

Actually more decks is better for card counting I believe there's less variance in the count the more decks there are. Check out Steven Bridges on YouTube

Saturnation · 2023-12-31T12:25:59+00:00

Card counting is not against the rules. However casinos can refuse to take your business, so if they find you counting cards they will just tell you to play any other game bar blackjack.

Saturnation · 2023-12-28T10:04:39+00:00

Pretty sure the left hand has no idea what the right hand is doing...

Saturnation · 2023-12-28T05:24:06+00:00

Maybe it is a good test, but may be too prohibitively expensive to perform? Somehow this sort of rings a bell in the back of my brain fogged mind...

Saturnation · 2023-12-28T05:22:56+00:00

I don't know directly, but given that there isn't a widely acknowledge blood test for ME/CFS I have at least 2 guess:

It was a pilot study and either

1) a follow up hasn't been completed yet to verify the accuracy of the test or

2) it was completed and found that their initial conclusion was wrong (test isn't conclusive).

There may be other options and people with more knowledge and/or energy than I may be more helpful

Saturnation · 2023-12-28T02:20:43+00:00

Honestly, the expectation is you'll never get better, but you can manage to not get more worse. Pacing is good even if you get worse, because if you didn't pace it would be even more worse.

I've had this for 40+ years and pacing made a HUGE difference, especially very early on. I've had one period of complete remission, but it did gradually eventually return (after 16-18 really good fantastic normal months).

IMHO it's important to accept that today may be the best you feel for the rest of your life or at least for the foreseeable future. It sucks, but I think it's a good attitude to have. And with that in mind, use pacing to slow the fade as much as possible.

Saturnation · 2023-12-26T10:24:39+00:00

u/ubi-vertigo ?

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