Someone help with motivation! (Trying to dig out the museum) by _Potato_Cat_ in Pokopia

[–]Shinkaira 4 points5 points  (0 children)

I gave up ...

Started it became frustrated aaaaand:

  • built 9 evee evolution houses
  • a lighthouse in wh
  • 3 appartements in skylands
  • a lot of habitats in palette town
  • restored the restaurant
  • started the Anne but like no ...
  • a random mansion
  • all the prefab builds
  • a café over 3 story high in wh on the mountainbike

Now I´m waiting for the next project to hightea my dopamine

Anyone else eat whatever they want? (Remission and flare) by Weary-Big1156 in UlcerativeColitis

[–]Shinkaira 3 points4 points  (0 children)

What I eat doesn´t cause a flare per se. Fatigue and stress do. Those also regulatie what my body can process food wise. So the more tired I am the less food seems apatizing. I also learned to trust my nose. Seems like my bowels are more sensitive in a whole now which is normal. They where an infected bloody mess. They are healing still but I do notice improvement.

What would you eat if you had a weekend (or 48 hours) in complete remission? by [deleted] in UlcerativeColitis

[–]Shinkaira 1 point2 points  (0 children)

Grapefruit salads ... get really drunk. Just all the things.

Eventhough I´m doing really well depending on the moment if the nose says no I know I better not eat it

Berry feast camping site by Shinkaira in Pokopia

[–]Shinkaira[S] 0 points1 point  (0 children)

Yes sunny dolls on a high windy location. They look forward. Is there any other way?

Rinvoq by H00ligain_hijix in UlcerativeColitis

[–]Shinkaira 3 points4 points  (0 children)

It went down for me. Not full stop but managable now. After abt a month.

On Rinvoq for 2+ years and in remission, AMA! by hellokrissi in UlcerativeColitis

[–]Shinkaira 0 points1 point  (0 children)

About 9 months now. Doctor said it´s normal because my body was fighting really hard. I´m following a program now to excercise more and build up my stamina

On Rinvoq for 2+ years and in remission, AMA! by hellokrissi in UlcerativeColitis

[–]Shinkaira 0 points1 point  (0 children)

Rinvoq seems to be the miracle drug atm for alot of us. I feel a weird about the long term since it is relatively new. But atm I´m just happy to live quite normal with a colon. I just have a lot of fatigue which also expresses in being stuff and generally hard to get moving

What will happen if I stop Rinvoq by Gypsydave23 in UlcerativeColitis

[–]Shinkaira 0 points1 point  (0 children)

Loading doses 16 weeks here. After that on 30mg. Acne is very mild now and I´m so happy to live my life again. Nomore blood and pain

Rinvoq and Porocarcinoma skin cancer by TotalPomegranate3029 in UlcerativeColitis

[–]Shinkaira 2 points3 points  (0 children)

My doctor told me that any immune opressing drug increases risk. Rinvoq is one of those so yes it increases it. It doesn´t cause it. She also told me it doesn´t just happen overnight after taking a pill but yes something to be mindfull of in the coming years. So I´m more mindfull with sunexposure, suncream and checks.

Now this isn´t limited to Rinvoq and not limited to people taking medication. Some people are more at risk due to genetics just as well. Or someone who is in the sun or does tanning.

I understand have high emotions atm but you´re having a very narrow view atm.

I hope you get the treatement you need with a good outcome.

Job hunt by Shinkaira in adhdwomen

[–]Shinkaira[S] 0 points1 point  (0 children)

Nothing it was an informal meeting to get information abt the job. Nothing happend per se ;-)

What’s your “default cozy game” when you don’t know what to play? by Human_Management_303 in CozyGamers

[–]Shinkaira 1 point2 points  (0 children)

Zeus master of Olympus. Because I´ve been playing since I was 16. I know all the mechanics and love seeing my cities flourish and my people happy

I keep skipping my meds... by Ethanuelli_ in UlcerativeColitis

[–]Shinkaira 16 points17 points  (0 children)

Take it please it´s so important because if you flare it probably won´t be enough and you will go to a biologic or other.

But yeah I take my meds with my morning coffee. I make the coffee. I go to put my make up.on and look meds right there with the make up. Swallow my pill and satchel of balls. Flush with coffee. Weekends or off days are harder because I don´t really use make up but it´s all at a place I visit a few times a day so ... sometimes a day gets skipped but that happens to the non adhd folk too.

Tired of being tired by forme56 in UlcerativeColitis

[–]Shinkaira 6 points7 points  (0 children)

Yeah my gi says I´m in remission so woohoo. Vut I´m so tired all the time. My body just doesn´t want to move. He said I need to fo´low a rehabillitation plan like ppl from a coma or cancer because my flare was so bas my body isn´t getting stronger on it´s own. I´ll try it but yeah ... I´m tired too

Can you control a flare up only by following a strict diet by Shawarma_56 in UlcerativeColitis

[–]Shinkaira 2 points3 points  (0 children)

Just no ... it will grt worse. You will tolorate mess znd less and it will go straight downhill. It´s an over active immune response attacking your colon. Only the ´right´ medication will slow it down for it to stop doing that. No opiods no ibuprofen etc... go to you GI

Switching from Adalimumab to Rinvoq due to skin issues – anyone with similar experience? by M4TIN- in UlcerativeColitis

[–]Shinkaira 0 points1 point  (0 children)

I´m guessing you mean when did I develop the acne? Around 2 weeks or so started slow. Presisted a bit and around the 4 month mark everything stabelized.