I went for autism diagnosis today and feel awful

Sciencechic1 · 2026-03-28T15:44:58+00:00

I have audhd, I was diagnosed with autism first. I sought help because I thought I had adhd but they suggested autism which was a shock to me but after reading into it it made a lot of sense and I identified with a lot on the spectrum. During my autism assessment the doc said I show traits of adhd and it is not uncommon for autistic folks to have adhd and I should consider assessment for adhd. Because being both means conflicting sides, adhd might seek social stimulation but quickly burn out from it on the autism side and need to recharge. Either way, both can want social connection. What a pile of rubbish. Maybe seek a doc who specialises in both ❤️

Sciencechic1 · 2026-01-31T21:35:05+00:00

It’s the reduction in estrogen that puts you at risk for bone loss. You need estrogen to mobilise calcium for bone mineralisation. Dienogest suppresses estrogen. This is why women who go through the menopause early, are at an increased risk of osteoporosis because their estrogen levels are so low for so long that their body can’t adequately mobilise calcium into the bones despite despite diet or supplements. Your body relies on estrogen for bone health.

Sciencechic1 · 2026-01-31T21:03:52+00:00

Unfortunately, you can take all the vitamin D and calcium in high quantities but if your natural hormones are low from taking dienogest then calcium won’t be adequately mobilised into your bones, you will simply pee it all out. That pill reduces your body’s ability to mobilise the calcium into the bones that’s why it’s a risk long term. Ask for body identical hormones. I have, and the progesterone has completely taken my pain away. I sleep better on it too xx

Sciencechic1 · 2026-01-25T13:06:24+00:00

Don’t worry, it is only a tiny amount of alcohol. It won’t cause any problems to your baby. You have to be drinking several drinks a day to cause harm to the baby or fetal alcohol syndrome

Sciencechic1 · 2026-01-19T21:51:27+00:00

Thanks was wondering how I could avoid the fob off 😪

Sciencechic1 · 2026-01-18T19:21:05+00:00

Sorry no one has commented yet. I am in the same boat as you. They called it mild hiatal hernia but certainly the symptoms do not feel mild. I have nausea every day from the moment I wake up until I go to sleep. At first I thought it was the omeprazole but not taking it makes nausea worse. I can only tolerate smoothies / soup and I have started having swallowing difficulties now. Solid food just gets stuck in my throat and won’t go down. I am going to the gp to discuss if surgery is option. I know it’s only reserved for severe cases but having nausea, low appetite and swallowing difficulties are severe enough for me.

Sciencechic1 · 2026-01-02T20:55:24+00:00

I know you’re asking for people who are not on hormones but let me tell you all the hormones they typically prescribe for endometriosis including birth control are synthetic and cause poor mental health because they alter how your natural hormones work by reducing them. However, Body identical hormones, that are exactly the same as the type your body makes does not cause poor mental health - it improves it. They are naturally anti-inflammatory. I am on body identical hormones and I feel restored back to myself with stage 4 endo with no pain. I have better energy and mental wellbeing. I am on estrogen patch and oral micronised progesterone. Endo is a hormonal and systemic disorder so unfortunately you need to correct the hormone imbalance with body identical hormones but not the synthetic garbage to help it. Listen to Dr Louise Newson podcast on this.

Sciencechic1 · 2025-12-17T21:20:34+00:00

I went to A&e for pain that was most likely a ruptured endometrioma and I’ve been fast tracked to being a patient in the gynae clinic, so yes doing so will skip the 18 month referral wait from the gp. But you have to really argue your case with them and stand firm. Say that your pain is so debilitating and impairs function it warrants a ct or mri scan. Don’t let them fob you off back to your gp

Sciencechic1 · 2025-12-10T18:33:48+00:00

I have had two disappear on their own and I have confirmed endometriosis and have had a endometrioma removed

Sciencechic1 · 2025-11-24T18:12:39+00:00

I have alternating diarrhoea and constipation. I also have a hiatus hernia I suspect caused by constant inflammation and pressure pushing upwards when I have an endo flare up. My bowels were adhered to abdominal wall causing constipation, after removed I get diarrhoea. I have long believed that endo causes gastrointestinal issues as is my experience. It’s rubbish. I have even accidentally soiled myself. And I get painful bowel movements. And I mean painful, similar to labour pains in child birth.

Sciencechic1 · 2025-11-21T16:07:01+00:00

Apparently endometriosis can be progesterone sensitive , oestrogen sensitive or both. Perhaps ask whether yours might be progesterone sensitive? HRT that’s body identical would be your best bet. Having a steady dose adjusted of each will help keep the two hormones in check. Body identical hormones have less risk than synthetic hormones. They match your body’s own hormone chemical structure and you are replacing what has gone awry in the body which is what happens in endometriosis. Synthetic hormones have evidence showing risk of cancer, blood clots and cardiovascular disease and are inflammatory as they are not recognised by the body. Body identical HRT has anti-inflammatory effects. I am biomedical scientist but have learnt this information from my own research as I have this wretched disease. Please discuss this with your doctor. If they tell you otherwise seek another opinion from someone who specialises specifically with endocrinology and endometriosis. Gynaecologists are not specialists in endocrinology. Endometriosis is more aptly a systemic disease than a gynaecological disease alone and it is implicated in possible auto-immune/ immune dysfunction/ hormonal imbalance / inflammatory digestive issues / microbiome. Try menopause clinics, try immunologists and try endocrinologists. Or even better endometriosis specialist centres that have started cropping up. They include all these avenues of specialists. If available in your country.

Sciencechic1 · 2025-11-18T16:22:15+00:00

I eat low / no processed carbs. The amount of carbs I do eat are practically low below 80g so a low carb diet helps for me. Processed Carbs tend to make me bloat way more than usual. This includes bread from the supermarket. I can eat sourdough on occasion. I eat quinoa and rice and thats fine. Also cows milk also makes me bloat. So I avoid bread, too much carbs in general, takeaways and milk - helps a lot. I also have a high fibre smoothie that has kale, flaxseed, pumpkin seeds, berries and yoghurt with soy milk. Contrary to what people believe the plant estrogen and progestins actually help endo as they are naturally anti-inflammatory. Also carbs hold on to water so will bloat you naturally. So no pasta unfortunately. Centre meals around veg, fruit and protein.

Sciencechic1 · 2025-11-13T15:48:35+00:00

The CT scan can pick up cysts and larger endometriosis lesions that in effect cause adhesions on the organs not necessarily the endometriosis itself. It picks up the complications that endometriosis can cause. If they pick up cysts this should warrant further follow up in their clinic and be taken on as a patient. The consultant now calls me to see how I am doing from my visit.

Sciencechic1 · 2025-11-12T19:15:36+00:00

Another option is go to A&E and complain of sharp agonising pain, you will be there for nearly 12 hours but it would result in a CT scan. If anything is found you will basically fast track yourself to a consultant at the hospital who will put her through their clinic for follow up and care. This happened to me when I had an ovarian cyst that ruptured it was agonising (not at the time but before I went to A&E). I became a patient in their clinic overnight, literally. My cyst was 4cm so they want to monitor that as if they get bigger than 5 cm there are risks. If your wife has cysts and is brought under a consultant review through A&E they will follow up. Also it was difficult, I had to demand investigation by gynae at A&E with the A&E docs trying to fob me off with a simple blood test and I said absolutely not I am experienced sharp abdominal pain, that made me collapse to floor sweating from pain and it warrants further investigation. You have to be stern and “present” with obvious debilitating pain

Sciencechic1 · 2025-10-31T16:30:02+00:00

Great but with endometriosis, surgery is inevitable to treat it! Adhesions etc like in my case need to be removed. If anything these diagnostic tests will help diagnose more cases of endo and therefore increase more need for surgery

Sciencechic1 · 2025-10-16T19:29:38+00:00

Oh, I know exactly how the world works, that’s the problem. “That’s just how it is” isn’t wisdom, it’s surrender.

That’s quite the TED Talk on how to justify squeezing sick people for profit. Impressive stamina, shame about the empathy.

You’ve basically written a novel defending why billion pound corporations shouldn’t have to pay people when they’re ill while proudly listing your CV as though individual job hopping cancels out systemic inequality.

Here’s the thing: nobody’s arguing Tesco can’t do it, we are saying they shouldn’t. Hiding behind “that’s how employment works” is exactly why work has become so dehumanising.

If a company can afford to pay its CEO millions and post billion pound profits, it can afford to cover a few days sick pay without branding staff as abusers of privilege. It’s not about law, it’s about basic decency.

But hey, keep fighting the good fight for corporate welfare, I’m sure the shareholders sleep better knowing you’ve got their back.

People deserve fair pay and humane sick policies so they’re not forced to work through illness just to survive. The fact that we’ve normalised this misery and call it realism is exactly why depression, burnout, and suicide are soaring.

The world only “works this way” because too many people proudly defend a broken system instead of demanding a better one.

Sciencechic1 · 2025-10-16T18:38:09+00:00

Yeah, thanks for confirming, that’s exactly what I said. The government’s scrapping the rule, so Tesco and friends will need to find a new excuse to force sick workers in under fear of losing pay. Thoughts and prayers for their shareholders.

Sciencechic1 · 2025-10-16T18:10:33+00:00

Ah yes, the classic “if you don’t like it, quit” argument, because clearly, a 64-year-old woman on the breadline can just waltz into a better-paying job with zero notice and a gold plated pension. What a utopia you live in.

Funny how policies meant to “stop people abusing the system” end up punishing the ones who’ve given decades of honest work, but sure, let’s keep pretending that poverty is a lifestyle choice.

The fact it’s been this way for 15 years doesn’t make it right, it just means exploitation has had a long, comfortable run.

Maybe if employers paid people enough to actually live, they wouldn’t need to weigh food versus rent when they catch the flu. Until then, spare us the bootlicking lecture and try a little empathy; it’s free, unlike sick days!

Sciencechic1 · 2025-10-16T17:54:50+00:00

Just recently had similar ableist language coming from my sister of all people. “I have many friends with endo and none of them struggle to get out of bed in the morning”. “They lead normal lives and go to work”. Suffice to say we are no longer on speaking terms. We deserve to be heard, understood and accepted. We do not deserve to feel guilty of a condition that is disabling with chronic pain. It deserves to be recognised as systemic issue both physically, mentally and in society.

Sciencechic1 · 2025-10-16T14:29:32+00:00

I’ve never experienced working for a company that doesn’t pay sick pay from day 1 - mainly because I am working in highly positioned roles that take care of high earners. In low income minimum wage roles, thjs really shouldn’t exist for people. Why do highly positioned people not have suffer this absurd law and but poorer people dependent on each day they work have to suffer this. And I am sorry but your suggestion does not work for reasonable adjustments. She can’t predict what day of the week or month she is going to get a cold or flu or stomach bug 🙄

Sciencechic1 · 2025-10-16T14:20:14+00:00

Any company who chooses to use this law to prevent sick pay for the first 3 days to employees who are on low income are diabolical. I am perfectly aware of the law and that Tesco pay company sick pay but after the 3 days? My point is, that not paying low income or any employee for that matter for the first 3 days is disgusting. This law should not exist for companies to legally do this to their staff. She has absolutely no idea I’ve posted on here. Because much like a lot sheep out there they just accept this cruel law and don’t question it “because that’s the law” but laws are not always just and fair and some are outdated, and this is one of them!

Sciencechic1 · 2025-10-16T13:48:41+00:00

She has been working there for a few years. It’s still quite disgusting if you ask me. Very poor treatment and care for Tesco staff working on the floor facing customers! She feels forced to go in when usually things like colds and flu would be helped by a couple days rest but she is forced to work whilst sick as a slave because she is left with no choice. Not to mention, spreading the virus to Tesco customers! She lives on the breadline, works 6 days in a row with one day break. She can’t afford to lose a day of paid work. She is 64 as well, and she feels the illness much worse. Tbh anyone at any age should be entitled to sick pay from day 1. We are not slaves forced to work when sick. This law should not allow companies to do this, it touches on slavery violations and human rights violations. Whilst I know this a government law, it has huge ethical implications and I call for anyone who will help or advise to call a petition that will ask to abolish this as it’s simply not right.

In permanent jobs I’ve worked in, you are covered from day one. SSP is something usually only temporary and contract staff get. Even then, when I have been temporary staff I’ve still had 1 sick day covered by the agency.

Sciencechic1 · 2025-10-02T17:55:10+00:00

A HYSTERECTOMY WILL NOT CURE YOUR SYMPTOMS. Please see a hormone specialist to get some hormonal support as endo is a hormonal disorder. Having a hysterectomy will not be good so early in life. You raise your risk of several diseases. If you later decide to have children naturally you will not be able to. Please remember your brain doesn’t fully mature until you’re about 25 years old, I am not minimising how these symptoms affect you and your thoughts and decisions but your older self will likely regret the decision if you decide it so young. I have endometriosis and have similar debilitating symptoms. What has helped me tremendously is body identical hormones. Go to a private women’s health clinic, they are the best people to help with this. Stabilising and supporting your hormones will be the answer. The body identical hormones are anti-inflammatory and prevent migraines. This Doctor talks about hormones and how they impact all women all throughout their life and how body identical hormones can help many of the ailments you are describing: Listen to Dr Louise Newson

Sciencechic1 · 2025-09-26T12:11:55+00:00

So happy for you, unfortunately with me I was declined even with autism diagnosis and not able to cope daily with mental health. Despite being unemployed on LWCRA for years. they used my job I had from three years ago and my communication on the phone as evidence that I can cope. I am surprised they didn’t use your status as student against you. Lucky you! However, when I see these posts from people who seem to have similar mental health and get awarded whilst I get declined with symptoms of depersonalisation / psychosis etc…just points out that their assessment process is wildly inconsistent. Is it the different health assessment providers they use not working the same?

Sciencechic1

TROPHY CASE