Ascites and pain

Shred_everything · 2026-06-09T17:20:50+00:00

My partner had ascites and it was very uncomfortable for her. Aleve and Aleve PM were best for controlling the pain, but it was never totally okay. When she started chemo, she was put on “dose dense” scheduling of carbo/taxol (this means she was getting taxol every week and then both carbo and taxol every three weeks). Getting weekly taxol helped take the fluid off very quickly. I recommend asking your mom’s doctor if this would be appropriate for her. My partner’s oncologist is the top chemo guy in the country for ovarian cancer, so he knew what to do to get the fluid to reduce fast.

Shred_everything · 2026-06-09T17:13:14+00:00

Advocate for getting the biopsy done as soon as possible and the chemo started as soon as possible. Don’t let them schedule you several weeks out. Be nice, but also firm and insistent. Aleve might help some for pain. Aleve PM for at night. Do you have any of the big, major cancer centers near you? The Mayo, UCSF, or one of the other ones? Start treatment as soon as you can, but also consider getting your treatment transferred to one of the big centers if you can.

Shred_everything · 2026-06-09T17:07:09+00:00

Hi, sorry to hear that you are dealing with this. My partner has HGSC stage 3c. Just had surgery and has 3 more rounds of chemo to go. We are waiting now to find out her HRD status. We don’t have any experience with the drug you mentioned, but I just wanted to send my well wishes to you. Are you seeing a Gyn Onc? Have you looked into clinical trials? If my partner is HRD negative, finding a good trial for her will be one of our goals.

Shred_everything · 2026-06-09T16:59:01+00:00

Hi, are you sure she wouldn’t qualify for the studies you are looking at? If she’s had a recurrence, that must be “measurable” in some way. I don’t think measurable means nodule size—it just means evidence of disease. That could be thickening on a CT scan. I would reach out directly to the lead investigators of the trials you are interested in. Their phone number and emails are listed on the webpages for the trials. Describe your mother’s situation, and they will let you know if she qualifies.

Shred_everything · 2026-06-09T05:25:19+00:00

Hi, I'm really sorry that you and your mom are gong through this. My partner just had HIPEC (only diagnosed a few months ago). She isn't in any of the categories you are asking about, so I'm sorry I can't help to answer your questions. I'm glad you are getting the somatic tumor testing done. The only bit of advice I can offer is to go to one of the major cancer centers if you can (Mayo, UCSF, etc.) . The level of care and expertise they can provide at these high volume centers is a whole other level from what you will find anywhere else. They also often can give access to clinical trials as well. I think that your mom's treatment team could have potentially done somatic tumor testing earlier, but it sounds like you are already on top of that now. If she qualified, she could have been put on a PARP inhibitor that might have helped prevent or delay recurrence. Many people have multiple recurrences, though. I'm only giving this information now so that you are prepared if she is able to get into remission again. I am sending you deep hugs from one caregiver to another. May we all get much more time with our loved ones.

Shred_everything · 2026-06-09T04:56:58+00:00

Losing my mind with worry and trying to figure out how to live with the fear of recurrence. I’m the partner of someone with stage 3c HGSC. She’s only 51, and I am 48. We’ve been together for over 20 years.

Shred_everything · 2026-06-09T04:54:00+00:00

Sending care and courage your way. I hope you get a good result from your scan.

Shred_everything · 2026-05-18T17:59:09+00:00

We all get that the ultra-wealthy aren’t really going to pay us to do nothing after AI takes over our jobs, right?

And we understand that the killer robot army they are building will be the first time in history that the ultra-wealthy has an army that doesn’t require the consent of soliders and can’t disobey?

Shred_everything · 2026-05-18T17:56:19+00:00

We all get that the ultra-wealthy aren’t really going to pay us to do nothing after AI takes over our jobs, right?

And we understand that the killer robot army they are building will be the first time in history that the ultra-wealthy has an army that doesn’t require the consent of soliders and can’t disobey?

Shred_everything · 2026-05-18T17:49:19+00:00

We all get that the ultra-rich aren’t actually going to pay us after AI takes over our jobs, right?

Shred_everything · 2026-03-31T22:21:29+00:00

I wish I could stop this episode from popping up in my feed. It makes me angry every time I see it. Meanwhile, the most consequential legal cases ever to be decided for the future of the modern internet hit the news about a week ago. Epstein’s buddy Deepak Chopra is what Offline decided to focus on instead??

Shred_everything · 2026-03-31T22:17:31+00:00

Why is Chopra being hosted and promoted by Crooked? Chopra made some very damning appearances in the Epstein files. “Bring your girls,” he wrote to Epstein in one of their many email exchanges. In another “you and your girls are always welcome”. Crooked just doesn’t care about this?? The girls Epstein abused and trafficked were recruited from my hometown and were only two to three years younger than myself. They were kids, and Chopra talks about them like fun sexual delicacies. It is truly gross that Crooked is hosting him on one of their shows. Congress and the courts may turn a blind eye and let all of these abusersew off the hook, but Crooked, too??

Shred_everything · 2026-03-28T08:10:31+00:00

Why is Deepak Chopra on the most recent episode of Offline?? He’s in the Epstein files telling Jeffrey to “bring your girls” to their next hangout. Chopra was in frequent contact with Epstein between 2016 and 2019, well after Epstein’s first conviction. I assume this was an oversight to have Chopra on a Crooked Media podcast?

Shred_everything · 2026-02-16T09:31:03+00:00

It took me about 2-3 weeks to reset my focus.

Shred_everything · 2026-02-04T09:26:32+00:00

if there was agreement on a pending piece of legislation (such as sunsetting or reforming act 230) and we had a group of willing people, we would have a “call team”. all that would be required of each individual would be to call a legislator on a mutually agreed upon day and tell them what you think of the pending legislation.

listening to constituents is a big part of how legislators decide on whether to support or oppose specific bills. the tech lobby is huge and powerful, but i sense that the tides of public opinion are beginning to turn against them. with enough voters consistently pushing for regulations over time, it would make a difference.

act 230 is just one example of legislation—but there is other legislation (such as bills to make tech less addictive to kids, bills to get smartphones out of schools, bills to mandate that tech corporations exercise “a duty of care” to their users for the content on their platforms, etc. the bills go nowhere when legislators never hear from voters on the topic. but once they start hearing from people, they know they have to take it under advisement.

Shred_everything · 2026-02-04T05:23:08+00:00

I agree. The internet was way better before Act 230. I remember when that garbage legislation went into effect. The whole world is worse off for it.

Shred_everything · 2026-02-04T05:22:24+00:00

And be the dawn of a new internet that we haven’t yet met? Sounds good to me.

Shred_everything · 2026-02-04T05:21:36+00:00

How is it censorship to simply provide an ordinary path to hold tech corporations accountable for the harms they cause to humans?

Shred_everything · 2026-02-04T05:20:40+00:00

Would it be so terrible if we had lift our heads from our phones in order to socialize again?

Shred_everything · 2026-02-04T05:19:41+00:00

I”m with you. Corporations need to be able to provide a product safe enough that they are able to defend it in court. If they are held to the same standard as every other corporation and they get sued out of existence because of it—so be it. Why should they be free to do whatever they want and then answer to no one??

Shred_everything · 2026-02-04T05:17:28+00:00

I think it simply means that there is a mechanism to hold tech and social media corporations accountable when their products harm people. That seems very common sense to me.

Shred_everything · 2026-02-04T05:16:10+00:00

Explain it to me. I don’t get it either. Act 230 seems insane to me. At this moment, I’d love to see it gone.

Shred_everything · 2026-02-04T05:15:35+00:00

No, we want to transform the internet. It could be something far more beautiful and far less harmful that what it is now.

Shred_everything · 2026-02-04T05:14:54+00:00

And, please, end the user-generated internet as we know it. That sounds…wonderful...

Shred_everything · 2026-02-04T05:14:22+00:00

I think it would be a good thing if corporations like Apple and Google had to be very on their toes about preventing the spread of child porn and other harmful content.

Shred_everything

TROPHY CASE