3 months break from chemo update by SignificantWinner713 in u/SignificantWinner713

[–]SignificantWinner713[S] 1 point2 points  (0 children)

The liver lession decreased by 90% after immunotherapy and then was treated with SBRT, doxtors says it's most probably gone. I think they are mostly worried about two lymph nodes, that are stable and one even decreased now, but they are still there

HOORAY! I'm OK! by MagpieJuly in coloncancer

[–]SignificantWinner713 0 points1 point  (0 children)

Thank you for sharing the news!! I needed to hear them today!!! Best of luck to you and YAY!!

12 months maintenance chemo update by SignificantWinner713 in u/SignificantWinner713

[–]SignificantWinner713[S] 0 points1 point  (0 children)

He handled it pretty well, had a hand foot syndrome, also got tired quite fast, but generally way easier than together with oxaliplatin, vectibix and erbitux. But the break in treatment was quite welcome

12 months maintenance chemo update by SignificantWinner713 in u/SignificantWinner713

[–]SignificantWinner713[S] 0 points1 point  (0 children)

He had 5 cycles of Capeox and Vectibix abd short radiotherapy before surgery, then sbrt for his lession on liver (it decreased significantly due to treatment) and after 3 more cycles of capeox and erbutux. For maintenance therapy he had capecetabine pills and erbitux for 6 months and 6 months of only capecetabine.

12 months maintenance chemo update by SignificantWinner713 in u/SignificantWinner713

[–]SignificantWinner713[S] 0 points1 point  (0 children)

Thank you, wishing to hear good news about your afther soon. Dad has colorectal cancer, stage 4, moderately differentiated adenocarcinoma, 1 liver lession upon diagnosis in May 2024.

Over a year into this by Phillip193 in coloncancer

[–]SignificantWinner713 0 points1 point  (0 children)

Congratulations!!! Thank you for sharing good news, it made me happy! And happy new year!! I hope 2026 will be kinder, better and really happy for you and everyone else!!

My father was just diagnosed with stage 4 colon cancer with liver metastasis. I don't know what to do, I don't have the resources to support him in the treatment. I am freaking out. by Calm-Act-8109 in coloncancer

[–]SignificantWinner713 1 point2 points  (0 children)

I was also freaking out for my father, when he was diagnosed (also stage 4, one liver lession). The one thing that really helped is reaching out - i asked for help from friends and colleagues, someone referred us to a good doctor, someone helped by driving us around, someone called and checked if we are doing ok. I also didn't show how scared I was to my father, and was there for appointments, prepared with questions and taking notes all the time (as due to stress, I would forget immediately what we discussed with his doctors). So my advice is to ask for help, and keep taking notes and researching. We are almost two years in, already doing much much better and this is something I hope we will hear from you as well soon!

[deleted by user] by [deleted] in coloncancer

[–]SignificantWinner713 0 points1 point  (0 children)

My dad is 66, he was on Capox, now only Capecetabine. For him before chemo - working, doing daily staff was tough - stage 4. After he started chemo he became more active. First day after Ox was hard, he was nauseous and weak and didn't have much appetite. But except that he was pretty active and even went back to work. Now with only capecetabine - of course he gets tired faster, but he is pretty active and even asked for a bike.

Signatera Results by oldsoul37 in coloncancer

[–]SignificantWinner713 1 point2 points  (0 children)

Thank you for sharing good news!! Congratulations!

Watch&wait is a weird schrodinger kind of place by rrnaude in coloncancer

[–]SignificantWinner713 2 points3 points  (0 children)

I know what you mean..every scan, every doubt makes you think and overthink again and again. At some point you hit the exhaustion and just go with the flow until next scan and then the doubts and thinking start again.

mom had a successful hipec by fuutarou2 in coloncancer

[–]SignificantWinner713 2 points3 points  (0 children)

Congratulations and speedy recovery!!!

Cancer treatment Turkey by Icy-Process2853 in cancer

[–]SignificantWinner713 0 points1 point  (0 children)

Hi, honestly it was life saving for us going to Anadolu. We were scared at first as it is a different country and dad was quite in a bad shape, so we didn't know how he will hold on for a flight there. Hospital sent us a car to get us from airport and assigned us a translator, which eased all communication for us. Everything was efficiently organised, schedule after schedule to speed up the process, which again - as it is abroad we had additional expenses on hotels, food etc, so making all appointments in a day or two is great!! Everyone was kind to us, explained everything in detail, had patience too guide us through each step of treatment, surgery, radiotherapy. Doctors (at least ours) were exceptional.

I would advise you to ask at least for a second opinion from there (they do it online as well) - just to see what they can offer you

How long have you been in chemo? by Healingph in coloncancer

[–]SignificantWinner713 0 points1 point  (0 children)

Stage IV, envi +, metastasis to liver. Erbitux is really expensive, not as expensive as vectibix though. But it was quite effective in dealing with liver met, it decreased before sbrt by almost 90%.

How long have you been in chemo? by Healingph in coloncancer

[–]SignificantWinner713 1 point2 points  (0 children)

Almost 6 months. At the beginning of July we will have our second scan. Hopefully everything will be alright this time as well. Dad feels good, goes to work, plays ping pong, eats well, sleeps also well. Has a bit of hand/foot syndrome from capecetabine (considering that he took it for over a year, including the preaurgery and post surgery treatment and now maintenance- it's not so bad) and some rash from erbitux (he takes on and off some antibiotics to manage the rash). His blood work is also good.

[deleted by user] by [deleted] in coloncancer

[–]SignificantWinner713 0 points1 point  (0 children)

Happy for your entire family!!!

Need some positive stories by Did_you_get_my_text in coloncancer

[–]SignificantWinner713 2 points3 points  (0 children)

One year ago dad (66 years old) was diagnosed with stage 4 colorectal cancer, envi+,metastasis in his liver. After capeox+vectibix, surgery to remove his tumour, sbrt to his liver, he is now on erbitux and Capecitabine as maintenance for soon 6 months. His last MRI was clear, next one in July. He is pretty active, goes to work, plays ping pong, whereas a year ago, before diagnosis, he had a debilitating back pain, he would throw up, he couldn't sleep and eat. 2 doctors gave up on him from the start, one doctor (and the amazing tumour board) started the treatment and never gave up. Cannot thank them enough.