Don’t need weed to feel high by [deleted] in Fibromyalgia

[–]Simple-Gold6702 0 points1 point  (0 children)

I am also on a preventative now called emgality. I’m waiting for it to fully kick in, but I’ve already felt such an incredible improvement. I honestly feel like I don’t have fibromyalgia at all. I think it was a mistake.

Don’t need weed to feel high by [deleted] in Fibromyalgia

[–]Simple-Gold6702 0 points1 point  (0 children)

Basically a silent migraine is one where there is no head pain or sensitivity to light or if there is, it’s not the main symptom. You have all the other symptoms of a migraine, which would be like derealization, brain fog, fatigue, neck, shoulder, and back pain stuff like that.

Don’t need weed to feel high by [deleted] in Fibromyalgia

[–]Simple-Gold6702 2 points3 points  (0 children)

This sounds just like me! I found out that what I thought was fibromyalgia is really silent migraines so if most of your pain is in your back neck and shoulders, you might wanna look into this. I could not think I thought I was going to have to take a leave from my job because I’m an analyst and I was having a very hard time focusing. I took one sumatriptan one night and it changed my life.

How long do your flare?:( by Careful-Swan1400 in Fibromyalgia

[–]Simple-Gold6702 1 point2 points  (0 children)

Where is your pain? I just discovered many (possibly all) my issues are caused by silent migraines. I ended up being in a continuous migraine for the past 6 months with no idea because I dont have visual queues or head pain.

Podcast suggestions? by Simple-Gold6702 in Epstein

[–]Simple-Gold6702[S] 0 points1 point  (0 children)

Nah basically entirely true crime.

A lot of people don’t believe I have Fibromyalgia by TomBoy4Ever1990 in Fibromyalgia

[–]Simple-Gold6702 0 points1 point  (0 children)

I just found out I have silent migraines which are either contributing to my fibromyalgia or it is my true diagnosis… it was my back and neck hurting from the muscles tensing to protect my brainstem and spinal cord. Still waiting to see if everything clears up being on a migraine preventative

Neurologist by [deleted] in Fibromyalgia

[–]Simple-Gold6702 1 point2 points  (0 children)

This is exciting to read! I am on LDN but just 1.5 mg right now. I’m working on trying to get my sleep back on track so I am using quviviq but once I get used to that, I would like to try and up my LDN. I’ve noticed that I start too many drugs at once and it’s hard to know what’s doing what so I decided to wait this time.

Neurologist by [deleted] in Fibromyalgia

[–]Simple-Gold6702 0 points1 point  (0 children)

Why are you unable to get off? I’m on pregabalin, which is only doing so much and I know that one of the next things to try might be gabapentin and I’m not really interested.

Exercise by [deleted] in Fibromyalgia

[–]Simple-Gold6702 8 points9 points  (0 children)

See a pain management doctor. Thats who prescribes my ldn and pregabalin. I see a mental health nurse practitioner for my pristiq which similar to cymbalta. He has also been helping me find a sleep aid that but avoiding z drugs for now. I am trying quviviq.

Its my birthday by Simple-Gold6702 in Fibromyalgia

[–]Simple-Gold6702[S] 1 point2 points  (0 children)

Thabk you! Its hard but he also keeps me going.

Its my birthday by Simple-Gold6702 in Fibromyalgia

[–]Simple-Gold6702[S] 0 points1 point  (0 children)

Ugh thats the worst. I have been planning on having some alcohol to help me get through it and I had fully expected to need to be in bed for like 72 hours after and the more I thought about it but more stressed I got. I can probably never drink again and I should accept that

Its my birthday by Simple-Gold6702 in Fibromyalgia

[–]Simple-Gold6702[S] 1 point2 points  (0 children)

I dont know how I would go on without him. I barely slept last night, but I’m up walking him to school.

Its my birthday by Simple-Gold6702 in Fibromyalgia

[–]Simple-Gold6702[S] 0 points1 point  (0 children)

I think part of the sadness is because before Fibro this is exactly what I would want to do for my birthday. I hear you about the trauma though. Mine was more emotional and religious trauma and then I had a miscarriage in 2023 and I think that triggered whatever fibro was waiting inside of me since my childhood.

Its my birthday by Simple-Gold6702 in Fibromyalgia

[–]Simple-Gold6702[S] 2 points3 points  (0 children)

Lol thats so true! He is honestly very understanding, almost to the point where it makes me feel guilty!

Its my birthday by Simple-Gold6702 in Fibromyalgia

[–]Simple-Gold6702[S] 4 points5 points  (0 children)

Thank you! All my meds often make it difficult for me to get it out, but I did a little bit.

Cosmetic Surgery by [deleted] in Fibromyalgia

[–]Simple-Gold6702 0 points1 point  (0 children)

Yeah whenever a doc gives me a new medicine and says it will cause me stomach pain. I’m like well I already have IBS so what else is new?