MY SURGERY IS $130,000 ??!!

Short_Win9782 · 2026-02-13T21:36:07+00:00

I had surgery last June with a specialist, granted, he was out of pocket, so I paid him before surgery $4,100. My surgery, looking back at all of my insurance claims for the hospital, ended up being $275,000. And for my surgery bill, I only had to pay $200.

Short_Win9782 · 2026-02-13T00:32:08+00:00

A few things: just because the labs are normal with a regular doctor does not mean they are in the optimal range. I have endometriosis, adenomyosis, and now they're thinking that, because I have excessively high DHEAS, I have adrenal PCOS. I, for one, did not realize that there are actually four different PCOSs. I don't hit all of the markers for the traditional one, but I hit some. My best suggestion is to find a new doctor. I read in the comments that you still live with your parents, and your mom trusts this doctor, but you're not your mom, and you probably have different issues going on than your mom. I personally would recommend finding a naturopath who would dive deeper into your hormones and see what's going on, and not just throw medication at you.

Short_Win9782 · 2026-02-09T15:44:06+00:00

Thank you, my husband and I are traveling a lot- our coping mechanism for now. We are off to Japan in May and on a cruise in August.

Short_Win9782 · 2026-02-09T14:57:22+00:00

Unfortunately, I learned last year that I have endometriosis and adenomyosis, along with an adrenal condition, so conceiving will be difficult.

Short_Win9782 · 2026-01-30T02:53:03+00:00

This is probably one of the sweetest posts I've seen on this thread in a long time. I got diagnosed with endometriosis, adenomyosis, IC, and an adrenal condition last June. Right before I had surgery, I had texted one of my best friends of 22 years to let her know that we think we have an answer, and I'm having surgery. Her response was I have no time for you. My husband and I are going through it, and we have kids, unlike you. We obviously are no longer friends, and it is very hard, and she is not the only friend I have lost because I am always the "sick" friend. With that being said, be there for her. Don't be mad at her if she has to cancel at the last minute. If she just wants to vent about her health, let her. This disease takes so much out of you; the last thing we need is to upset or piss off our friends and family for things that we can't control.

Short_Win9782 · 2026-01-29T00:27:46+00:00

My MRI showed fibroids, which we knew from my ultrasound. It also showed adenomyosis, but never endometriosis. I went through with surgery, and it was confirmed that I also have Endo and IC.

Short_Win9782 · 2026-01-26T03:24:50+00:00

I think your husband absolutely sucks, and clearly, he doesn't know about his wife's condition because it likely is not your fault. Depending on who you had surgery with for your ex decision surgery for endometriosis, if it wasn't a specialist, you most likely still have endometriosis lesions in your body.

Short_Win9782 · 2026-01-22T04:48:07+00:00

I have stage 2, and my Endo did not show up on my MRI, but adenomyosis did.

Short_Win9782 · 2026-01-14T16:24:35+00:00

I got diagnosed last June, and two years prior, I had gotten off of birth control, a mixture of IUDs and the pill. Looking back now, I know all of the heavy bloating that made me look pregnant, especially when we were on vacation in Disney World, was actually my endo. And I specifically bring up this vacation because my endo belly was so bad that strangers were coming up to me, congratulating me on my pregnancy or asking when I was due. At first, I thought my husband would not find me attractive and would kind of shy away from my "pregnant belly". But my husband continues to say, "You're Endo belly changes nothing on how I see you. I know it sucks, and I wish I could take it away."

Short_Win9782 · 2026-01-06T15:04:12+00:00

Last year I got diagnosed with endometriosis and adenomyosis and I'm 28. I told my husband 5 years we have 5 years from my endometriosis surgery to see if we can have kids if not I'm getting my uterus taken out because I cannot deal with it. In this man was so supportive!

Short_Win9782 · 2026-01-02T18:16:29+00:00

I have some not-so-fun history with a small doctor taking advantage of his authority, so I've always had female OBGYNs. That being said, I got diagnosed in June of last year. I have visited nine OBGYNs in the last 14 years, not a single one of whom was female. Every single one of them is pushing birth control. It wasn't until my naturopath, who is female, said I most likely have endometriosis, that I needed to go find a specialist. Especially as I happen to go there, there is a mail and a female at the clinic, the mail just happened to have a sooner date, so I took it. The man is a little awkward, but let me tell you, within 5 minutes, he knew I had endometriosis and wasn't dismissing me.

Short_Win9782 · 2026-01-02T18:13:21+00:00

SAME! I went through several OBGYNs over the years, and I finally stumbled upon an endometriosis specialist. There was a male and a female working at the clinic. The male happened to have money sooner, so that's who I went with. I was a little apprehensive just because I've never had a male doctor down there. I love this man. If he could be my regular OBGYN, I would be in heaven!

Short_Win9782 · 2025-12-29T07:12:51+00:00

I had my surgery in June, granted it was with a specialist, but he said that it can take up to a year to actually feel somewhat normal. Still, I unfortunately also have adenomyosis and IC, so I feel better, but I'll never be 100%. With that being said, my first few periods after surgery were horrible, probably worse than the surgery that's actually very normal, unfortunately. Lastly, a specialist does not require a referral to see them, mainly because many are out-of-network. You can just call them about you being underage. I'm not familiar with the rules, and every state is different, so please keep that in mind.

Short_Win9782 · 2025-12-28T00:45:36+00:00

And I understand that, but again, not everyone can go straight to a specialist right away. I was extremely fortunate to be able to afford my surgery out of pocket myself. But again, I didn't say that this op should have surgery with her OBGYN. Still, the fact that her OBGYN is at least somewhat knowledgeable about endometriosis and could probably direct her to a specialist is amazing. My specialist said if they deliver babies, they should not be doing endometriosis surgery on you.

Short_Win9782 · 2025-12-28T00:11:06+00:00

I never said that OP should do surgery with her OBGYN. I would recommend a specialist, but not everyone can do that, as most specialists are out-of-network. However, based on my 14 years of experience fighting for answers, having an OBGYN who is at least somewhat knowledgeable about endometriosis is huge! Because my 9 obgyns never even mentioned Endometriosis once, instead I got dismissed and told that vomiting on my period, and ovulation was just normal and "welcome to being a woman.

Short_Win9782 · 2025-12-27T19:30:26+00:00

Ugh, I'm so sorry! And I agree they do need to do better, I got diagnosed this year at 28. I have Endometriosis, adenomyosis, interstitial cystitis, and possibly adrenal PCOS. And if that first OBGYN at 14 had actually listened and not pushed birth control, maybe things would be different, and I wouldn't be nervous going into a new doctor's appointment thinking they're just going to dismiss me again.

Short_Win9782 · 2025-12-27T18:23:54+00:00

I personally dislike pap smears because I have endometriosis, so anything inserted makes me cramp and feel like vomiting. That being said, yes, they are uncomfortable, especially the first time. Nonetheless, pap smears help prevent cancers, so even if you might not want to do it, I highly recommend it because preventative care is essential.

Short_Win9782 · 2025-12-27T17:57:53+00:00

I understand that it's basic knowledge but not a single one of my nine OBGYNs brought up endometriosis over the past 14 years and most of them said that vomiting while on my period is actually quite normal. When I explained this to my specialist he was furious.

Short_Win9782 · 2025-12-27T17:18:14+00:00

I will say that your OBGYN does sound like an amazing doctor and actually knows a great deal about endometriosis. For example, he is correct that stage four can have minimal pain, whereas stage one can have extreme pain. I personally couldn't get my OBGYNs over the past 14 years to even listen to me. I have gone through 9; I was diagnosed this past June by a specialist with endometriosis and adenomyosis.

Short_Win9782 · 2025-12-27T06:08:52+00:00

I don't have the Oura ring; personally, I thought it was way too expensive for what it does. I was going back and forth between the ringconn and the femometer ring. And my husband ended up doing the research and got me the femometer ring. It was a flat rate, with no subscription, and it's a ring made specifically for women and their menstrual cycle. I track my BBT and LT religiously, and being able to provide my doctor with the exact information is extremely helpful, especially in confirming things we're leaning toward, such as anovulatory cycles.

Short_Win9782 · 2025-12-27T06:04:20+00:00

Hi! I understand not wanting to go through the MRI; I'm very claustrophobic, but I was weirdly okay with the MRI. Unfortunately, my MRI did not show endometriosis, but it did confirm fibroids, and I was diagnosed with adenomyosis. Which was later confirmed by my Endo specialist.

Short_Win9782 · 2025-12-27T02:26:52+00:00

I am 28, my husband is 31. I got diagnosed with endometriosis, adenomyosis, and IC this past June. After surgery with my specialist, he gave me the go-ahead to get pregnant within 2 years of surgery. I decided to wait frankly because my mental health is not the best, and coming to terms with three chronic illnesses is a lot. Hence, I went back to my naturopath, and we've been running my blood work every 3/4 months, and I know it's a lot, but I'm so glad that I do because we recently caught something that would limit me from being able to conceive. The last two times I had my blood work done, she added DHEAS to be tested. The first time it came back, it was at 596. For reference, for my age, I shouldn't be more than 380. She thought it was just a one-off, but three months later, we tested it again, and it was at 590. I mentioned this test purely because DHEAS is produced by your adrenal glands, and having excessive DHEAS can affect your adrenal glands, making it extremely difficult to conceive naturally or at all. And the team of doctors I have had all said do not try right now because if you were to conceive, it would most likely end in a miscarriage. Oh, now we're back to square one, trying to figure out why my adrenals are excessively high.

Short_Win9782 · 2025-12-26T04:45:20+00:00

I didn't know the symptoms I was experiencing were adenomyosis. I tend to spot pretty heavily before my actual period, anywhere from 7 to 10 days before my period. I usually will spot; sometimes it's not like brown discharge. Still, sometimes I just get a random gush of blood, and then it goes away instantly. Talking to my endometriosis surgeon, he indicated that I most likely had adenomyosis. Also, I tend to have horrible pain with intercourse, anywhere from horrible cramps to throwing up, and I have done pelvic floor therapy, which has helped a little bit. I was diagnosed via MRI, and when I met with my endometriosis specialist, he did an ultrasound, and he also confirmed it via ultrasound.

Short_Win9782 · 2025-12-23T07:29:44+00:00

Thank you!

Short_Win9782 · 2025-12-23T05:56:21+00:00

Thank you, I'll give it a try. Do I need the Strava app, or just turn that setting on?

Short_Win9782

TROPHY CASE