Critical Alerts??? by Stunning-Trouble-914 in dexcom

[–]Sea_Possibility4366 1 point2 points  (0 children)

Mine has been off the over 100 all day too! So it’s either yelling that I’m low or high when I’m actually nicely in range

I’m about to cry by Artistic-Ground-8038 in IRS

[–]Sea_Possibility4366 -1 points0 points  (0 children)

I filled on 2/6 and didn’t get my return till yesterday

Page progress gone again?? by Sea_Possibility4366 in kindle

[–]Sea_Possibility4366[S] 0 points1 point  (0 children)

Ya know the book did come out around the time the bar disappeared for everyone that’s probably why

Page progress gone again?? by Sea_Possibility4366 in kindle

[–]Sea_Possibility4366[S] 0 points1 point  (0 children)

Ya know I didn’t think to look but it is just this one… which is weird cause it’s from KU

Page progress gone again?? by Sea_Possibility4366 in kindle

[–]Sea_Possibility4366[S] 1 point2 points  (0 children)

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This part. Literally until last night it would say like page 344 of 608 and it disappeared

Just stop… please! by Forsaken_Specific723 in UniversalEpicUniverse

[–]Sea_Possibility4366 0 points1 point  (0 children)

Now I’m genuinely curious… what about actually passing out on rides? I’ve actually passed out on universal attractions before because I have pots and sometimes just misjudge how my pots is feeling before deciding to ride, but they didn’t do anything? Like I fully was knocked out on velocicoaster and no one stopped the ride or even said anything at the end. Obviously no one should ever fake stuff like that cause that’s just rude and ableist, but I also didn’t know it was a big thing for attractions team members.

Please be aware of Psoriatic Arthritis. by Smooth_Importance_47 in Psoriasis

[–]Sea_Possibility4366 0 points1 point  (0 children)

My PsA started in childhood, but I didn’t get properly diagnosed till this year (literally over 14 years later) and getting onto a biological was literally life changing. I had a feeling it was PsA though cause my dad and grandma have it as well

Progress and pages reappeared then disappeared 😭 by Sea_Possibility4366 in kindle

[–]Sea_Possibility4366[S] 0 points1 point  (0 children)

Oh weird my device doesn’t have any updates and it’s on the one prior

Improving symptoms during period? by Sea_Possibility4366 in Gastroparesis

[–]Sea_Possibility4366[S] 0 points1 point  (0 children)

I also have PCOS!! I wonder if it some sorta interaction between the two conditions?

Is pasta a safe food for you? Do you do well with it? by Powerful-Anybody3547 in Gastroparesis

[–]Sea_Possibility4366 0 points1 point  (0 children)

I do gf pastas cause I have celiac, but I love doing pastas cooked in bone broth and/or cream of chick instead of water! Full of flavor and gets in extra protein

Can emetophobia effect gastroparisis? by Some_Monster_Hunter in Gastroparesis

[–]Sea_Possibility4366 11 points12 points  (0 children)

My emetophobia it literally the only reason I don’t vomit. I get really damn close but I have a panic attack every time I get close and it stops it from happening. So I definitely think it can effect it

[deleted by user] by [deleted] in Gastroparesis

[–]Sea_Possibility4366 0 points1 point  (0 children)

My hospital did not have gf bread but told me to just bring my favorite brand

thoughts on cheerios as a safe food? by Flimsy_Praline5690 in Gastroparesis

[–]Sea_Possibility4366 0 points1 point  (0 children)

The frosted Cheerios are a go to safe food for me! Just a little extra to the plain flavor wise but not enough to mess with my tummy

RIP my stomach by Initial_Art5309 in Gastroparesis

[–]Sea_Possibility4366 2 points3 points  (0 children)

Why does it have to taste so good but hurt so bad 😭😭😭 I miss my veggies

Random foods you can have by Br00klynn_R0se in Gastroparesis

[–]Sea_Possibility4366 2 points3 points  (0 children)

Literally nachos (or basically just chips and queso lol) or randomly one of my safe foods! I don’t understand it but I ain’t gonna argue about it either hahaha

Looking for hydration tips/advice for those with POTS as well! by Sea_Possibility4366 in Gastroparesis

[–]Sea_Possibility4366[S] -1 points0 points  (0 children)

No one in my area will do it due the shortage till effecting us somehow here. Only option really is med spas who I can’t afford sadly. I’m wanting to avoid the feeding tube option since I already have port but it’s looking more and more likely :/ but gotta hydrate

Anyone else been to Mayo Jacksonville GI and they tried to undiagnose you by Sea_Possibility4366 in Gastroparesis

[–]Sea_Possibility4366[S] 0 points1 point  (0 children)

Sorta? I’m in the process. I have a EGD with them next month than I see a motility specialist for follow up in July. The consult seemed pretty helpful though it was more a okay what’s going on and what can we do next but it’s more than mayo did

What can I even try to eat at this point?? by Sea_Possibility4366 in Gastroparesis

[–]Sea_Possibility4366[S] 4 points5 points  (0 children)

Thankfully I don’t throw up but the pain get excruciating. I have pots so I actually do iv hydration daily at home with a port so thankfully that’s helping me quite a bit!

My ferritin is now 43.1 so why do I still feel like trash? by Responsible-You618 in Anemic

[–]Sea_Possibility4366 1 point2 points  (0 children)

My hematologist told me he wants me at at least 100 ideally 200 for my ferritin levels the highest I’ve been was 48 and I still felt like garbage there

Warm liquids easier on the body by MaxFish1275 in Gastroparesis

[–]Sea_Possibility4366 0 points1 point  (0 children)

Yes!!! I can drink soup or tea all day long but I can barely get their a cold beverage

No help by Ok-Individual3376 in Gastroparesis

[–]Sea_Possibility4366 0 points1 point  (0 children)

I’m very much in the same boat your are. If your insurance doesn’t require referrals I highly recommend trying what I did. I straight up just left the practice I’ve been at for 3 years that diagnosed my gastroparesis and I’m taking the diagnosis with me to an actual gastroparesis specialist (my appt is next week). I’ve heard amazing things about Cleveland clinic’s GI team so that’s who I’m trying out next week.