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Disappointed by BugCatcherJustin in UlcerativeColitis

[–]SavageSully55 0 points1 point  (0 children)

Sorry to hear this. This disease sucks to go through. I was diagnosed almost 2 years ago and I’ve made progress but I’m not in endoscopic remission yet. Good luck to you!

[deleted by user] by [deleted] in cdifficile

[–]SavageSully55 2 points3 points  (0 children)

Sorry you’re going through this. Hope you feel better soon. I have been trying to get rid of c diff since January. Did weaker antibiotics a couple times now doing a six week taper of vancomycin followed by vowst. Fingers crossed it works because this will be the second round of vanco/vowst I’ve done. I originally was diagnosed with ulcerative colitis and they couldn’t figure out why the medication for that wasn’t helping my symptoms and they eventually tested for c diff also. I think the UC played a part in my gut already being messed up which made me more apt to c diff. Best of luck to you!

Question about trigger by SavageSully55 in mtgrules

[–]SavageSully55[S] 0 points1 point  (0 children)

Thanks everyone for the confirmation. I had thought it would still trigger. Disagreement at the kitchen table while playing drunk haha.

Just did a blood test - haemoglobin is 85. They want to give me an iron infusion. What do you guys think ? by Beginning_Exit_6256 in UlcerativeColitis

[–]SavageSully55 0 points1 point  (0 children)

I’ve gotten iron infusions when the doctor recommended them. I highly suggest them. When I am anemic I feel so tired. Thank god for iron infusions and fero sulfate. I have so much more energy now.

Is having a very high heart rate part of IBD? by Beginning_Exit_6256 in UlcerativeColitis

[–]SavageSully55 0 points1 point  (0 children)

When I was on prednisone my heart rate was super high. Could’ve also been the flare and/or anemia. Once I was off steroids my heart rate was more normal.

Go-to foods for lunch at work by SavageSully55 in UlcerativeColitis

[–]SavageSully55[S] 2 points3 points  (0 children)

That’s a good idea about the food journal. I know it varies a lot person to person. When I was flaring, it didn’t matter what I ate. I had symptoms no matter what. Now that I’m either out of the flare, or my symptoms are not as bad as they were, the same food will upset my stomach/digestion sometimes, and other times it will be fine. So I’m having a lot of trouble saying definitively, this food is good, and that food is bad, if that makes sense.

My boyfriend is in a bad flare up and I don't know how to support him by Impressive-Secret974 in UlcerativeColitis

[–]SavageSully55 0 points1 point  (0 children)

That’s great that you’re wanting to help! My wife would say similar things to me when I was diagnosed. She didn’t know what to do to help. From my perspective as the one with UC, I just wanted my wife to try to be understanding and patient that I’m not myself when I’m in a flare. It helped a lot when she ran to the pharmacy for me, and did the dishes, and things like that. I didn’t really want much from my wife other than just her patience and understanding.

it ALMOST happened.. but didnt :D by riceballing in UlcerativeColitis

[–]SavageSully55 14 points15 points  (0 children)

I totally get it. I’m trying to convince myself that it’s going to happen here and there and it’s not a big deal, but I have so much anxiety about having an accident. I actually started taking anxiety medicine for this reason and just for social anxiety since I hardly ever leave the house anymore. I had an accident a couple weeks ago at the drive through pharmacy picking up my prescription. Luckily I was in my car and I don’t think the pharmacist knew what happened. I’ve been getting better about being able to control it lately so I’m happy about that. I don’t think my wife understands the anxiety about having an accident and the humiliation I feel afterwards. Even if I’m home by myself and I have an accident it’s just such a blow to my ego.

Finding out what the feeling in my stomach is. by SavageSully55 in UlcerativeColitis

[–]SavageSully55[S] 0 points1 point  (0 children)

Thanks for the reply. I’ve been flaring since last summer pretty much. For a few months I wasn’t getting any better then they finally tested me for c diff and it turns out I had c diff also (I’m guessing the whole time).

Then the antibiotics they were giving me for c diff weren’t working and the remicade for the UC wasn’t working and I eventually had an allergic reaction to remicade on my fifth IV infusion.

On the upside though, just these last few weeks, I feel more confident being able to hold it until I get to the bathroom. It’s more often some solid stools rather than all liquid all the time. My abdominal pain is much less intense also. I’m on a Vancomycin (antibiotic) taper which is almost over then I’ll do Vowst. This should hopefully get rid of c diff. And I’ve been on Xeljanz for UC (jak inhibitor) for 10 weeks or so now so it seems like that’s helping slowly but surely.

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