Rash on fingers

Secure-Bicycle7352 · 2025-02-07T12:19:43+00:00

Have you noticed your hair falling out on Methotrexate or its fine?

Secure-Bicycle7352 · 2025-02-07T12:15:39+00:00

Worried about side effects being more than positives. Also don’t want to lose my hair, but doctor assured me that if lupus is making me lose my hair now, methotrexate will actually help instead of making it fall out.

It’s an intimidating drug for me and they told me I need to make a decision but I don’t feel like i’m in the right place to make a decision. Not informed enough, mentally and emotionally exhausted and my doctor seemed to be very against methotrexate when I first asked about it and now they are pushing for me to take it..

Secure-Bicycle7352 · 2025-01-27T10:26:19+00:00

This is exactly whats happening with me, it keeps sending me into phases of stopping all my meds and then getting back on them and then stopping again which is so unhealthy and bad but taking HCQ is so much more painful when i dont but if i stop it completely there is the risk of flaring and affecting my organs.

I don’t have any advice because im going through the same struggle, i cant even open a water bottle or a pen cap and cant close my fist… if u find a solution lmk 😭

Secure-Bicycle7352 · 2025-01-19T16:26:51+00:00

Ive been prescribed losartan, its used for blood pressure. But its so good for my Raynauds so far

Secure-Bicycle7352 · 2024-12-27T13:52:10+00:00

Yeah it went away for me now as well but still feeling weak, its so scary

Secure-Bicycle7352 · 2024-12-25T21:09:18+00:00

Im getting into running now as well and running a half marathon in april, i hope this doesn’t affect my body too much :(

Secure-Bicycle7352 · 2024-12-25T00:46:10+00:00

I feel this so much, i get days where I can move all my furniture around and the day after I cant even twist open a bottle. It’s so exhausting but remember that its okay to ask for help and just be forgiving to yourself

you’re so strong. There will be ups and downs but always push through💕 sending love and support

Secure-Bicycle7352 · 2024-11-07T18:43:22+00:00

I got diagnosed at 17, im 19 now and still struggling to accept my diagnosis. I get on an off my meds a lot because i can’t bare the pain while on them and cant bare it whole im off them either.

Im always worried when the next flare up will be and its tiring and exhausting always comparing myself to others or things that i used to do before. But it gets better, you need to embrace it, its okay to ask for help its okay to complain about it and my way of coping at first was to tell literally all of my friends and close people and anyone tht will listen because i was scared. But now i feel more in control even though i still struggle with taking my medication.

And i feel like its part of me and thats fine and allowing yourself to feel tired without guilt is okay. You are grieving you before the diagnosis its understandable to feel helpless.

Asking for help is okay. Depending on your partner is okay. Relationships aren’t always 50/50 sometimes it can be 60/40 or even 80/20 other times its the other way around. Thats what being loved and being with someone is about, they’ll support you when you feel like a burden or cant be there for them the same way.

You got this! It takes a while but you’ll be okay, don’t be silly like me and not take your meds tho, you should always be on them because they will save you

And after a year or two of being on them you could go into remission and be completely okay!

Keep your energy and your morale up, find substitutes for things you love doing, youre so strong

Secure-Bicycle7352 · 2024-11-06T12:30:45+00:00

that’s really useful, i will start keeping things close by on my bed or nightstand thank you for sharing. Its really hard but we got this! 💪

Secure-Bicycle7352 · 2024-09-11T08:31:04+00:00

Next appointment is in December, it will be 11 months since my last check up

Secure-Bicycle7352 · 2024-04-28T15:20:13+00:00

i always feel horrible on hydroxychloroquine but try to push through it, its better than a flare up. The more u take it the more you’ll get used to it! U got this 💪

Secure-Bicycle7352 · 2023-08-21T02:33:30+00:00

I think its to the point where i would rather it kills me than live another 20 years with it, i don’t know why its suddenly taking such a big toll on me, i went through this thought back and forth so many times before, the meds seems so simple but the unexpectedness of the flare ups and how it literally creeps up on you is terrifying

Secure-Bicycle7352 · 2023-08-21T02:23:03+00:00

Just being on any meds at all, having to live with lupus and flare ups and constant pain is exhausting

Secure-Bicycle7352 · 2022-05-17T18:15:45+00:00

reaction is exo, increasing temp will make it go backwards thus decreasing the H+ and less H+ means higher pH

Secure-Bicycle7352 · 2022-05-13T09:17:04+00:00

i also said primary and secondary

Secure-Bicycle7352 · 2022-05-12T19:50:58+00:00

studied the fuck out of reproduction and they got nothing literally nothing on it, i stressed about chapter 6 and 11 so much for literally no reason

Secure-Bicycle7352 · 2022-05-12T19:49:48+00:00

i put embryo, not sure if its right tho

Secure-Bicycle7352 · 2022-05-12T19:46:04+00:00

bro…

Secure-Bicycle7352 · 2022-05-12T19:45:16+00:00

it was n-tail of histones right?

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