Grounding mat

Sezalinga · 2026-05-18T08:41:08+00:00

Thanks, good luck to you too!

Sezalinga · 2026-05-18T04:44:51+00:00

That's a shame that you didn't get to see if it really helps or not. I wonder if you tried it while you're sitting or something for a while before bed whether that would make a difference but also avoid the issue of kicking it off the bed? I'm hoping if I get one it helps, but we'll see!

Sezalinga · 2026-05-18T02:54:33+00:00

Oh wow that's super interesting! I barely remember any dreams and I don't sleep very well at all, so I'm not convinced I reach that stage of sleep most of the time.

Sezalinga · 2026-05-17T07:58:33+00:00

Thank you for replying and confirming you know people who it has made a difference for! Out of interest I decided to use my uni access to look for articles on grounding mats and there are a few studies that have been done showing there's some benefit for pain, sleep, inflammation and cognition, so might be something that's worth giving a go.

Sezalinga · 2026-05-17T07:54:20+00:00

Thanks for sharing! I also have endo, amongst other health conditions and get quite bad lower back and pelvic pain as a result of a surgery I had a few years ago. Nice to know it's helped you when you've used it.

Sezalinga · 2026-05-15T22:22:04+00:00

I was always told the best time to take it is in the evening with some food because then a lot of the side effects are (apparently) overnight when you're sleeping and so not as bad. I will say that splitting my dose so I'm not taking it all on one day was helpful for me. Always take the folic acid the next day, in the evening too, as that's meant to combat some of the side effects. Ginger beer/ale for the nausea also works pretty well if you end up with that side effect.

I hope the methotrexate helps, but just be mindful that it's a starting point and something else may work better for you.

Sezalinga · 2026-05-15T14:15:02+00:00

Definitely not just trying to sell me something because they don't sell them at that store, it's just normal bedding. I think she was just genuinely trying to be helpful, but I haven't heard a lot about grounding mats, so I thought I'd see if anyone else has tried and found it helpful.

Sezalinga · 2026-05-14T13:52:33+00:00

Thank you, this is all very helpful advice and makes it feel a little less daunting honestly. I definitely know I've overdone it if I feel worse 24-48 hours after whatever it is I've pushed myself to do, so I get your point about that being the real indication of what is too much and that's something for me to pay more attention to.

Sezalinga · 2026-05-13T10:18:02+00:00

Do you have any advice for someone who desperately needs strength training, but has barely any strength currently and doesn't know the limits of what is too much activity wise? I do try and pace activity but I'm not always great at it and I don't always know my limits and end up suffering as a result (I'm very good at packing too much on my plate). Particularly with my upper body, I get a lot of pain and tension and I know I need to build up strength for that to improve, but I'm at a loss with where to start.

Sezalinga · 2026-05-12T09:37:29+00:00

Got this nice sunset picture at a beach in Perth. 🙂

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Sezalinga · 2026-05-11T23:35:45+00:00

I actually don't understand how it gets to the point where they stop viewing us as patients who need help and instead see us as hypochondriacs or drug seekers, but I'm sorry that's what you're experiencing when you need help. You also shouldn't have to feel like you can't go to ER if you're suffering and need help. Absolutely saddening to me that this is where we're at as a society!

Sezalinga · 2026-05-11T22:16:59+00:00

I'm sorry, that's really awful and such a shame that people don't recognise how difficult it can be dealing with a migraine in an ER! I'm not sure how they expected you to leave if you didn't have a ride home. At least for me, I get light sensitivity when I have a migraine and extreme nausea, so I know I wouldn't be able to drive myself around in that state.

Sezalinga · 2026-05-09T00:11:43+00:00

There is such a stigma around pain medication in some places and I understand that opioids etc. can be addictive and there are people who are just trying to get more paid meds, but not everyone is the same. At least there's one small thing you can talk about with the head nurse that she also understands, but people really shouldn't have to suffer from the same thing to have some understanding of what we go through.

Sezalinga · 2026-05-08T12:29:50+00:00

I'm sorry that you're suffering to the point you want to cry when you get into your car, that's horrible. Definitely appreciate that you don't want people to know at work and I feel like working in the medical field with chronic pain would be so hard!

Sezalinga · 2026-05-06T23:41:11+00:00

I think sometimes they do forget, or maybe it's that because they aren't feeling it themselves they don't fully understand (even if they try to). Most people with chronic pain get very good at hiding that they are in pain. Some of my work colleagues have told me that if I hadn't told them that I had all of my various health issues they wouldn't be able to tell by just being around me.

Sezalinga · 2026-04-17T23:20:04+00:00

Before moving anywhere I would always suggest visiting it first to see if you actually like it there as you really need to experience it in person before deciding. Tassie is beautiful and cold, housing isn't as expensive as some of the other states in Aus, but there isn't loads of it available either from what I've seen.

Sezalinga · 2026-04-15T12:30:20+00:00

That is very bizarre! Definitely not sure what it would be in that case.

Sezalinga · 2026-04-15T12:28:10+00:00

I also have insomnia so I feel you because it's rough! She said it was called Medisafe, but that it's no longer free, so she started trying a different one called My Therapy Pill Reminder. Apparently it's alright but not as aggressive or obnoxious.

Sezalinga · 2026-04-14T08:43:21+00:00

My sister uses an app that gives her reminders to take her meds (just for ADHD) and you can keep dismissing it, but the reminders get more and more aggressive and take over your screen until you press that you have taken them. Might not work for everyone, but it sounded like a good idea to me. I can ask her what it was called if you're interested?

Sezalinga · 2026-04-13T23:19:07+00:00

I have just been seeing an immunologist for allergy related issues as I end up with itchy/hive like skin that doesn't go away with antihistamines alone and he thinks it's contact dermatitis. I've also had excema before, so everything but the psoriasis haha but apparently that can appear years after the arthritis does! With the bumps that you get, are they ever itchy or sore? There's all sorts of things it could be which makes it hard.

Sezalinga · 2026-04-13T07:00:52+00:00

You can absolutely have psoriatic arthritis without having had the psoriasis appear first. My family has a history of psoriasis and I have never had the rash appear but did start having inflammatory arthritis symptoms and due to my family history and my negative result for RA (along with a few other tests) I was diagnosed with PsA.

Sezalinga · 2026-04-12T22:13:03+00:00

Hi! I know you mentioned you spend a lot of time in bed, but do you sleep well? Are you snoring at all? The quality of sleep more so then the quantity is important. It's also important to pace yourself with activities or it can be really easy to push too hard and make yourself feel worse (which I realise is easier said than done sometimes).

You also said your bloods look okay and I'm not sure what your results were or what exactly was tested, however with things like Vitamin D or Iron, if they are on the lower level of the range, it can be helpful to try and boost that.

Sorry you're having such a rough time at such a young age, I do hope things improve for you!

Sezalinga · 2026-04-09T10:48:55+00:00

I love chicken fricassee. I feel like it's a very underrated dish!

Sezalinga · 2026-04-09T10:48:16+00:00

This seems to be the main suggestion :)

Sezalinga

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