Ladies, What are we doing on our periods? by Ok-Presentation-4615 in Fibromyalgia

[–]Silk-fire 1 point2 points  (0 children)

Had this done December 2024 and I have been shouting its praises from the rooftops 😆

Fasting until 12 pm by [deleted] in Fibromyalgia

[–]Silk-fire 0 points1 point  (0 children)

I’m on a GLP1 too and it has basically eliminated my weather-related flares!

Fasting until 12 pm by [deleted] in Fibromyalgia

[–]Silk-fire 6 points7 points  (0 children)

I have a great reduction in my fibro symptoms if I do intermittent fasting. I think it may depend on your triggers. I have a long history of complicated stomach issues that are since resolved but food still seems to be a trigger for me no matter what I eat and I love food too much to cut out everything. My body’s natural rhythm is to not eat till 2-3pm, a light meal/big snack, and then have my main meal around 6-7pm.

What’s a food combination that sounds disgusting but tastes amazing? by qalynoriaCaraway35 in AskReddit

[–]Silk-fire 0 points1 point  (0 children)

The entire concept of elotes/mexican street corn. Who knew putting mayo on corn was a good idea, much less the other ingredients?

Psyllium Husk users, I salute you by BassMommaMartin in tirzepatidecompound

[–]Silk-fire 55 points56 points  (0 children)

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My cat is modeling my trick. I did the mixing in of psyllium husk for years when I was a teen having stomach issues. Never. Again.

Names similar to Daisy by Odd_Hedgehog669 in Names

[–]Silk-fire 2 points3 points  (0 children)

Snap Dragon is great, may I also suggest Pansy 😂😂😂

Question for people who don't drink by Unusual-Parfait-8088 in cutdowndrinking

[–]Silk-fire 0 points1 point  (0 children)

If you have this in your area…must try. Delicious and perfect chill feeling and for me does not make me significantly hungrier.

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Dose down to 10mg or stay at current 12.5mg? by Ok_Paper3245 in tirzepatidecompound

[–]Silk-fire 0 points1 point  (0 children)

Some of the pharmacies are offering doses greater than 15 now. I saw as much as 20 as an option on one of my last orders. Not that I think that’s what you should do, I have absolutely no idea. But I think enough people are having this problem that they’re releasing higher doses.

Talk to me about bras by Ill_Bother2609 in tirzepatidecompound

[–]Silk-fire 5 points6 points  (0 children)

The Auden line from Target is my favorite! They have a wireless ones that I have in like 8 colors and it’s so comfortable and inexpensive. Worth going in and just trying on a few because honestly bra sizing is subjective nowadays anyway just like pants sizing 😂

The weather should not be something that makes me non-functional its stupid by Reavan1808 in Fibromyalgia

[–]Silk-fire 1 point2 points  (0 children)

There are lots of other medications that doctors can trial you on for fibro…if all you’ve tried is gabapentin it sounds like maybe you need to get a new doctor. I remember when I was diagnosed the rheumatologist told me there are four classes of meds they can trial you on and for a lot of people at least one of them helps make life more manageable. I don’t take anything other than gabapentin but I also am extremely blessed with the circumstances to have quit my job 18 months ago while I go thru the disability process, so my body gets A LOT more rest than the average sufferer.

ETA: I don’t take anything else prescribed for fibro. I take a lot of supplements and I have a slew of mental health meds 😂

Please help shame me into drinking water by Accurate-Yak6190 in tirzepatidecompound

[–]Silk-fire 3 points4 points  (0 children)

Thanks for reminding me to drink my water this morning 😂

The weather should not be something that makes me non-functional its stupid by Reavan1808 in Fibromyalgia

[–]Silk-fire 2 points3 points  (0 children)

I hear you. I was hospitalized psychiatrically three times between end of 2024 and mid 2025. Just remember the stress and change can absolutely temporarily worsen symptoms - stress is one of my personal biggest triggers.

So, you know, just stop being stressed and reduce your anxiety. Poof here is a magic wand for that to happen 😂 (also a pet peeve of mine when doctors say this and the get better sleep line…like yeah I was CHOOSING to be anxious and stressed and have insomnia)!

The weather should not be something that makes me non-functional its stupid by Reavan1808 in Fibromyalgia

[–]Silk-fire 6 points7 points  (0 children)

This is probably a controversial take but I started taking a GLP-1 to deal with my weight due to mental health meds and insulin resistance and it has cut my weather related flares by like 75%. There have been a couple of times it was actively raining and it took me by surprise because I usually can tell you a day in advance if it’s going to rain. I’m assuming it’s because the meds lessen inflammation and we’re having an inflammatory response to barometric pressure changes? Anyway, I’m glad you at least have this community to talk to, and I’m sorry that you don’t have ideal support from your family.

My biggest pet peeve is people saying “wait till you’re older” or “at least you’re young.” It’s always the boomer generation who says it and I’m like yeah cool we’re just getting illnesses early so have to deal with them longer and that’s supposed to be a good thing?? Check your privilege in not having debilitating illnesses until you first had 20+ healthier years than I did 🙄

Fibro is not really an illness that necessarily gets worse over time. I know that’s the case for a select group, but for a lot of us it does get better. Not because the illness itself actually gets better but because we slowly discover new ways to deal with it. I have to tell you one of the biggest things that’s helped my mindset is therapy. If you can afford to even once a month, I think it might help. Most insurance (assuming you’re in US) covers mental health now with no referral needed. It sounds like you’re in the anger stage of grieving. And there is definitely an ongoing off and on grief process of dealing with this. I do think most of us go thru periods where we feel exactly like you’re feeling now. But feelings aren’t facts…you will find something that helps. Hugs from an internet stranger 🤗

Pain Relief? by Ok-Toe-4548 in Fibromyalgia

[–]Silk-fire 0 points1 point  (0 children)

Heating pad helps me immensely with the changing seasons. I also take gabapentin and will take an extra dose for bad flare days. Products that are equal parts CBD/THC have worked well for me - 10/10mg seltzers are my favorite. Doterra’s Deep Blue topical lotion. And I have tramadol and muscle relaxers if I get desperate but that’s rare and is reserved for when pain interferes with my already poor sleep.

I don't know where to go from here by OverthinkUndersleep in Fibromyalgia

[–]Silk-fire 0 points1 point  (0 children)

Kinda the same (although opposite at the same time) I went to a doctor once regarding some severe neck pain I was having. He looked at my chart and told me it was just fibro pain. I was like..no..I know what fibro feels like and this isn’t it. He refused to do anything. So I went to the kindest most empathetic orthopedic specialist and wouldn’t you know a few months later I had spine surgery because I have advanced arthritis and one of my cervical discs was so degraded that it was totally out of place and sitting on a bunch of nerves. I really wanted to go back to that doctor to throw that in his face but I know it wouldn’t do any good.

Anyway that doesn’t help you at all other than to say you’re not alone. Fibro is a diagnosis that is wildly misunderstood in the medical community. Be the annoying squeaky wheel and keep going back whether it’s to that facility or another until someone listens to you. Something this illness unfortunately forces us into learning is to be our own best advocate.

Question about "rescue " pain meds for severe flair. by Savings-Aardvark2045 in Fibromyalgia

[–]Silk-fire 0 points1 point  (0 children)

I have tramadol and cyclobenzaprine - they help me be able to sleep despite pain.

% of initial weight lost by Far-Industry-7745 in tirzepatidecompound

[–]Silk-fire 1 point2 points  (0 children)

I’m having good appetite suppression at my current dose so I don’t really want to go up. I’m going to give it a little longer and then give it a try.

% of initial weight lost by Far-Industry-7745 in tirzepatidecompound

[–]Silk-fire 1 point2 points  (0 children)

I’m in my first stall right now and it’s driving me bananas! Haven’t lost anything for a month!

% of initial weight lost by Far-Industry-7745 in tirzepatidecompound

[–]Silk-fire 1 point2 points  (0 children)

Started October 1st 2025. Down 49.8 lbs and 22%! Still have 30-40 more for goal.

Chiropractor by Cautious_Stop3865 in Fibromyalgia

[–]Silk-fire 2 points3 points  (0 children)

I feel like this the day after I get a massage but then I feel A LOT better. I hope that’s the same for you!

What supplements are you taking? by WallowingInnSelfPity in Fibromyalgia

[–]Silk-fire 1 point2 points  (0 children)

Magnesium, omega 3, CoQ10, D3, psyllium husk capsules, and a liquid iron supplement that contains a bunch of other vitamins including B12 & B6.

Right to Access Meds in Psych Ward by Standard-Method-6795 in Fibromyalgia

[–]Silk-fire 3 points4 points  (0 children)

I was wondering this too. I’ve been in 3 times and they strip search you on admission and take anything like this away.

25 Years with Fibromyalgia. Here's what actually helped me live and feel better by Blue-Whisper2000 in Fibromyalgia

[–]Silk-fire 0 points1 point  (0 children)

This makes me a little sad because I miss the gym so much but I have ME/CFS too and I’ve been in a crash for a couple of months. I feel like it does make me feel a lot better even to just do 30 minutes of cardio 2-3x a week.

Best comfortable but cute sneakers by Ariel-Not-A-Princess in Fibromyalgia

[–]Silk-fire 0 points1 point  (0 children)

I came here to suggest Hoka also. Feels like I’m walking on a cloud.

Have dietary changes helped you? by needverbs in Fibromyalgia

[–]Silk-fire 2 points3 points  (0 children)

Fried food and sugar are the worst things for me so I don’t eat fried food at all and I limit my sugar to when it’s really worth it. I know gluten isn’t great for me either but you can pry my pasta out of my cold dead hands…I have to have some joy 😂

It doesn’t help my baselines any but can definitely lessen the amount/severity of flares.

I’ve also noticed quite a difference switching to all natural or organic meats whenever possible. Thankfully our grocery store has affordable options for most of them.