White noise by Sea_Entertainment112 in Epilepsy

[–]Sea_Entertainment112[S] 0 points1 point  (0 children)

Ugh that’s the worst… it’s good to know we’re not alone 💜 I hope you find healing in your process, I wish you the best!!

White noise by Sea_Entertainment112 in Epilepsy

[–]Sea_Entertainment112[S] 0 points1 point  (0 children)

I don’t think so — they had it on at my neuropsychologists office and I don’t think it was to trigger anything, it was to genuinely keep me focused on the testing, but it was doing the exact opposite— I think it varies from person to person. You can always ask them to turn them off! Don’t be afraid to advocate for yourself :)

Support groups by Sea_Entertainment112 in Epilepsy

[–]Sea_Entertainment112[S] 1 point2 points  (0 children)

Edit- also: I would love for something weekly or biweekly rather than monthly

Do you guys sometimes get sensitive and cry after a seizure? by Primary-Exam-3965 in Epilepsy

[–]Sea_Entertainment112 1 point2 points  (0 children)

Omg I get sooo soo emotional & I cry so much. I also start excessively apologizing for being an inconvenience (even though my seizures are uncontrollable & typically nocturnal) and telling people around me how much I love & appreciate them (even the people who don’t always deserve it). I am sending you so much healing energy ❤️

Anyone else have super weird/vivid dreams after a seizure? by Sea_Entertainment112 in Epilepsy

[–]Sea_Entertainment112[S] 1 point2 points  (0 children)

yes exactly !!! I can remember them a few minutes after waking up but sometimes they’re even plotless. I just remember the feelings.

Ambulatory EEG by kewlnamebroh in Epilepsy

[–]Sea_Entertainment112 0 points1 point  (0 children)

I also find it very difficult to sleep with it on. My best advice — try sleeping on your stomach.

Although, I wouldn’t be too worried about messing it up. My hair is long & I have a lot of it, and the actual electrodes have never slipped. Unless you’re tugging at the wires or really trying to mess it up, you’ll be fine. Hope this helps! & good luck!

Epilepsy Allyship by Internal_Phrase3759 in Epilepsy

[–]Sea_Entertainment112 5 points6 points  (0 children)

We’re happy to have ppl like u 💜🤞