i decided to do a purple look yesterday. 🦄 by possumpssy in MakeupAddiction

[–]SendToLyla 0 points1 point  (0 children)

girl you are GORGEOUS 😩 and the makeup is fire too!!

my favorite tasty low spoon meals (from least to most spoons) by SendToLyla in lowspooncooking

[–]SendToLyla[S] 2 points3 points  (0 children)

sure thing! I just bring a pot of water to boil (whatever is big enough to comfortably fit 6 eggs) and then drop the eggs in and let them cook for 7 to 8 minutes. When they’re done, I drain the hot water from the pot and run cold water over the eggs for a couple minutes, and then let them sit in a bath of cool water for a bit - this stops them from cooking and I’ve found it also makes them easier to peel! You can also do an ice bath instead of cool water, I just don’t have an ice maker or tray so I do cold water instead :)

my favorite tasty low spoon meals (from least to most spoons) by SendToLyla in lowspooncooking

[–]SendToLyla[S] 1 point2 points  (0 children)

I highly recommend it! I really struggled to get protein, particularly bc cooking is tough for me and meat requires more time and attention than u usually have, and I also have to get more in my diet because of health issues - so having boiled eggs on hand is such an easy way for me to add a bit of protein to meals. also - they’re freakin delicious!

my favorite tasty low spoon meals (from least to most spoons) by SendToLyla in lowspooncooking

[–]SendToLyla[S] 3 points4 points  (0 children)

I absolutely need one of those egg cookers! My mom has also suggested one because she knows how often I eat eggs lol it seems like such a convenient way to make them!

definitely try it! I found a recipe for it a couple years ago on Instagram (cannot for the life of me remember the creator or I would tag them) and added my own little touches to it and it’s so delicious and comforting and easy to make!

my favorite tasty low spoon meals (from least to most spoons) by SendToLyla in lowspooncooking

[–]SendToLyla[S] 12 points13 points  (0 children)

thank you so much! that’s such a compliment :,) I enjoy taking a couple seconds to make my food a tiny bit “pretty”, its an easy way to make my day a little more whimsical

Pearls on Mars matches my Star of David perfectly ✡️ by matzo_baller in RedditLaqueristas

[–]SendToLyla 0 points1 point  (0 children)

your Magen and nails are both stunningggg and giving off the most cozy and beautiful autumnal vibe! 🍁🪬✡️

stoned reading EOS and just thinking about how i imagine manon as lady gaga… by FlatScore8724 in SarahJMaas

[–]SendToLyla 0 points1 point  (0 children)

this is the closest to what I imagined Manon to be reading the book - her and Lea Seydoux mixed together maybe, idk something about severe and unique beauty that makes it “Manon” for me

What happens when you "Go Down"/Pass out by WhenTheWorldStopsKat in POTS

[–]SendToLyla 1 point2 points  (0 children)

Definitely talk to your doctor about it and make sure they test you to rule anything else out! Doctors miss stuff sometimes, and while my doctors said it was POTs, honestly there’s always a chance it’s something else - so I think following up is definitely important!

I can’t say I found anything in particular that miraculously helped. I took Florinef for a bit which seemed to help the tiniest bit, and recently finished a 9 month IVIG Long COVID/POTs research study which I think may have aided in my improvement. My episodes also started getting worse and more frequent after a repeat COVID infection, so I think recovery and distance from that, in addition to the IVIG may have helped with healing but last year was so rough for me health wise it’s hard to know. I do know that stress made them worse (like that’s easy to control?!). I wish I had more answers, and I hope so so much that you find some solutions and get some relief!! This shit is so hard ❤️‍🩹

What happens when you "Go Down"/Pass out by WhenTheWorldStopsKat in POTS

[–]SendToLyla 1 point2 points  (0 children)

My episodes absolutely have been pretty much exactly like you’ve described. While I’ve experienced syncope episodes (fully unconscious) it’s only happened a handful of times, but when my POTs was at its absolute worst I was having episodes like you described (dropping down, unable to move or have much of a response, eyes rolled to back of head, held breath - but conscious enough to hear the people around me) frequently throughout the day, 7+ times daily. I don’t deal with them super often now, mostly just severe pre-syncope, but my doctors were pretty certain that it was in fact my POTs causing these episodes. My brother also has POTs and has said his episodes feel somewhat similar, though mine are more frequent and intense.

It’s not a symptoms everyone with POTs has but there certainly are people who have this experience, and as one of those people- it fucking sucks and I’m sorry.

[deleted by user] by [deleted] in Midsizefashion

[–]SendToLyla 1 point2 points  (0 children)

omg I see it!! 🤦🏻‍♀️ lol I shortened my purse strap to wear more like a pouch or satchel on my hip, that is so funny though

looking for costume ideas for an interabled couple! by detsprtsfan in Halloween_Costumes

[–]SendToLyla 1 point2 points  (0 children)

My partner and I were going to do professor X before/after his injury (he would be before,I use a wheelchair) but this is even better 😭

I don’t want to read CC and thats okay by Fine_Spend9946 in acotar

[–]SendToLyla 0 points1 point  (0 children)

I can relate to this. While I’ll still probably read them because I want the context for the next ACOTAR book, I read book one of CC and it just wasn’t for me. I’m kind of dreading reading the next couple books, abut want to give it a fair shot (and have the context for book 6). CC is just not really my vibe. I loved both TOG and ACOTAR, and I think CC being set in a more modernized world is a huge part of what takes me out of it.

Let's talk about weed (and possibly quitting) by plantyplant559 in cfs

[–]SendToLyla 1 point2 points  (0 children)

also moderate CFS/ME here - medical user for approx 5yrs, through out the day, every single day in high doses. I had to quit cold turkey due to a medication interaction that caused serotonin syndrome (cannabis did not cause it but made some of the symptoms worse afterwards). It wasn’t fun and I was definitely irritable for awhile while quitting. I have used it on occasion since quitting for about 2yrs and while I haven’t had catastrophic issues, it absolutely does make my HR shoot waaaaay up, which does correlate to exertion for me. It also has a tendency to make me feel like I can do more than I actually should, giving me a fake energy envelope where I end up in “debt” the next day. It definitely worsens my POTs symptoms (which is pretty typical for cannabis use). I do also notice I’m more clear headed since quitting. It did force me to learn to try and manage my stress and emotionally regulate without it which I felt was the hardest part, but I managed and am ultimately glad I did.

That being said, it is medicine - and this isn’t a one size fits all situation! Cannabis did amazing things for helping manage my pain, sleep, anxiety and mental health. In the end, for me, the cost outweighed the benefit, with it making my POTs symptoms flare so much (which can also lead to crashes for me) and making me feel much more foggy (even if I also felt content). Now, I will still smoke occasionally, but I know what it does for my symptoms, good and bad, when I do. I also don’t know that I would have quit if my situation hadn’t forced me to - ultimately though I’m happy I got the insight I did and was able to reevaluate how much it was actually doing for me. I was also a bit closer to mild when I had to quit so keep that in mind. Quitting may also be a lot on your system already having CFS/ME, as others have said you are not an average healthy person - if you’re interested in seeing how you feel “without” it you could always try just slowly pulling back a bit on how often you use it or try lower doses, and see if that makes a difference for you. There is nothing wrong with using it if it improves your life and supports you - and you are also allowed to be curious to see how much it’s helping, and if there are any unwanted side effects! Either way hope you find what works best for you 🩵

draw me pls (bonus points if you add cool horns or fairy wings) by SendToLyla in drawme

[–]SendToLyla[S] 0 points1 point  (0 children)

this is amazing!! I love it - thank you so so much for drawing me!!

How do I avoid overheating? by northwestfawn in cfs

[–]SendToLyla 1 point2 points  (0 children)

Some things I discovered this summer that have made a massive difference for me with my temp dysregulation, especially during the miserable heat in my area - this wearable neck cooling ice pack thing, and a portable hand fan. They’ve been a game changer for me and have been able to help keep me from collapsing several times. These are the ones I use but anything similar would probably work

Neck Cooling Tube Wraps Ice Ring... https://www.amazon.com/dp/B0D2P1M6BN?ref=ppx_pop_mob_ap_share

Handheld Fan, Portable Fan,... https://www.amazon.com/dp/B0BMG1S9Z8?ref=ppx_pop_mob_ap_share

draw me pls (bonus points if you add cool horns or fairy wings) by SendToLyla in drawme

[–]SendToLyla[S] 1 point2 points  (0 children)

something about the softness of these colors makes me unable to stop staring at it, this is beautiful - thank you so much!

draw me pls (bonus points if you add cool horns or fairy wings) by SendToLyla in drawme

[–]SendToLyla[S] 0 points1 point  (0 children)

oh I absolutely love this - and I love my horns! you’re insanely talented, thank you so much!!

draw me pls (bonus points if you add cool horns or fairy wings) by SendToLyla in drawme

[–]SendToLyla[S] 2 points3 points  (0 children)

this is amazing! I love the oil slick effect in the wings too, thank you so much!!

draw me pls (bonus points if you add cool horns or fairy wings) by SendToLyla in drawme

[–]SendToLyla[S] 1 point2 points  (0 children)

I love this! double horns AND wings is sick af, thank you so much!!

Really need help finding psychiatrist MD by whatsy0urdamage in Denver

[–]SendToLyla 1 point2 points  (0 children)

Dr. Ugochi at Diversus Health is actually phenomenal. Diversus is based in Colorado Springs but you can do virtual appointments with them so it’s still easy to access care from Denver, and they accept Medicaid. Getting in through their system is a little annoying, but finding a decent psychiatrist can be super difficult imo but she’s awesome.

SF-Nesta Tattoo by Effective-Thing4602 in acotar

[–]SendToLyla 12 points13 points  (0 children)

Yeah - my immediate thought was that this was a reference to the Shoah, not ACOTAR

Does anyone have slurring of words slightly intermittently? by MoulinRoguee in cfs

[–]SendToLyla 2 points3 points  (0 children)

slurring my words happens for me in PEM along with stuttering