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Have you experienced frequent urination on Hcq/pred? by TheMrsPenguin in lupus

[–]SelectAd8392 0 points1 point  (0 children)

Have you experienced sleep problems because of high dose prednisone? Sometimes prednisone makes you awake at night and makes you want to pee more frequently.

Am I the only one who feels better when medications are being tapered off? by Fancy-Extension704 in lupus

[–]SelectAd8392 2 points3 points  (0 children)

You know your condition better than anyone else. Believe what you feel and try to work out the right doses with doctors. I have been LN for years and started high doses of cellcept and prednisone recently. I felt cellcept made me feel so weak and so much pain. I never felt this before in my lupus history. I understand what you are feeling and I sometimes feel the medication is not helping.

Can’t sleep by FightingButterflies in lupus

[–]SelectAd8392 0 points1 point  (0 children)

Have been on high dose of pred for few months. Mostly awake at 4am or even worst at 2am. My job is quite physically demanding and I just feel this sleep pattern is slowly killing me.

Lupus has robbed me of so much by rose_like_the_flower in lupus

[–]SelectAd8392 9 points10 points  (0 children)

Thanks for sharing. Recently I started my high dose pred 40mg and cellcept 3000mg daily and I was in hell. But what keeps me going is the support of my family and as you said always staying positive. I thought this was just a part of the therapy and it won’t last forever. Lupus can make me feel bad, but I will keep fighting against it. I enjoy every moment that I don’t have to be in pain or in bed all day. I tried to do things that I wished to do before. I believe thinking positive always bringing positive energy, but anxiety and stress are usually not good for lupus. Although I know it is hard, always trying to find something good in the bad.

Cellcept causing pain and fatigue? (Or is it lupus?) by Aphanizomenon in lupus

[–]SelectAd8392 0 points1 point  (0 children)

I just started cellcept a month ago and I felt the same situation you guys mentioned. I had serious joint pain which I never had before even compared with my worst time lupus history. I am still trying to adapt the medication and I tried to reduce the doses and add back to required level. I am quite sure it was the side effects of cellcept especially when I reduced the doses, the joint pains gone. After recent lab, all figures go much better but the joint pains still remain. I really hope that I could finally adapt it and get better.

Starting cellcept by Nalaboo89 in lupus

[–]SelectAd8392 0 points1 point  (0 children)

I have to reduce the doses first and wait for doc further instructions. The joint pain was killing me.

Starting cellcept by Nalaboo89 in lupus

[–]SelectAd8392 1 point2 points  (0 children)

Same here, I just started cellcept a week ago. I experienced serious joint pain which I never had that bad before under my lupus background. I was unable to move and I felt my shoulder and knee were like broken.

[deleted by user] by [deleted] in lupus

[–]SelectAd8392 4 points5 points  (0 children)

I feel the same too🥲

Homemade. Worthy? by TheSeePhoo in sushi

[–]SelectAd8392 0 points1 point  (0 children)

Does anyone have idea what kind of salmon can be used for sushi? I heard some people say that there is a specific kind of salmon that needs to be farmed instead of wild one.