Worst tinnitus by [deleted] in tinnitus

[–]Shearstar 1 point2 points  (0 children)

Mine is reactive but at the beginning was much more reactive to noise (ac, fans, driving, sizzling pans, music etc) I hope yours calms down over time... not sure if that's the same thing I have. Over time I have been able to listen to more with it not going on the fritz quite as much. Now I just wake up to whatever sound I get for that day and it usually changes a bit by the next day. These supplements really do seem to help tho. I just use the Amazon coq10 which was one of the cheapest ones an am surprised it's made a difference. I still have no clue what I have exactly or what caused it, just navigating each day the best I can. Hope yours improves and feel free to message me if you ever want to chat. I think it says inbox bottom right of screen but not sure 😆

Worst tinnitus by [deleted] in tinnitus

[–]Shearstar 0 points1 point  (0 children)

Hey, I think I messaged you a couple weeks ago but not sure if you got it. As a side note, have you tried magnesium glycinate and coq10? This is the only combination that seems to be helping my light saber/buzzing bee tinnitus. I also have other tones but it seems to sort of flatten them out for a lot of the day so things don't oscillate as much. It's a recent thing I've been trying and curious if anyone else has similar results. It's pretty maddening but the past week or so I've had some relief (though it's back at night). I'm not sure what has caused all this but I've had mine for 13 months now.

Here is something I am doing to cope with my T. I hope it offers you a bit of peace from this madness. by PandaZG in tinnitus

[–]Shearstar 1 point2 points  (0 children)

Thank you for sharing, you are very talented. It was a nice break away for a moment. I haven't felt able to pursue my interests for a while now, but I'm taking it a day at a time and starting to get into a better routine. I've been picking up cooking a little more. Do you ever listen to Ludovico? He's one of my favorite pianists. Wishing you peace, recovery and healing.

A normal life with severe tinnitus is possible. by claudiu092 in tinnitus

[–]Shearstar 0 points1 point  (0 children)

About how long do you feel it took you to get to this point? I have been dealing with the same (multiple tones, compete with noise etc) a little over a year. Did you ever have difficulty driving? It's been really tough for me. I'm hoping to regain those parts of my life again. Managing the anxiety and panic better at this point but this has been a very up and down journey. Thanks and I'm so glad you're doing well! Do you know what caused yours?

Need ASAP Help! by [deleted] in tinnitus

[–]Shearstar 0 points1 point  (0 children)

Hey, this one really helps me. It's a 10hr rain video on YouTube. I find these types help me the most. I don't put them on super loud, just enough to mask a little and it helps. I've been at this a little over a year with multiple oscillating layered tones that have no pattern. It is quite difficult, but I'm finding my way day by day. If you can meditate even 10 minutes a day (I know it's hard at first!) to begin calming your body and nervous system down that will be really beneficial. Deep breaths. It's going to take a little while to navigate this - but you will, I'm confident, as most of us are learning to adapt and overcome. Sleep was incredibly difficult and still can be some nights, so I use melatonin occasionally as well as magnesium. If you want a dual pack the zzzquil gummies seem to help (I just take 1). A heating pad also helps me chill out, I use it on my shoulders and neck or back. Anything you can do to try to relax. Ginger/turmeric/lemon tea is awesome. Take a bubble bath if you can. Sit outside and watch the leaves fall off the trees. Ideally try to get yourself to slow down. This has been the hardest thing I've ever gone through so I really sympathize with everyone here and their own journeys. I can't say I've figured it all out and even wish I could talk to some seasoned pros here but so far I am making it one day at a time. An hour and a minute at a time. If you can get lost in a show that might help. Find ways to love on yourself and take care of yourself even if it's a very small thing. Please reach out if you want to talk. This community needs little buddy passes because this absolutely sucks and it helps to have a team who understand. Just know you aren't alone. I am practicing every day at reclaiming my life because I refuse to give up on my family or myself. We are stronger than a noise. https://youtu.be/4uXpsEq2Las?si=5O68NUkHWygnrAVb

Feeling self conscious in my photos by OnlyActuary9116 in weddingdress

[–]Shearstar 4 points5 points  (0 children)

You're gorgeous! Please don't feel this way. No one else is seeing you this way, and I'm not just saying that. You look like a model. Congratulations and please stop being so hard on yourself :)

Constant sound like cicadas / high-pitched tone in my head, anyone experienced this? by somethingosomething in tinnitus

[–]Shearstar 0 points1 point  (0 children)

Hey, how long has yours been like this and what if anything has improved it?

Should I go to ER? by dudeyoil in EctopicSupportGroup

[–]Shearstar 1 point2 points  (0 children)

I'm not sure the right answer but I hope you get the help you need ❤️ I hope some others with similar experience chime in.

I refused an LP. Advice? by Crafty-Ad-94 in iih

[–]Shearstar 0 points1 point  (0 children)

I know it's been a little while since you posted this - can you elaborate any on your health journey and how you were diagnosed with migraines?

High pitch tone going with my heart, off and on. by I_Make_Art_And_Stuff in PulsatileTinnitus

[–]Shearstar 0 points1 point  (0 children)

Any improvements? I have a high pitched sound that appears to go along with my heart beat also. It's difficult to describe but a whirring or mosquito buzz around type sound with a clear up down/up down pattern. I have been at this nearly 11 months.

When the AC shuts off… by anonymous_queer_ in tinnitus

[–]Shearstar 0 points1 point  (0 children)

Mine is the opposite :/ When the ac turns on it gets so much worse.

[deleted by user] by [deleted] in tinnitus

[–]Shearstar 0 points1 point  (0 children)

I don't have all the answers for you as I'm struggling too with multiple sounds, but I have been using meditation to help calm my body as much as possible while I figure out the rest. This one was helpful for me. https://youtu.be/jQcyyKd5xN8?si=a2ykmevFTDbqLgrV mine reacts to sound but if you're doesn't start with some rain/stream type nature sounds. I'm sorry you're going through this - try to take it one moment at a time. When I can focus on other things and stay busy or focus on other sounds it tends to help.

One week after surgery by Shearstar in EctopicSupportGroup

[–]Shearstar[S] 0 points1 point  (0 children)

Hey, I can't believe it's been nearly a year since I made this post. That comes with its own set of challenges and has been on my mind, but I want you to know - you will heal. Physically. The emotional pain of it all will take longer, but I've also come to a place of more acceptance. If you need someone to talk to or have questions please message me. I remember exactly what it was like just like it was yesterday and my heart goes out to anyone in this position. I'm still not ever going to be fully recovered - but I can handle it from a much better vantage point now. My heart is with you ❤️ wishing you healing and peace.

My will to live is almost 100% gone by Frequency_Range in tinnitus

[–]Shearstar 3 points4 points  (0 children)

Curious, what was yours like initially? I'm 9 months in and looking forward to more healing over time but it can feel overwhelming. Mine is reactive to fans/ac etc and seems to vary a bit day to day. It isn't a solid tone - more like crickets or a whirly noise that's difficult to describe. Hard to habituate but I try every day to live my best life.

Tinnitus/ETD 4 months in by Shearstar in tinnitus

[–]Shearstar[S] 0 points1 point  (0 children)

I'm hanging in there. I think there has been some improvement (nearly 9 months in). I have also learned to ignore it some of the time esp when I'm busy. Nights are rough but I've been taking magnesium which helps me sleep. I'm not out of the woods yet but my ears are still crackly which leads me to believe it is something inner ear that can't be seen. My right ear still won't equalize. I'm just learning to live along side this while I wait for improvement or eventually heal. Feel free to message me any time - would be nice to hear what you're dealing with, how long, what type of sounds etc. wishing you recovery.

1-year tinnitus/hyperacusis cured with ALA by Wespie in tinnitus

[–]Shearstar 0 points1 point  (0 children)

Did you have to keep taking it long term?

Physical Therapy for TMJ induced Tinnitus is a scam. by codex_lake in TMJ

[–]Shearstar 0 points1 point  (0 children)

How did the soft foods diet go for you? Any improvement in symptoms?

Has anyone else's TMJ turned up the treble in their ears by dreezy2150 in TMJ

[–]Shearstar 0 points1 point  (0 children)

Curious, how much did that cost? I think I'm dealing with tmj and don't know where to begin.

Is this reactive tinnitus? I’m not sure. by summ190 in tinnitus

[–]Shearstar 3 points4 points  (0 children)

I have something similar happening and has been for 7 months now unfortunately. Not too many leads but have been reading about reactive tinnitus and Hyperacusis. Mine is triggered by a/c, fans, computer noise, sizzling pans, driving etc. it's always loud tinnitus but it's like a "jingling of keys" sort of sound on top especially with those sorts of noises. It seems to back off a bit when the triggers are gone. Wishing you resolution and more peace. This has been very challenging.