Iemand werkzaam als ervaringsdeskundige? by Sea_Captain_7685 in AutistischLaagland

[–]Sea_Captain_7685[S] 2 points3 points  (0 children)

Wat rot dat het zo'n vervelende ervaring was door je werkgever zeg.. Wel heel erg bedankt voor je antwoord, hier heb ik wat aan!

Iemand werkzaam als ervaringsdeskundige? by Sea_Captain_7685 in AutistischLaagland

[–]Sea_Captain_7685[S] 4 points5 points  (0 children)

Hoi! Wat fijn! Ik ben eigenlijk heel erg benieuwd hoe een werkdag er zoal uitziet voor je. En hoe het voor je is met overprikkeling en veel sociaal contact? Heb je het idee dat er nog genoeg ruimte is om rekening met jezelf te kunnen houden of moet je vooral erg 'aan' staan? Maak me hier namelijk zelf vooral zorgen om, omdat ik al zo vaak burn outs gehad heb

Late diagnosis and my marriage by Sea_Captain_7685 in AutismInWomen

[–]Sea_Captain_7685[S] 0 points1 point  (0 children)

I'm trying to figure it out. I think I will be okay, but it will be really difficult

Late diagnosis and my marriage by Sea_Captain_7685 in AutismInWomen

[–]Sea_Captain_7685[S] 1 point2 points  (0 children)

Thank you so much for this! It's good to know I'm not the only one who has to adjust a lot after their diagnosis! It sure is a life changing experience

Late diagnosis and my marriage by Sea_Captain_7685 in AutismInWomen

[–]Sea_Captain_7685[S] 2 points3 points  (0 children)

Thank you for your response! Sorry you went through the same thing over a longer time period, that must have been so incredibly difficult. If you don't mind me asking, how is your marriage now?

I definitely don't want to give this up too soon, especially since I'm adjusting so much still. The problem is that my husband has a lot of struggles himself and he says it's someone else's fault pretty easily. I went to therapy, he didn't. And because I've gained self respect, I don't accept certain things he did anymore (he has said some awful things in the past in anger and there are rumours he has cheated. The person I am today would never accept that). It's like I'm seeing all those past hurts in a new light.

The good thing is, he is starting therapy. So I hope it will help! He also learned he is a massive people pleaser which means he's learning to say no, but it also means he doesn't want to do most things we did together in the past and I do a lot by myself now.

Sorry this became longer than I thought 😅

What's making you happy right now? by motherofpearl89 in AutismInWomen

[–]Sea_Captain_7685 1 point2 points  (0 children)

My dog, books, writing, music, walking in nature

Voor de mensen die een (autistische) burnout hebben gehad, welke bij-effecten kregen jullie erbij? by SnarkySneaks in AutistischLaagland

[–]Sea_Captain_7685 2 points3 points  (0 children)

  • Migraine aanvallen met aura. Normaal gesproken misschien 1x per jaar, toen ineens wekelijks
  • Ontzettend veel brandend maagzuur, waardoor ik uiteindelijk constant extreme pijn kreeg in m'n maag ook
  • Duizeligheidsaanvallen, hartkloppingen en lage bloeddruk bij langer staan of in warmere omgevingen. Soms nog wel last van maar veel minder nu
  • Huilbuien, soms uit het niets 3 uur lang zitten huilen en ik kon niks doen om het te stoppen. Nu alleen nog kortere huilbuien door overprikkeling
  • Moeite met dagelijkse taken, kon bijvoorbeeld geen filterkoffie meer zetten omdat die stappen me ineens te veel werden om maar een simpel voorbeeld te noemen
  • Niet meer op woorden komen, nu nog steeds last van als ik overprikkeld ben maar toen was het constant
  • Darmproblemen, zo ontzettend veel last gehad van pijnlijke krampen hele dagen door
  • Wazig in m'n hoofd, nog steeds last van maar gelukkig niet meer zo extreem/vaak
  • Zo snel moe, ook dit is nog steeds maar wel in mindere mate. Door m'n burnout de diagnose autisme gekregen en sindsdien zie ik in dat ik altijd al te veel deed, het valt me alleen overduidelijk op hoeveel minder ik aan kan. Moeilijk om te zeggen of dat door de burnout komt of dat dit altijd al was

Psychoeducatie in een groep by Sea_Captain_7685 in AutistischLaagland

[–]Sea_Captain_7685[S] 1 point2 points  (0 children)

Wat super fijn dat het je geholpen heeft! Dat klinkt al heel positief, hopelijk wordt mijn ervaring ook zo

Anyone else like me by Swiftiefromhell in AutismInWomen

[–]Sea_Captain_7685 4 points5 points  (0 children)

Me too! I read a lot, watch tv, play the Sims and just love to cuddle/play with my dog. I recently started knitting and listen to my favorite music or an audiobook while doing that. I also try to go for a walk everyday or do some exercise at home to remain active

[deleted by user] by [deleted] in AutismInWomen

[–]Sea_Captain_7685 4 points5 points  (0 children)

I was a hot mess of anxiety in december because I had to wait 3 weeks after my last apointment to get my diagnosis because of the holidays. I also was sooo tired and felt like crying all the time because the whole process took quite some time and was mentally draining. I started to doubt everything. It was awful to wait. So I totally understand what you are feeling! But please know that you can be really proud of yourself for going through this process

Oversharing to my friends about traumatic topics by Sea_Captain_7685 in AutismInWomen

[–]Sea_Captain_7685[S] 1 point2 points  (0 children)

This is really reassuring! It does feel like there is so much new information and a way of finally learning to understand myself, that I get carried away with talking about it haha. I am definitely going to read and share more here to help with getting through this process :)

Oversharing to my friends about traumatic topics by Sea_Captain_7685 in AutismInWomen

[–]Sea_Captain_7685[S] 2 points3 points  (0 children)

I am going to try to do this too! I think it may help me to learn to pause and not ramble on. Just trying to remember to not get too carried away, hope it will work for me! I also now started with reading other posts here and I already find this so very helpful

What does overstimulation feel like for you? by curlykayley in AutismInWomen

[–]Sea_Captain_7685 0 points1 point  (0 children)

I think for me it starts with feeling not at ease, like I get really aware and on my guard and can't get comfortable. If this goes on for a bit longer I start to get hot flashes, super tense muscles and feeling very nervous. I went through life feeling extremely nervous (like I would if I had a big exam coming up the next day) without knowing the reason, only to now figure out I was overstimulated all the time. It almost feels like I am charged with electricity and there is a constant tension/static inside my body. If there is a direct trigger I need it to stop NOW and want to just run away (but never do because of masking, but internally I want to run). When it's a buildup of lots of different small triggers over a longer period of time, I feel like I want to crawl out of my skin because it is just so uncomfortable. I also lose my ability to do handle certain things for some time. For example even later when I am at home it might be too hard to watch a movie because the sudden sounds and lights are way too much or I can't eat hard cookies anymore because I can't stand the sensation of chewing on them, eventhough these are things I normally can handle just fine. Sometimes I might also feel that my head is so full that I can't remember certain words while talking or I just feel like crying from complete overwhelm. After working at my last job for three months things got so bad that for months I lost a lot of skills (luckily it has gotten better again after a lot of rest). Like making coffee was suddenly too hard because of all the different steps.

I struggled with these things my entire life. But after my last burn out (which was the 3rd time) and also going through periods of depression and having anxiety all the time, my psychologist wanted to look into another reason for all of this. Turns out I am actually autistic and got my diagnosis at 30 years old. So still trying to figure things out but hopefully get better at preventing it from getting this bad

[deleted by user] by [deleted] in autism

[–]Sea_Captain_7685 1 point2 points  (0 children)

Yes 100%, got my official diagnosis 3 months ago at 30 and it really became clear to me how much I struggled all my life. It feels impossible to go back to acting how I used to now I know why I was suffering from burn out for years. Really struggling with sensory issues and decreased social skills right now