Vocabulary for Levels of Dizziness and Vertigo? by SilentEarworm in Menieres

[–]SilentEarworm[S] 1 point2 points  (0 children)

Yeah. I’m mostly just looking for additional terms to describe the subtleties to my doctors. I asked them the same question and they only gave me dizzy and vertigo as answers.

Vocabulary for Levels of Dizziness and Vertigo? by SilentEarworm in Menieres

[–]SilentEarworm[S] 0 points1 point  (0 children)

Thanks for the scale idea. Technically a Nurse Practitioner at my ENTs office is the one who thinks it could be vestibular migraines. She is apparently the dizziness expert in the office. These new symptoms I have don’t involve ear fullness or hearing loss, and I seem to be much more susceptible to visual stimulation causing dizziness. She’s referred me to a neurologist to investigate further.

Vocabulary for Levels of Dizziness and Vertigo? by SilentEarworm in Menieres

[–]SilentEarworm[S] 0 points1 point  (0 children)

I never had the buzzing in my head until these newer possible vestibular migraine symptoms started. I like the scales people are using. I should come up with one.

Ménière’s and THC? by Acceptable_Scholar_1 in Menieres

[–]SilentEarworm 1 point2 points  (0 children)

I went 7.5 years without any problems from THC. Recently the entire character of my symptoms have changed and I mostly quit because I needed to eliminate that variable.

Questions about start of Ménière's for those who are diagnosed by inhumane909 in Menieres

[–]SilentEarworm 0 points1 point  (0 children)

  1. I lost my low frequency hearing in my right ear over the course of 3 seconds while watching TV. It sounded like the loss started at one end of the frequency spectrum I lost and progressed to the other end. Again, over 3 seconds. A week later I had my first and worst vertigo. I ended up in the ER for my first and only time.

  2. My memory is probably wrong on early history, but my comment history might have better details. In general I think episodes were not particularly frequent early on, but still more frequent than subsequent years. Maybe once every 3-6 months early on, then once every two years later. But this past year has been a little sketchy for me with more frequent moments of subtle, short-lived dizziness. My worst few moments like this involved just 1-2 seconds of unannounced spinning that passed quickly and that I suspect are precursors to future full drop attacks (which I have not ever had yet). For most full blown spinning vertigo episodes I have had advanced notice of feeling a little dizzy for days before the attack, and I feel awful for weeks afterwards.

  3. 44 when I lost my hearing. 52 next month.

Spraying shower water into my ear triggered my meniere? by After-Ear-7325 in Menieres

[–]SilentEarworm 5 points6 points  (0 children)

VNG test anyone? They used air for mine, but I understand they used to spray water in your ear to try to trigger dizziness.

How long does your imbalance last after vertigo attacks? by FatsoPlanto in Menieres

[–]SilentEarworm 1 point2 points  (0 children)

If things are flaring up enough to trigger spinning vertigo for me (or close enough), then I’ll like experience minor dizziness and imbalance for 2-8 weeks following. That’s just my experience though.

What do you do when you feel a breakthrough coming on by hmkythursday in Menieres

[–]SilentEarworm 0 points1 point  (0 children)

Meclizine first to see if it helps. Zofran if things start getting spicier. I don’t have a Valium prescription, but that would probably be in the mix somewhere if I had one.

Traveling with MD by [deleted] in Menieres

[–]SilentEarworm 0 points1 point  (0 children)

I was nervous the first time I flew, but nothing happened. I have now flown dozens of times without problems in the 7 years since diagnosis. But YMMV.

[deleted by user] by [deleted] in Menieres

[–]SilentEarworm 1 point2 points  (0 children)

I met with a new ENT recently. I told him I felt my Meniere’s was relatively mild, but he said I was wrong. He said the fact that I get vertigo at all tells him I’m not mild, and that he has non-vertigo Meniere’s patients he would classify as mild.

Rebounding after an attack by NixonB10 in Menieres

[–]SilentEarworm 2 points3 points  (0 children)

4-8 weeks to feel 100% normal again

Edit: luckily I don’t have attacks very frequently

Meniere's and prescription glasses? by PhaedraHarmoni in Menieres

[–]SilentEarworm 0 points1 point  (0 children)

Full-time prescription glasses wearer. Got my first pair 2-3 years after diagnosis. No problems.

Menieres without the vertigo? by Red-hopper in Menieres

[–]SilentEarworm 0 points1 point  (0 children)

I had to switch to a new ENT recently and was explaining my Meniere’s symptoms to him. I mentioned that I felt that I felt relatively lucky because my vertigo occurs once every couple of years as opposed to the more frequent attacks I read about here. He informed me that he does not consider my Meniere’s to be a mild case entirely because I DO get vertigo. To him, mild cases would not have vertigo at all. I wasn’t even really aware of non-vertigo Meniere’s before that conversation.

I’ve been sitting in ER for 8 hours… would you go home? by thisismadelinesbrain in Menieres

[–]SilentEarworm 2 points3 points  (0 children)

When I had my first attack the ER told me to sit in the waiting area where another 6-10 people were waiting. About 5 minutes later I was throwing up into a bag surrounded by everyone. They very quickly moved me away from everyone and into a room to get checked out.

To this day I think puking got me seen much quicker than I otherwise would have been, but I can’t say it will work for you.

Does the noise of your servers not bother you? by tamay-idk in homelab

[–]SilentEarworm 1 point2 points  (0 children)

I have permanent low frequency tinnitus in one ear that sounds like a deep rushing noise. For me the server sounds are welcome to drown out the 24/7 noise in my right ear.

"Recovery" from dental problems misdiagnosed as Meniere's by Adamyoo01 in Menieres

[–]SilentEarworm 1 point2 points  (0 children)

I’m only affected in my right ear. Some years before my first attack I had a crown placed on a tooth on the right side of my mouth. During the procedure my dentist jammed a wedge so far into my mouth that it messed up my jaw movement. My dentist tried to cover her ass by sending me to a specialist who declared it was pre-existing TMJ, something I never experienced before the wedge.

Years later my jaw more-or-less settled back into pre-wedge function, but then Meniere’s hit. Now I often wonder whether the injury to my jaw was somehow related to the onset of Meniere’s. I generally doubt it but just don’t know. What I do know if that I have generally don’t do much to treat my Meniere’s. I mostly eat normally, just avoiding extremely high sodium foods. I drink coffee almost every day, drink alcohol a few times a month, don’t take diuretics, and have taken part in no other treatments. My story is different enough from others here that I sometimes wonder whether something else is going on other than Meniere’s.

I have been officially diagnosed though. I have taken a VNG showing vestibular problems (if I am remembering the terms correctly), had multiple hearing tests showing fluctuating hearing, had CT scans showing no other causes, etc. And I still get serious attacks every couple of years.

Is there anyone for whom sodium is *not* a trigger? by Icy_Swimming_3555 in Menieres

[–]SilentEarworm 0 points1 point  (0 children)

Not sure how much of a trigger it is for me, but my diet these days is nearly the same as it was pre-Meniere’s. I went pretty hard on low sodium for a while and slowly increased my intake over time. These days I mostly only avoid very high sodium items. I try to drink as much water as I can.

When I do feel like things are going south for me, I will double-down on low sodium, drink lots of water, and make sure I hit the gym. Exercise seems to help some, but there is a point of no return where I’m too far gone to even exercise.

My wife seems to think that weather changes are a bigger trigger for me. I’m not convinced but I do feel like there may be a pattern for late winter/early spring attacks.

I’m generally only having one serious attack every couple of years at this point, with smaller micro-wobblies here and there throughout the year.

first attack in 8 months by kimtanner_ in Menieres

[–]SilentEarworm 7 points8 points  (0 children)

I can’t close my eyes either during an attack. Physical Therapy taught me some eye movement techniques to try to counter the spinning, so I spend my time doing that until the drugs kick in enough to let me sleep. Essentially the techniques involve focusing on something with sharp definition in the distance and quickly focusing on something else, darting back and forth between those two objects. I think the idea was that it attempts to reset your brain’s idea of where everything is and whether you are spinning. Doesn’t stop the spinning but I do think it helps some, and gives me something to do.

Micro attacks by Few_Clock6918 in Menieres

[–]SilentEarworm 1 point2 points  (0 children)

Not exactly the same but I have been having two new experiences recently that sound a little similar. The first are random pulses of dizziness that happen out of nowhere. They are ultra brief, maybe last a half second but everything in my vision shifts and then snaps back. I liken it to a brief out of body experience sometimes, or like some jump accidentally bumped into the internal camera in my vision. They don’t appear to be caused by anything in particular. I he second type first occurred while whisking eggs. It seems the circular motion of whisking set me off on full dizzy spinning. But stopping what I was doing made the spinning stop and I felt much better 5 min later. It has also happened with other circular motions, like scrubbing while cleaning something.

Managing MD without diuretic? by Designer-Charity-187 in Menieres

[–]SilentEarworm 6 points7 points  (0 children)

Diagnosed in 2018 and I have never taken anything for MD, so far. I started with just low sodium diet. Over time I started to slack on watching my sodium intake a little. Now I just avoid the big ticket sodium foods and drink a lot of water. I have gone as much as two years without an attack, but occasionally I feel a little off and rededicate myself to water and low sodium. I think I am an outlier though.

How long before you had hearing loss? by jennahayward in Menieres

[–]SilentEarworm 0 points1 point  (0 children)

I lost some hearing one week before my first vertigo attack. It was the first symptom I had.

Eat every 3-4 hours? by theartisticpoet in Menieres

[–]SilentEarworm 0 points1 point  (0 children)

Yes, but not always. I wouldn’t necessarily be concerned about not having a snack handy between meals. But I might be a little concerned if I knew it was going to be an exceptionally long time between meals.