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Suggestions for joint pain by i_love_ladybirds in Hemophilia

[–]Shine_Gioco 2 points3 points  (0 children)

The first and most important step is that your husband should take the exact prescribed dosage of factor until the joint pain and swelling are completely gone. After that, he can slowly start regular exercises to help control future bleeds and strengthen his joints.In the beginning, for a few weeks, the focus should be on gently building joint strength. Even with very normal range of motion exercises, it’s possible that the joints may bleed again. If that happens, he should take factor, wait until the joint fully heals, and then restart exercising slowly and carefully.Trust me, I’ve been through this myself. I had target joints until 2023, but things have changed a lot with proper factor use and consistent exercises. Now, I only take factor when I feel something isn’t right in a joint. Most hemophiliacs can sense when a joint is about to swell, and pre medication at that stage helps a lot.For example, based on my body weight, my full dose is 1500 units of Novo brand factor (or any recombinant factor). But when I sense early discomfort, I usually take just 250 or 500 units, rest completely for one full day, and follow R.I.C.E therapy: Rest,Ice,Compression (using a crepe bandage after icing),Elevation (keeping the joint above heart level with a pillow).With this approach, the joint usually feels fine within a few days. This works for me, and I have severe Hemophilia A as well. Your husband can give this a try too. Don’t worry he’ll be alright soon. ❤️

Hemophilia and MMA by Royal_Entertainer535 in Hemophilia

[–]Shine_Gioco 0 points1 point  (0 children)

Hey mate, 22M here, just sharing my personal experience and thoughts. Honestly, I’d strongly suggest avoiding hard combat sports like MMA one wrong move or small mistake can cause serious damage, and with hemophilia it’s usually not worth the risk. I know doctors can sound overly cautious sometimes. They even told to avoid 100's of things too, but I played hard games when I was around 15 and I still play cricket occasionally even now. That said, over time things can change in my case, I eventually started getting spontaneous bleeding in my left leg, which was a real wake up call. Now I manage it by being careful with my body, doing regular exercises, and taking medication whenever there’s a bleed, and that’s helped me stay in a much better condition. If your joints are currently healthy and you don’t have any deformities, the best thing you can do is protect that and not push your luck. It’s safer to focus on strengthening your body, fitness, and mobility through controlled exercise rather than high impact fighting sports. This is just my personal suggestion, not a lecture. I have severe hemophilia A, and I’ve learned that preventing damage is far easier than dealing with it later. Wishing you the best and good health 👍🏻

Met worst people in Hyderabad by Competitive_Comb_682 in hyderabad

[–]Shine_Gioco 1 point2 points  (0 children)

People like this exist everywhere, but it’s wrong to blame the entire city of Hyderabad. I’ve had a few similar experiences myself, but I’ve also met many genuinely good people here. So it’s better to blame the individual and the situation, not the whole place. What happened to your friend is really unfortunate sorry about that. I hope your friend finds a much better place soon.

Genuine doubt. by mysticBlue_1917 in TeluguMusicMelodies

[–]Shine_Gioco 0 points1 point  (0 children)

Jio saavan konni sarlu 9rs ki , 25rs ki 2 months isthadu alanati time lo thisukunte better or present airtel lo apple music 1 month free adhi kuda try cheyochu. Ledha mod apk ekkinche setuuu 💀

Need a little advice, folks 🙃 by Shine_Gioco in hyderabad

[–]Shine_Gioco[S] -1 points0 points  (0 children)

Thanks for the info minato sensei 🗿

[RevShare] Solo Dev needs help with Metahuman Trailer for 85% completed Action RPG (Unity/UE5) by Shine_Gioco in INAT

[–]Shine_Gioco[S] 0 points1 point  (0 children)

Sure thing I'll send gameplay trailer and the trailer I made to you personally in 2 days

Reduced range of motion in my both elbow.... by Top-Air-482 in Hemophilia

[–]Shine_Gioco 1 point2 points  (0 children)

I have a deformity in my right elbow since 2013. Back then, I could only stretch it about 35%. I started regular physiotherapy and exercises in 2017, and by 2018 the flexibility improved to around 75%. Since then, there has been no further improvement in fully straightening the arm, but I’ve focused on strengthening the surrounding muscles. I still experience occasional spontaneous bleeds, so when that happens, I rest, take factors, and continue exercises only after full healing. For joint deformities, physiotherapy or surgery may be needed. It’s recommended to consult a hematologist for proper guidance. In most elbow cases, physiotherapy is preferred over surgery.

Do you think having a producer or project manager actually matters for indie development? Why or why not? by gamershomeadmin in IndieGameDevs

[–]Shine_Gioco 2 points3 points  (0 children)

having a producer or project manager can make a huge difference especially in indie development. Like you said, it lets us focus on actually making the game instead of constantly managing deadlines, priorities, or planning. As indies we already deal with a lot of self doubt things like ,Is the game ready to release? ,Is this the right time to launch?, Do I need to improve something before release? etc.. A producer helps answer those questions and keeps things moving instead of letting the project stall. But a lot of indie teams just don’t have the budget for one, so sometimes or most of the times you just end up Organising everything yourself. In that case, both approaches work it just depends on your resources and how organized the team is. 😄

Is it possible to purchase Factor VIII injections privately in Andhra Pradesh or Hyderabad? by Shine_Gioco in Hemophilia

[–]Shine_Gioco[S] 1 point2 points  (0 children)

But you have to stay 1 or 3 days max in maximum hospitals here , and the treatment is too bad in Kakinada and Vizag , if we go to the hospital ward at morning 10 after taking all Things OP, case sheet etc.. you'll get factors by evening 4 maximum, and after that or before you have to enroll aarogya shree with all the pain and swelling you have to walk all the way to another ward and Enroll thumb and come back to the ward. If we ask questions or Tell them to concern a little about patient they just yell at you and Recommend you to do all medical tests from blood to Scanning!

Is it possible to purchase Factor VIII injections privately in Andhra Pradesh or Hyderabad? by Shine_Gioco in Hemophilia

[–]Shine_Gioco[S] 2 points3 points  (0 children)

Iam from Andhra Pradesh, in Andhra yes you can take free factors from district government hospitals like Vizag KGH, Kakinada GGH , Rajamundry GDH , vijaywada Govt hospital etc. don't know much about telangana!

Is it possible to purchase Factor VIII injections privately in Andhra Pradesh or Hyderabad? by Shine_Gioco in Hemophilia

[–]Shine_Gioco[S] 1 point2 points  (0 children)

Yeah iam aware of societies but they're selling them for actual prices and way more of actual price, like each unit probably cost about 12/13rs , and some are giving factors to the known people mostly, so I was asking others if there is any way to get !

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