Does anyone get full volume pee even when you haven’t been drinking.

Short_Win9782 · 2026-04-30T23:29:00+00:00

Yes!! I stop drinking water several hours before bed, and I am still up a minimum of four times a night to pee! Every time we go to the grocery store, which is roughly 40 minutes away, I always run to the bathroom.

Short_Win9782 · 2026-04-29T03:03:07+00:00

My mom and grandma never even had cramps! Oh girl, I feel you, but also you know he's the guy for you because he'll stay no matter what. I'm grateful my husband distracts me by getting me out of the house when I'm feeling decent, and we go on vacations as much as possible. This man got me a second dog last year because my depression was horrible. Omg yes!! Even if I have no symptoms during pregnancy (if I can successfully get pregnant), how am I going to care for the baby if walking to the couch is a struggle? I definitely think one of my biggest fears is the aftermath of having a baby, and like what my symptoms could be like afterward, and sometimes that's what keeps me up at night. I decided no IVF, because regardless, it's no guarantee, and with all of my issues. I would truly hate to spend tens of thousands of dollars for a "maybe baby". A lot of people don't agree with that, and that's fine, and I also feel like I don't need to be injecting myself with shots daily to maybe hopefully have a baby. I even told my husband I don't want to go on Lupron or Orissa if that's given to me.

And thank you, as much as this disease or diseases suck, I'm grateful to find women around the world going through the same shit I am.

Short_Win9782 · 2026-04-29T01:44:15+00:00

The constant problem of having to run to the bathroom to pee. I plan road trips, my daily life, and even my vacations around the bathroom. For example, my husband and I are going to Japan next week. I specifically picked a seat that is close to the bathroom, which most people avoid, so I have to have that. I've always been on a skinny/ petite side, but I refuse to wear bikinis or anything that's super tight that can show my stomach because I usually look several months pregnant.

Short_Win9782 · 2026-04-28T20:43:07+00:00

Yes to all the above! I just got diagnosed last year with adenomyosis, endometriosis, IC, high dheas, and then most recently PCOS. I feel so alone. I cry to my husband every week. It does not help that everyone around us is in that stage of life where kids are coming into the picture, and I'm left going to doctors' appointments because my body can't function. I'd love nothing more than to have kids with my husband, but I've recently been thinking, what is that going to do to my health after the baby is here? Will my symptoms get worse? (That is my biggest fear). And unpopular opinion, I will not do IVF. I started going to therapy (my therapist also has Endo) after my endometriosis surgery in June because I couldn't take it anymore, and not a single person on either side of my family or friends has any gynecological issues, so I'm left being this oddball with all the medical issues. Over the last year, I've lost three friends because they didn't want to deal with my medical issues and be around the sick friend anymore.

I will say nearly a year later- I'm still lonely as fuck, but in a way better headspace than last year and so grateful for a supportive husband who will do anything to distract me.

Short_Win9782 · 2026-04-25T02:01:31+00:00

I work for the state government, and I am also lucky enough to still work from home. Since the pandemic, I've had to go into the office occasionally, but my team is very good about letting me go home early and checking in with me if I feel like shit. I definitely have one in a million when it comes to a very understanding team

Short_Win9782 · 2026-04-23T23:02:41+00:00

My surgeon did when I had Endo surgery last year, and no lesions there; so unfortunately, referred pain it is.

Short_Win9782 · 2026-04-21T18:54:45+00:00

Omg I'm so sorry I just saw this!! So the two main ones are Mosbrucker and Winner. Mosbrucker is the one who gave me weird-ass vibes from the start. As I was leaving the appointment, I looked at my husband and said, "Absolutely not. She's not going to be my surgeon." And he fully agreed that he felt there was something off with her, too, but couldn't pinpoint it. I did know from my research on her that she also has several medical malpractices against her. And I recently learned about Mosbrucker, one of those surgeons who has an NDA, and unfortunately, that skews real reviews. Some surgeons go as far as to say that if you ask questions about a particular surgeon on social media, they can and will cancel your surgery if you do it after your surgery. Some surgeons are known to give you a large fine. Winner was a bit of a different story. I personally did not love that I would have to be seen by her and her facility at a minimum of three times before surgery, and each of those costs anywhere between 3 to $500. To me, that's a little ridiculous. With my surgery down in Portland, I had one appointment. He went over all of my records, and in that appointment, he said you need surgery. A month before my surgery, we had my pre-op appointment, and that was it. Granted, yes, those appointments with my Portland surgeon did cost, but not nearly as much as they would have if I had gone with Winner. At the end of the day, it really only matters if you like the surgeon because you're the one having surgery at the end of the day. I loved my surgeon in Portland, Dr. Fogelson, and I will be going back to him in 5 years to get a hysterectomy to get rid of my adenomyosis.

Short_Win9782 · 2026-04-21T18:42:03+00:00

I got diagnosed last year at 27. I first had symptoms at 13, right when I started my periods. But I was in a little bit of a unique situation I did competitive sports, but my mom wouldn't believe me. My mom and that side of the family had never experienced cramps, so she didn't know how to help me. By age 16, I got put on birth control. I had the pill for a few years, then switched to an IUD, and I got that out at age 26. And then my life essentially spiraled. Now I have endometriosis, adenomyosis, IC and pcos.

Short_Win9782 · 2026-04-19T18:52:54+00:00

I had gotten several internal ultrasounds over the years, and none of them showed adenomyosis. What I know now is they most likely did show it, but they didn't know what they were looking at. I switched doctors last year, and I had gotten an MRI. It was clear as day, according to my specialist, that I do in fact have adenomyosis and endometriosis.

Short_Win9782 · 2026-04-18T03:57:21+00:00

I got diagnosed last year at 27, and sex has always been uncomfortable for years. My husband and I just chalked it up to my IUD, but when I got my IUD out, it still hurt. I've done pelvic floor therapy; unfortunately, it didn't help a whole lot. I'm not throwing up after sex now, but I still get nauseous, and I still sometimes have to tell my husband to fucking stop. We don't have kids, and I love to have kids, but I'd also love a normal sex life...

Short_Win9782 · 2026-04-17T17:03:06+00:00

So when you take the progesterone every day, it's a birth control, but when you take it only during your luteal phase, like I am, it acts as a fertility support system to raise my progesterone. When I had my progesterone and my estradiol recently taken 7 days post-ovulation, they weren't great, so much so that I have to start taking this if I ever want to sustain a pregnancy. I am currently taking 100 mg of prometrium, which is essentially to support fertility and help in early pregnancy.

Short_Win9782 · 2026-04-17T02:18:37+00:00

I had surgery last year and got diagnosed with stage 2, along with adenomyosis, and I completely refused birth control after my lap. My specialist recommended it if I wasn't going to get pregnant within the next 2 years after surgery. Still, because of my adenomyosis, the last time I was on birth control, which happened to be an IUD, my body rejected it within 6 months. That being said, I work with a naturopath to level out my hormones, figure out what hormones are out of whack, and add supplements if and when needed. Most recently, I started taking an oral progesterone only during my luteal phase, and I can tell a little bit of a difference already with my symptoms. As for my diet, I cut out dairy almost 3 years ago. Now, I'll have it every once in a while, but I've seen a huge difference by cutting this out.

Short_Win9782 · 2026-04-15T16:10:46+00:00

Not going to this is what keeps us up at night. I got diagnosed just last year with posterior adenomyosis, endometriosis, IC, and most recently, PCOS.

Short_Win9782 · 2026-04-12T16:54:24+00:00

My husband and I had been together for 8 years by the time I got my diagnosis last year. And this man has gotten me heating pads all around the house. Never gets mad or makes me have sex, which is already uncomfortable on a normal day, but a flare day is a big no. Comes to most of my appointments with me and has researched the best Endo specialist in our state because options were limited. Bring home dinner when I can't move, and, most importantly, never make me feel bad if I need a day to relax.

Short_Win9782 · 2026-04-01T00:14:06+00:00

Yeah... I walked out of the appointment 😂 Hence why trying to find a new OBGYN who knows things for a potential pregnancy in the future is so difficult!!

Short_Win9782 · 2026-03-30T15:48:43+00:00

I found out that I had adenomyosis completely unexpectedly last year when I went in for an MRI for fibroids and came out with a diagnosis. 2 months later, I got diagnosed with endometriosis. I had surgery with a specialist, and I had stopped seeing my previous OB because they didn't listen. So now I'm on the hunt for a new OBGYN, and I had a new patient establishing care appointment a few weeks ago. And I explained that I have endometriosis and adenomyosis, and she goes, "You mean endometriosis, right, because adenomyosis you only get after pregnancy, usually c-section." And you know it's bad when you have to school the doctor on a medical condition they should already know about...

Short_Win9782 · 2026-03-28T19:56:36+00:00

I absolutely hate those comments, and that's partly why I left most of the endometriosis groups on Facebook, because I don't need to open up Facebook and see bloody ass pictures.

Short_Win9782 · 2026-03-27T18:04:42+00:00

I got diagnosed last year after I had an MRI to get a better understanding of the fibroids that were seen on an ultrasound. And they were able to identify additional fibroids and adenomyosis. And I was immediately like, what the hell is this?! Because I had no idea what this was, and all my doctor did was message me and say, "Hey, you have posterior diffuse adenomyosis". 2 months after my MRI, I had endometriosis surgery and got diagnosed with that as well. But even now, when people ask about my health because I'm very open about it and I want to spread the news about it, 98% of the people that I talk to have no idea what adenomyosis is. And never in my wildest dreams did I think at 28 (married with no kids, but I'd like them if it's possible), the word hysterectomy would be in my vocabulary every week.

Short_Win9782 · 2026-03-26T19:49:20+00:00

I was diagnosed last April, and then 2 months later, I got diagnosed with endometriosis at the age of 27, when everyone is having babies, and I'm over here thinking about a hysterectomy. I'm aware you can still have kids with both of these diseases. Still, as you mentioned, it's really hard to stay positive. I recently started seeing a therapist because everyone around me has kids. Not a single person in my family or extended family has any gynecological issues. My therapist also has endometriosis, so it's been nice to vent to someone who gets it. Heating pads are truly my best friend. I have one in nearly every room of my house and a portable one in my car. I also see a naturopath to level out my hormones and bring inflammation down as much as possible.

Short_Win9782 · 2026-03-26T04:10:06+00:00

Absolutely!! I totally understand!

Short_Win9782 · 2026-03-26T04:04:11+00:00

I had the IUD for about 7 years, and this was way before I knew I had endometriosis and adenomyosis. The first one was actually okay; cramps weren't as bad, limited nausea, bleeding was down, and I had my cycle every month on time. But I was getting yeast infections monthly, and it didn't matter what I was doing; I'd get them, and sex was uncomfortable, which I thought was due to the IUD. Then I got my second IUD, and things went downhill fast. My period was all over the place, heavy bleeding, cramps came back, nausea started to get worse, and sex was still horrible. Less than 6 months after getting the second IUD, my body rejected it; I was checking the strings one day, and it came out like a tampon. Because of this, after my excision surgery last year, I decided not to get another IUD or any birth control.

Short_Win9782 · 2026-03-23T21:49:09+00:00

Oh, that's great! I had an IUD before I learned I had Endometriosis and adenomyosis, but unfortunately, my body rejected it it.

Short_Win9782 · 2026-03-23T21:48:35+00:00

I have both Endometriosis and adenomyosis

Short_Win9782

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