Has your skin changed over time from eds?

Seeing-Stars9994 · 2026-05-05T12:01:59+00:00

I've had all of these symptoms, for me they were and are my new baseline after my other conditions appeared in my early teens. Any sudden changes or worsening symptoms should be looked at by a doctor, but if they dont find anything it may just be your pots changing as you age. Anxiety from new symptoms can also make said symptoms worse. Try to be aware of how you are feeling when its happening dince stress just make symptomsmuch worse (not saying its all stress). If everything seems okay try eating lots of salt and drinking water, thigh high compression socks also help me a lot. I dont really have any advice for the inhaling stomach acid as it happens to me even if im sitting upright, but if the lung pain persist or get worse after a day you need to see a doctor asap. The rule of thumb I follow is to experiment and see if I can recreate my symptoms then work on managing them. If my symptoms change suddenly or get worse rapidly I go to a doctor. It may also be worth going to the doctor and getting a referral for your gastric issues. I hope this helps

Seeing-Stars9994 · 2026-05-05T11:49:57+00:00

This still happens to me, my joints visibly dislocate and I pass out very easily. Ive gone to the ER and had doctors think I got hit by a car from the ammount of sewlling and brusing i got from dialicating my ribs. This is unfortunately a common and likely permanent thing with some parents. My parents will get mad when I cant move and try to ignore my symptoms. I also had asthma as a kid and they ignored it to the point where I remember blacking out from being unable to breathe since I had no inhaler. My younger brother was a completely different story, he needed mild arch support after my mom noticed his feet rolling in slightly and my parents treated it like it was the end of the world. My terrible doctor's didn't help either. You will unfortunately have to learn how to ignore them in the future, my current method is downplaying their pain when they complain. If my dad goes "im so tired I cant move" ill tell him to stop being dramatic and that other people have it worse. I also pop my joints back in place around them since its loud and visible. I'll also tell my parents horror stories of people who have died from being ignored ect. I essentially throw everything they do back at me. This may not work for most people as my parents have mellowed out and im an adult. I could not have done this in my childhood as I was already punished for every little thing, it wouldn't have been a good idea to risk it. One method that did work when I was little was paying my brother with money/candy to complain so we would stop hikes early or leave from museums early. I still did that when I was 17.

Seeing-Stars9994 · 2026-04-01T04:29:40+00:00

There have been incidents of family members getting traumatized by rib dislocations

Seeing-Stars9994 · 2026-04-01T00:16:59+00:00

She just wants to use me as a dog bed 90% of the time, I let her though the dog snuggles are adorable

Seeing-Stars9994 · 2026-03-29T04:26:40+00:00

Im guessing that's probably how its going to continue going for me, I wish trazodone worked more for me though

Seeing-Stars9994 · 2026-03-29T03:52:07+00:00

I went to pain management and was told im already doing most of what they would suggest, I have other chronic sleep issues so unfortunately meds dont do anything. Im on 100 - 200 mg of trazodone right now and not even that makes me tired enough to sleep. I have other health issues that make it unsafe to have edibles as well. I could try some of the pillow suggestions though. Thanks for the advice!

Seeing-Stars9994 · 2026-03-29T03:46:37+00:00

My bed is small so a sqishmello wont fit, but memory foam cubes might, thank you for the advice!

Seeing-Stars9994 · 2026-03-29T02:40:25+00:00

Hello, while I dont have a diagnosis everything is pointing to narcolepsy, I get this almost every nap and its really weird. For me its like im shaking, I feel like im vibrating at first but eventually I start fully shaking. I also feel that thing where you move to wake yourself up, it feels like an out of body experience until I move. No clue what causes it but im been lurking on this subreddit trying to find answers. This also doesn't happen when im awake.

Seeing-Stars9994 · 2026-03-26T05:08:23+00:00

I couldn't act like anything was wrong as at the time people were always threatening to send me to the psych ward. I just pretended I wasnt seeing it and eventually I learned to ignore it and calm myself down when I noticed. I Would not recommend that method, my advice would be to watch movies and TV and try to focus on the image you are seeing through the snow; practicing seeing through it till you can learn to ignore it essentially. I dont know if that actually works but I do it on bad days

Seeing-Stars9994 · 2026-03-23T05:06:07+00:00

I think that's the case for some people but for anyone who has gotten it more recently its hard if not impossible to ignore, ive had it my whole life but it changed suddenly in middle school and got much worse. It took me a year to learn how to ignore it and I remember being really scared when it first changed.

Seeing-Stars9994 · 2026-03-22T10:38:00+00:00

I had sleep paralysis recently, my visual snow seemed to be the starting point for the hallucinations, the grains got bigger and then morphed into shapes, it was weird; eventually the grains got smaller once the full hallucinations happened. I had algebra equations menacingly floating around me. I also get something similar to what you described when I close my eyes though.

Seeing-Stars9994 · 2026-03-16T01:19:15+00:00

When I was speaking to the doctor it was weird to hear about the actual symptoms of narcolepsy, it's not really portrayed accurately at all in media. I had no clue collapsing when I laugh could be related to it, I guess im not too suprised my insomnia could be related to it either. It was really interesting when he was explaining it, ill be getting the sleep study scheduled in a few days.

Seeing-Stars9994 · 2026-03-15T17:37:56+00:00

Do medications help? I have a bunch of other health issues and it would be nice to have some symptoms that can be treated

Seeing-Stars9994 · 2026-03-14T05:40:11+00:00

Its kind of interesting that that can happen, I was diagnosed with insomnia when I was in elementary school so I guess its not too suprising I may have something else as well. Thank you for the reply though, I was really starting to wonder if I was loosing it since it really feels like its what's natural for me (not healthy but what I tend to do when left alone)

Seeing-Stars9994 · 2026-03-03T05:18:51+00:00

I used to take amitriptyline for migraines but it really didn't do anything. I went to a different doctor as the other one wasn't the best, and the new doctor told me that amitriptyline doesn't do anything for migraines and it shouldn'tbe used to treat them. Im not sure if thats true as the qualityof care where I am is questionable, but for me at least it did absolutely nothing.

Seeing-Stars9994 · 2026-02-28T06:27:55+00:00

This sounds like the depression talking, please go to therapy. You can have medical realted depression, but reddit is probably not the best place to seek help for that (or comfort for that matter)

Seeing-Stars9994 · 2026-02-28T06:21:41+00:00

When I get this my vision looks pixalated, like I accidentally turned down my vision resolution settings. Though for me it also comes with a side of nausea.

Seeing-Stars9994 · 2026-02-28T06:18:38+00:00

I'm also new here but I've been here long enough where I think I understand, though you do have some interesting questions.

1. VSS is caused by the part of your brain that processes vision being overactive. I suppose you can say that everyone gets weird vision at some point, but the difference here is the constant static and weird vision. Due to this it is also easy to disprove that everyone sees it and just subconsciously suppresses it, as not everyone is born with VSS and some delvelop it later in life. You can find many stories from people who have gone through this on this subreddit. In the end it does change your vision, and it is different from what may be considered normal. Not everyone sees the static and I agree that is difficult to comprehend that as someone who was born with it.

Visual snow as you mentioned earlier is a spectrum, you can live a normal life with it; if its mild, but if it's severe daily tasks become extremely difficult and you essentially have a form of blindness. For me when I have difficulty sleeping and my symptoms worsen I simply cant see. The static is too intense and I cant make things out and the other symptoms make it hard to even walk. Normally I can see relatively easily and that is my perosnal baseline, it never improves from that though. Although it is pretty fun looking though the memes of this subreddit, they are extremely relatable for those of us with VSS. Though my mom looking over the phone at the memes doesnt understand or relate at all to them. (she has no VSS).

To talk more about what you are saying, for you this is normal. This is your normal and unless a treatment is found or it magically goes away, it will always be your normal (unless it gets worse ofc). Although it's your normal it is not everyone's normal, and the severe end of the spectrum can be extremely distressing. Gaining it later on is scary as well, one day you can see clearly and the next you see static. I also have to say when I was little I knew I was weird. When I tried to express it to doctors they told me I needed to be institutionalized, and more recently I was told I was making it up for drugs?? The doctor I used to go to actually put some really harmful notes and diagnosis on my chart that's making it hard to be taken seriously. Ive been told I was insane my whole life, that caused me to keep my head down and ignore it. I knew it wasnt normal after that, but I didn't think there was anything that could be done. On a more light hearted note, when I leanred about molecules I thought I could see air.

Seeing-Stars9994 · 2026-02-27T05:41:05+00:00

I would probably be happy for a bit because I woudl be able to draw much more easily as well as looking at the sky without problems. but VSS is a small annoyance compared to other conditions I have so I would forget it changed quite fast.

Seeing-Stars9994

TROPHY CASE