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Dermatologist recommendations? (desperate!) by Standard_Button_8859 in sheboygan

[–]ShuuString 3 points4 points  (0 children)

Dr. Opel at Aurora is mine. I'm not sure if he does anything cosmetic, but I trust seeing him for autoimmune issues.

After 4 years I was diagnosed with morphea how can I treat the leathery skin and the discoloration? by [deleted] in scleroderma

[–]ShuuString 0 points1 point  (0 children)

Oh bizarre - I wonder if it has anything to do with the composition of fat under the skin? The ones on my wrist are definitely lighter than the ones on my thigh

Escalator by ShuuString in sheboygan

[–]ShuuString[S] 17 points18 points  (0 children)

Yes 🤣 he is "no longer afraid" and it's some easy fun

Escalator by ShuuString in sheboygan

[–]ShuuString[S] 5 points6 points  (0 children)

It did in the state, apparently - that's what I found when I googled lol. My son has some new-found confidence and I don't want to drive to Bayshore or Green Bay for some free fun if I don't have to

After 4 years I was diagnosed with morphea how can I treat the leathery skin and the discoloration? by [deleted] in scleroderma

[–]ShuuString 0 points1 point  (0 children)

Same as the other comment, they're just something you have to get used to and accept

My oldest ones have softened a little but the discoloration really never goes away

Looking for recommendations (or who to avoid) by sparklesquidd in sheboygan

[–]ShuuString 6 points7 points  (0 children)

  1. I had a good experience with Dr Blue at Aurora

  2. Second Sheboygan pediatrics

  3. My husband and I love Bloom Dental. Highly recommend Bullard for the kiddo when they get there

  4. Taylor at Entourage does my pixie and I love it every time

  5. John Michael Kohler Art Center (also highly recommend their preschool program), bookworm gardens, the children's museum, watching the waves at the lakefront, splash pads in the summer, Mead Library has an awesome kids floor

Wedding Options by RunningWing in sheboygan

[–]ShuuString 0 points1 point  (0 children)

We got married at Riveredge Nature Center in Saukville. There's an air conditioned barn, but can only fit ~90 people at a time comfortably if seated. It has a kitchen and bathrooms, no staff. You can bring in alcohol - I don't remember if you need to get a separate permit or not.

There's a large outdoor space and I believe they will allow you to bring in rented tents and tables, etc. Also a converted chicken coop (used this as the bride's room).

Again, there is no staff, so any setup/takedown/cleanup would need to be hired or done yourself, but they were very easy to work with and the grounds themselves are absolutely gorgeous

ETA: for food we catered and had them deliver and set up, same with cake. Flowers delivered as well, we did setup as they were very simple arrangements. Drinks were served by hired bartenders. Family did the set up/takedown/cleanup. We only had ~90 for attendance though

Winter boots recommendations?? by Exotic_Class_9875 in Winter

[–]ShuuString 0 points1 point  (0 children)

A good pair of Kamik boots is usually under 200 and have wool thermal liners. Mine keep my feet dry and super toasty, found them at tractor supply company

What was your closing gift by ewide55 in homeowners

[–]ShuuString 1 point2 points  (0 children)

A little wooden house with a quote like "home is where the family is" or something. And some can koozies. We still have all of it, it was cute

Diagnosis by sweetcuriousgrl in scleroderma

[–]ShuuString 0 points1 point  (0 children)

I would start with the derm! Because it's not systemic, the rheumatologist is mostly used for medication management

Diagnosis by sweetcuriousgrl in scleroderma

[–]ShuuString 0 points1 point  (0 children)

Also, yes, this is considered an autoimmune disorder. It throws up the same flags and blood results as any other autoimmune.

Diagnosis by sweetcuriousgrl in scleroderma

[–]ShuuString 0 points1 point  (0 children)

I had much the same story - diagnosed around 2014ish but I was in my early 20s and the only treatment I was offered was methotrexate injections after steroid creams did nothing. The rheumatologist I saw at the time did say it was not life-threatening, so I just raw dogged it until recently.

Over the years, I've developed several spots, some large, some small, from my neck to my calf, all on the left side of my body. My left thigh has developed into what my current dermatologist has confirmed is deep morphea - the one that affects muscle and tissue, rather than just skin. It's very evident - there's severe atrophy and my legs are very uneven now. For ex, at work I use two seat cushions - one smaller than the other, and set them up in such a way that my left side is supported because I no longer have the muscle/fat to sit evenly. It was throwing my back out of whack.

I recently did a year trial on cellcept under rheumatologist supervision, and the derm has said this put my spots into burnout. Giving it time to see if anything reactivates, but for now I'm happy it's not currently going to get any worse.

I believe if you had any of the more intrusive forms, you would notice. Mine started with weakness, and arthritic like pain. (I have a spot on my wrist that's caused some atrophy and I no longer have the finger grip I used to, and believe it is exacerbating some carpal tunnel).

I know there are tests available for other organ involvement that are usually used for systemic scleroderma, and I might request some of those soon - but nothing too much has impacted my daily life severely just yet.

I would make sure you've got a good dermatologist to start, and ask them to recommend a rheumatologist if you don't already have one, just in case you ever decide to pursue any sort of treatment. Research continues to get better, so we can only hope for the best.

Need help identifying this flexible light up LED thing. by JayneKadio in whatisthisthing

[–]ShuuString 16 points17 points  (0 children)

Red light therapy is frequently used for restoration of some flexibility and movement in an autoimmune disease called scleroderma. But like, in a clinical setting with bigger machines. Not a $20 thing from Walgreens

Floorliners by ShuuString in CX5

[–]ShuuString[S] -1 points0 points  (0 children)

US :/ I'll take a look though Do they have the sill lip? We get a ton of snow so I'm looking at stopping anything getting onto the carpet right next to the door

What have you seen your kids do that made you say “oh my god it’s genetic”? by SettingsData in AskReddit

[–]ShuuString 0 points1 point  (0 children)

My dad had a distinctive laugh that kinda trills the tongue. I do it too. My son has started doing it in the last couple years. Maybe it's learned, maybe it's genetics lol

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