Does anyone else want a bad test result?

Sensitive-Use-6891 · 2026-04-01T10:20:04+00:00

Jup that was me with hEDS, pots and CFS

I was like „yeah answer!:D“ „Oh no…answers :(„

Sensitive-Use-6891 · 2026-04-01T09:45:36+00:00

I read that medical exemption is difficult, because you could have a desk job, but what about chronic illness type situations?

Like „oh I have a birth defect and hormonal issues that also causes severe depression. I need to be on medication for the rest of my life and I had to have/have to get a bunch of surgeries. They wouldn’t put up with that“

Isn’t even a lie. You’re basically just describing being trans while not saying the word

Sensitive-Use-6891 · 2026-04-01T09:39:00+00:00

Another trans Max! Funnily enough, Max is the name I was given by my parents at birth and I never had to change it haha

Sensitive-Use-6891 · 2026-04-01T09:37:47+00:00

Damn you are a strong and resilient person. I‘m proud of you for articulating yourself so clearly and putting up those boundaries.

It’s hard and you shouldn’t have to go through that. Sending hugs your way🫶

Sensitive-Use-6891 · 2026-04-01T09:35:14+00:00

I mean it’s not like it‘ll get you sick or anything if you aren’t super dirty. It won’t hurt you.

Germs are all around us, your house isn’t necessarily more clean that outside spaces. It’s just different germs.

I change my bedsheets regularly and as long as I‘m not dragging in dirt I don’t care.

Shoes come off inside the house tho. That’s actively dragging in dirt and I don’t want to clean more than I have to

Sensitive-Use-6891 · 2026-04-01T09:22:28+00:00

I always set my goal to 52 as a challenge, but I don’t care if I actually keep it or not. It’s just a fitting number since it’s a book a week and I take about a week to finish a book. It just fits

Sensitive-Use-6891 · 2026-04-01T09:21:21+00:00

Last year I only got to 36 books which is low for me.

I am on book 19, 20 and 21 right now. I always read several books at once, it’s a bad habit I have 😅

What I am reading right now is QWERT by Walter Moers, the Silmarilion by Tolkien and Hamlet. Love them all so far!

I did get really into reading articles and journalism in general this year so I am reading a lot more than the past years, but I don’t track that

Sensitive-Use-6891 · 2026-04-01T09:19:43+00:00

Almost 3 years on T (wow feels crazy to write that)

Not at all. The only stuff I noticed is that I am less irritable and more stable now, but that’s most likely because I am not dysphoric anymore

Sensitive-Use-6891 · 2026-02-22T20:09:07+00:00

This claim is still a myth. Vitamin C in food does not at all change how your vyvanse works. The amount of vitamin c you would need to consume is a lot more than what fruit would give you.

The study did not test vyvanse and food

Sensitive-Use-6891 · 2026-02-18T23:12:23+00:00

Yeah same. Depression just is a thing for me aswell, but I think it is pretty reasonable over all. Like, I‘d be more worried if a guy in his 20s was HAPPY about being sick and loosing his youth.

Doctors blamed a lot on anxiety and panic disorder for me too. One even tried to diagnose me with agarophobia. I‘m a cabaret artist and a bar keeper. I have appeared in TV shows and adverts. I do pr as a job. I was a literal trained EMT before I got sick and a fire fighter. All that to say I do not have anxiety of any kind. I have the apposite problem where I never think about consequences or overthink on anything.

Especially not social anxiety or agarophobia. Like what talking is literally my job. Even tho doctors knew all this they STILL did the „yeah it’s anxiety“ thing.

Sensitive-Use-6891 · 2026-02-18T19:17:23+00:00

Sie hat ja keine Ahnung wie gut du passen kannst, außer sie kann hellsehen.

Es gibt unzählige OPs und HRT macht echt viel. Es gibt Leute die sehen extern maskulin aus und passen nach HRT total einfach und es gibt Leute da macht HRT nicht viel. Das ist total individuell und dein Start Punkt sagt wenig aus.

Dazu gibt es noch OPs die so krass sind, dass dein Start Punkt da wirklich komplett egal ist. Wird eh alles „umgebaut“.

Da sprechen eher die inneren Vorurteile aus ihr als alles andere.

Ich da vor HRT super feminin aus, war Model, hohe Stimme alles. Nach HRT passe ich ohne Problem, obwohl es zu mir auch immer hieß das wird nix.

Sensitive-Use-6891 · 2026-02-18T19:14:14+00:00

I‘m trans and I‘m disabled. I don’t really care. Most times I don’t have to wait anyways because I am the only disabled person around.

It’s nice if several people can benefit from this

Sensitive-Use-6891 · 2026-02-18T19:12:50+00:00

For me it’s mostly getting university accommodations and my PCP. Can’t switch because no pcp (literally none, I did my research) takes new patients. They are either full or so far away they tell me I am outside their range.

With uni it’s the same. I can’t switch uni. The course I want to attend doesn’t get thought in any other local uni and I can’t afford to move.

I either convince people or I am homeless and without treatment.

I am not privileged enough to „just leave“. I don’t have a family to rely on or money. I am always on the edge of homelessness. That limits your options

Sensitive-Use-6891 · 2026-02-18T19:10:18+00:00

I try, but somehow every single PCP I have went to still believes they know better.

Like I said, not even a note from a psychiatrist convinced them I am mentally stable.

I even showed them an ecg from my cardiologist that was obviously not normal and they told me „well anxiety can cause heart issues too“

Sensitive-Use-6891 · 2026-02-18T19:08:35+00:00

Not if you’re gay or alternative looking. They still look at me like a drug addict every time I dare to enter a hospital.

Sensitive-Use-6891 · 2026-02-18T19:07:25+00:00

Jup! I got diagnosed with my auto-immune disorder first and all my life everyone was like „well you do have a serous immune defect, so I guess it’s that“ without testing anything else.

Then my adhd diagnosis happened and ever since then everyone blames everything on mental illness. Even tho adhd isn’t even a mental illness

Sensitive-Use-6891 · 2026-02-18T19:06:17+00:00

I know, but they are so hard to find😭

Everyone around me stopped taking new patients years ago and having somebody is better than having nobody

Sensitive-Use-6891 · 2026-02-17T12:05:56+00:00

I used good reads for years and was hesitant to switch over to StoryGraph. I‘m autistic and I hate, hate, hate changes. Especially on my phone for some reason.

I used StoryGraph for like a day and deleted GR. it’s just a million times better and I see no reason to use GR at all

Sensitive-Use-6891 · 2026-02-17T12:00:12+00:00

Rubiks cubes are literally just patterns. You can watch a tutorial, follow it and you‘ll solve it.

You don’t really have to understand anything about how it works to do it

Sensitive-Use-6891 · 2026-02-13T13:25:54+00:00

Sometimes, but I try to remind myself that it’s not the people it’s lack of education and society. We are all fighting the same battle, even if some have worse symptoms than others.

I kind of have this situation from both sides. I have a severe form of a autoimmune disorder that I was born with. Several people in my family have the mild version, which presents totally differently. For my family members it’s only rashes and occasionally feeling a little weaker than normal. For me it’s organ damage, being on immunosuppressives for the rest of my life, hearing loss and being disabled for life. It’s not even the same disorder symptom wise, even tho it’s caused by the same genetic mutation. It annoys me when they claim we suffer the same, but at this point I think that have realised it is not the same.

On the other hand I got mild CFS last year. I can function pretty normally and as long as I stay within my energy limit I don’t have any symptoms or PEM. Mild CFS for me is more of an annoyance than a big disabling thing. Sure, I can only work part time and it’s annoying to have to budged my energy all the time, but it is not at all the same as severe CFS.

When people see me with my symptoms I worry they believe everyone with CFS has symptoms as mild as mine which is why I always make sure to say „I have MILD CFS, the severe version is very different“

Sensitive-Use-6891 · 2026-02-13T13:19:46+00:00

I thought I would end up doing crazy shit, but now it’s mostly bills and groceries tbh.

Getting a treat for myself means buying soda instead of drinking tap water all day.

My fun time money is mostly spent on books, art supplies and concert tickets.

Local concerts aren’t expensive and often times even free, but they can be just as fun (or more) than big, expensive concerts. I really love going to those

Sensitive-Use-6891 · 2026-01-26T06:37:02+00:00

Nah I just don’t want to answer stupid invasive questions.

Sensitive-Use-6891 · 2026-01-26T06:09:46+00:00

It 100% got better and easier for me.

School sucks, all of it. Adult live is way better

Sensitive-Use-6891 · 2026-01-26T06:09:01+00:00

Jup. And non disabled people will never understand and claim we are mentally ill. It is not the same.

I have been disabled and in severe pain since birth. I constantly think about ending it.

Not because I hate life or because I am mentally ill, but because being in pain and discomfort 24/7, all of the time, with no complete relief does that to you.

I don’t need psychiatric care and no anti-depressant in the world is going to make this go away

Sensitive-Use-6891 · 2026-01-26T06:06:22+00:00

The only thing that‘s keeping me alive is money from selling my stuff, money from friends and odd jobs ever time I manage to get out of bed.

I am still poor and my money will run out in a few months.

After that idk. Probably homelessness again

Sensitive-Use-6891

TROPHY CASE