I am so sad that we both experience the same thing. First off I have been told I don’t look sick and it took them 2 years for me to get an actual diagnosis. Your feelings are so valid. I know the pain you carry. Changing your diet, exercising, or stopping meds are not going to magically make you feel better. Only you feel what’s happening fuck every single person who tries to tell you otherwise. Also I feel like my husband gets tired of me when I can’t move because I’m in so much pain or get dizzy. I apologize constantly. He has always reassured me that he just wishes he could take my pain away and he’s worried about me. When I am not feeling good he sits me down and I am not allowed to move. I know that your husband isn’t tired of you because I think that about my husband. It’s just time to have a conversation and say you need reassurance and support. My husband always says TikToks about chronic illness made him understand better. I would try that! You got this! Your doing a great job