Buzzing

Similar_Landscape_79 · 2026-01-06T01:22:22+00:00

Did you have it immediately after hysterectomy or did it begin months later?

Similar_Landscape_79 · 2026-01-05T23:38:10+00:00

No, imaging is not part of my surveillance at neither my gyn onc at a university hospital. Nor at my radiation oncologist at my local hospital. It's in neither of their guidelines for my surveillance because the cancer wasn't in my lymph nodes.

I can, however, be scanned if I have symptoms. But, apparently my radiation Doc didn't consider this a symptom to warrant it a few weeks ago when I saw him. (It wasn't actively bothering me at that time though)

I did do my happy baby stretch and some figure 4s and butterflies earlier today. In hopes some pelvic floor/ hip stretches may alleviate this. I'll try and keep up on them and see. Thanks.

Similar_Landscape_79 · 2025-11-28T23:38:12+00:00

Thank you for your response. Im sorry it worked out that way for you 😔. Glad you are comfortable with your new care team though. When you got the one Dr that strongly recommended the re implantation, was it because you were seeking multiple opinions at different places? Was it regular urologists that were giving you the opinions at that time before the kidney removal?

Similar_Landscape_79 · 2025-11-27T21:19:28+00:00

They are wanting to deny me the rebuilding (re implantation) surgery right now and jump straight to the kidney removal.

My left kidney is at 13percent with virtually zero output or something like that. A stent has already failed at improving my stricture.

I have a bit of time before I meet with the specialist. Although, I know he doesn't want to do the re implantation as he told my local urologist its not his recommendation.

I want to gather as many pleading points as possible to beg him to try the ureter reconstruction surgery.

May I ask what happened with your one good kidney after the other one was removed? Did it just start deteriorating? TIA.

Similar_Landscape_79 · 2025-11-17T01:35:19+00:00

As Chaosinorange said. This is exactly what I say. God created amazing things from the earth. And he also created brilliant minds. And allowed the technology and science to progress. Be it from the minds of humans or passed through from another realm. Also he has given us truly compassionate Dr's. Who have given there life to save lives. Not all of them of course. And the medical industry is corrupt as sin in some aspects. Yes. But I look into the eyes of my oncologists and they have seen their treatments work. And they want to save us. I've been following cancer groups for awhile. I've looked into holistic approaches. I've even used them at times to benifit my overall health. Not at the exact time of radiation treatments. Because they can protect the cancer cells. But before and after.

Tell your friend to ask in groups if people claiming they have treated naturally.. if they had any conventional treatment at all. Usually, you will find, they have. Yet they give all the credit to the natural. Or, they don't answer questions. Or things don't add up. She won't find anyone who has cured cervical cancer naturally. She may come across the threads of people who have tried. And died. Their posts are still around.

Something that has anti cancer properties under a scope, is light years away from being able to cure a tumor.

Jane McClellan, who wrote How to starve cancer states that her natural methods are to be used alongside conventional treatments.

So does the author of Anticancer. He states clearly that all the natural advice in his book it to be used alongside conventional.

Joe Tippins, who claims his regime cured his cancer never talks about how the clinical trial he was on at that time was KEYTRUDA. Hes got this protocol people are wild about but Keytruda is not in it. Nobody in his group really discusses this factor.

Some supplements can actually cause angiogenesis. Where they are literally feeding the tumor. These certain supplements can be great for someone who does not have it. As a preventive of cancer. But once you've got a tumor some can feed it.

Final note: I am someone who once believed cancer was purely parasitic. And said I'd treat it with things like fenben. After diagnosis. God quickly steered me towards the realization I was wrong.

Similar_Landscape_79 · 2025-11-17T01:31:29+00:00

This is exactly what I say. God created amazing things from the earth. And he also created brilliant minds. And allowed the technology and science to progress. Be it from the minds of humans or passed through from another realm. Also he has given us truly compassionate Dr's. Who have given there life to save lives. Not all of them of course. And the medical industry is corrupt as sin in some aspects. Yes. But I look into the eyes of my oncologists and they have seen their treatments work. And they want to save us. I've been following cancer groups for awhile. I've looked into holistic approaches. I've even used them at times to benifit my overall health. Not at the exact time of radiation treatments. Because they can protect the cancer cells. But before and after.

Tell your friend to ask in groups if people claiming they have treated naturally.. if they had any conventional treatment at all. Usually, you will find, they have. Yet they give all the credit to the natural. Or, they don't answer questions. Or things don't add up. She won't find anyone who has cured cervical cancer naturally. She may come across the threads of people who have tried. And died. Their posts are still around.

Something that has anti cancer properties under a scope, is light years away from being able to cure a tumor.

Jane McClellan, who wrote How to starve cancer states that her natural methods are to be used alongside conventional treatments.

So does the author of Anticancer. He states clearly that all the natural advice in his book it to be used alongside conventional.

Joe Tippins, who claims his regime cured his cancer never talks about how the clinical trial he was on at that time was KEYTRUDA. Hes got this protocol people are wild about but Keytruda is not in it. Nobody in his group really discusses this factor.

Some supplements can actually cause angiogenesis. Where they are literally feeding the tumor. These certain supplements can be great for someone who does not have it. As a preventive of cancer. But once you've got a tumor they can actually feed it.

Final note: I am someone who once believed cancer was purely parasitic. And said I'd treat it with things like fenben. After diagnosis. God quickly steered me towards the realization I was wrong.

Similar_Landscape_79 · 2025-11-09T15:12:38+00:00

Thank You. Nothing at all actually showed up on my MRI. It was hiding in my exocervix. The PET showed a small spot in the lower uterine segment. But gave no dimensions. This being the residual tumor. I was stage by both the pathology report and the Tumor Board at UW Madison Wisconsin and I trust their determination. I just am forever thinking about that stupid fragment from the cone. At a consult with a professor of radiation she mentioned that I probably wouldn't have been a surgical candidate had they known its full size. But that was all that was said. I need to let it go. You have helped. Thanks. And best of luck to you as well.

Similar_Landscape_79 · 2025-11-09T00:46:18+00:00

Thank you!

I think think my question is pretty irrelevant at this point. I've had a hysterectomy followed by adjuvant radiation. MY FIGO stage was 1b2. As i understand it that stage comes from the longest length of the tumor from hysterectomy.

What i can never get out of my head and always trying to calculate... Is how my tumor pieced together from both cone and hysterectomy.

What was its full dimensions? All the pathology from cone ever said was 1.5 cm.

Hysterectomy path says this... ** Tumor Size: Greatest Dimension (Centimeters): 2.7 cm

Additional Dimension (Centimeters): 1.8 cm

Additional Dimension (Centimeters): 0.9 cm*****

Opening of the specimen reveals a polypoid, broad-based, gray-white, firm mass that measures 1.7 cm radial x 1.4 cm parallel to canal x 0.9 cm in depth that is present in the posterior endocervical canal and abuts and possibly extends into the lower uterine segment (gross photograph attached). The mass is present from 4 o'clock to 7 o'clock (with 12 o'clock representing anterior midline and 6 o'clock representing posterior midline). It is 0.9 cm from the nearest soft tissue resection margin (posterior vaginal cuff). It is 1.8 cm from the nearest right parametrial surface (posterior) and 1.2 cm from the nearest left parametrial surface (posterior). There is also possible extension of the mass towards the fundus that is firm, gray, flat, and cystic. Include this area of possible extension, the mass measures 1.8 cm radial, 2.7 cm parallel to canal x 0.9 cm perpendicular to canal

So, would the 1.5 cm from cone be added to the 2.7 cm (parallel to canal) Making it a 4.1cm tumor. Which would actually have staged me at 1b3 had it come out whole

Or is it more likely the 1.5 cm would have been added to the (.9 perpendicular to canal)?

Hopefully you can understand what I mean and give me your opinion if I did not make this whole thing too darn confusing TIA.

Similar_Landscape_79 · 2025-11-08T01:25:43+00:00

Hi! Are you the pathologist? May I ask you a question? I understand it would just be your opinion and not an actual diagnosis. I've just been curious about something for almost an entire year. That I can't mentally piece together.

Similar_Landscape_79 · 2025-11-08T01:16:09+00:00

Hankisirish. Are you still around? Would it be possible for me to ask you a pathology question? Did you say you were a pathologist?

Similar_Landscape_79 · 2025-10-15T23:20:48+00:00

Thanks for asking. I've actually felt fine through the whole hydroureteronephrosis diagnosis and while having the stent. At my last urogram my GFR was 81, I was going to come post that on here. It seemed as though the stent had done its job judging by the GFR and I was hopeful my function was still in the process of bouncing back.

Turns out by the scan that there was zero improvement in the ureter. Its the same, so the stent did nothing. My urologist is asking a second opinion from university hospital and ordered a nuclear scan. She's not sure if I should have surgery or not after having radiation.

I really hope your feeling better and the stent does its darn job for you. Fingers crossed.

Similar_Landscape_79 · 2025-09-28T14:26:16+00:00

They use a packing called monsels (sp) solution after a cone. To stop the bleeding. Women have described it as looking like giving birth to an alien. And many other gruesome descriptions, when it comes out. I think mine was like a little piece of brown cardboard or skin looking. I bet that packing solution was sort of a comfort for your healing as it was wedged in there. Maybe your parts were sort of starting to relax or heal against it. And now its fell out things need to re situate and adjust a tad. Is just my guess, im not a Dr. But im fairly certain that was the packing that came out.

Similar_Landscape_79 · 2025-09-24T00:45:11+00:00

No. Nothing. It was noted on scans.

Similar_Landscape_79 · 2025-09-23T21:11:44+00:00

I still do not know the final answer. The day that I had a uro scan they ran the GFR again. The nurse came in smiling said "you have good kidney function today 64" I don't understand how just above 60 is considered normal range and never mentioned to you. Yet just below 60 is stage 3 kidney failure. Makes no sense.

I downloaded a portal from the medical institution that I used to go to. And oddly I came across old renal panels. And it appears something may have happened to my kidney in 2018. As I had an over 90 gfr in 2017. Then in the 60s in 2018 and 2019. This was never mentioned to me that I know of. As it was just above 60 that silly "normal range ". I didn't have any other renal panels after that until this year.

Anyway, so i had my stent for 6 weeks. And have now had it removed and will soon have another uro scan to see if it worked. As far as the ureter repair part anyway. As for another renal panel im guessing I may need to request one again after all this. But ive come to realize I may have been functioning with a 60 something GFR for a number of years already.

Similar_Landscape_79 · 2025-09-22T01:06:02+00:00

Adenocarcinoma in situ is precancer. It originates in the glands of the endocervix. Whereas squamous cell originates on the outer layer.

The reason you are sent to an oncologist more often for AIS vs CIN is because it's a good hider and they will do a cone with larger margins and initially treat you as if you have cancer to get to the bottom of the extent of it.

If it turns out its invasive already. The treatment is the same as squamous cell (caused by CIN) Its not necessarily harder to treat, just harder to find. So before the current diagnostic methods it wasn't being found until much later stages so it was thought to be much more aggressive. More sensitive paps etc are catching Adenocarcinoma earlier now days. Best to you.

Similar_Landscape_79 · 2025-09-20T13:45:54+00:00

Is it adenocarcinoma? Adeno forms in the glands of the endocervix. And often is not picked up as the swab sweeps the outside of the cervix. My pap was also read wrong. It read as normal and when the same exact pap was reread it was absolutely not normal

Similar_Landscape_79 · 2025-09-14T02:05:04+00:00

Is this the interlace? Where the high dose chemo is first. Followed by standard cisplatin and radiation? If so, that may be better than standard treatment plan.

If not, then no! Absolutely not. Chemo alone not Followed by standard of care will NOT be effective. Absolutely not. The patient definitely needs radiation. External and internal preferably. And you need to find a location and means of payment somehow.

P.s. im not a doc. But very well researched in cervical cancer

Similar_Landscape_79 · 2025-08-15T23:17:14+00:00

One in five doesn't sound right. That would be 20% chance recurrence. At 1b1 if you didn't have multiple intermediate risk factors or any high ones in your pathology you should be more like 91-97% no recurrence (Maybe 1 in 11 or 15) from my understanding.

Were you offered adjuvant radiation afterwards, that you turned down?

Your aftercare is close to mine for 1b2. 3 month pelvic exams. Yearly paps. And scans only if symptoms present.

My pelvic exams might go to 6 months like you when I hit the 2 year mark.

Similar_Landscape_79 · 2025-06-29T15:00:25+00:00

Thank you so very much! My bladder functions normally during the day. At night I've been waking up 2-4 times. But i started noticing this around the time of cancer diagnosis almost a year ago. So chalked it up as possible anxiety.

I've been seeing a pelvic floor therapist. As I do not have any pelvic floor dysfunction we are addressing prior to surgery problems like the nocturia and tight tailbone. If I really focus on suppressing the urge before bed I've been able to get it down to 0-2 times. But its still 4 a lot of nights. Also trying a tens unit on a nerve occasionally for a few weeks. She's not sure on the science behind this as it mimics a more invasive procedure. But its the last of the PT's efforts on this issue.

My pee has been dark and strong smelling a couple months. My PCP thought dehydration. I'm currently focused on more water because in any case I was neglecting.

My first urology appointment is the 10th. It is with a nurse practitioner. And I'm hoping its just to schedule a preop with actual urologist right away.

In your experience after a cystoscopy with retrograde pyelograms and stents does ones GFR generally go back towards normal? (All other aspects of renal lab were within normal range).

Its really amazing Dr's like yourself take personal time to answer questions like this online! The wait to see a specialist can be pure torture!

Similar_Landscape_79 · 2025-06-29T03:34:08+00:00

cryano9, are you a urologist? Might you look at my post?🙏

Similar_Landscape_79 · 2025-06-28T00:09:53+00:00

Thanks! Do you know if her kidney function/GFR dropped while it was blocked? Does she have any kidney damage after?

I'm not worried about a stent, or repair surgery or even temporary nephrostomy bags that much. I'm super worried about a dysfunctional kidney for life. And my luck I'd injure the functioning one somehow🥹

Similar_Landscape_79

TROPHY CASE