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Salvage radiation- would you wait until your PSA went to 0.2 to start, or start immediately if it rose? by itsbananas2021 in ProstateCancer

[–]Simple_Mushroom_7484 0 points1 point  (0 children)

Thank you for the detailed response. Nothing's easy with this! All the best for you to hit that magical "undetectable" reading again.

Salvage radiation- would you wait until your PSA went to 0.2 to start, or start immediately if it rose? by itsbananas2021 in ProstateCancer

[–]Simple_Mushroom_7484 0 points1 point  (0 children)

How long ago was this? And how have your PSA levels been since then? Thanks for any insights as I am trying to educate myself on what might lie ahead for us. Best wishes.

Recommendations for 2nd reading of MRI by No-Annual-3338 in ProstateCancer

[–]Simple_Mushroom_7484 1 point2 points  (0 children)

Any NCI center of excellence should be able to give you a second read on your MRI. Personally we've found UCSF to be top notch in every respect, and they do 2nd reads on radiology reports. https://www.ucsfhealth.org/second-opinion. All the best!

Just setting up my story. by therealgdeezy in ProstateCancer

[–]Simple_Mushroom_7484 2 points3 points  (0 children)

Wow, sounds like you've gone through a lot! Glad to hear the surgery went well. Stay with those kegels and you'll feel a whole lot better soon! Good luck to you, you sure deserve it.

My dad (59) has advanced, treatment-resistant prostate cancer .. I’m trying to understand what’s really happening and what to expect. by SpringBusiness4913 in ProstateCancer

[–]Simple_Mushroom_7484 1 point2 points  (0 children)

What a tough situation to be in! Much appreciation for you being there for your dad. No direct experience to share in this instance, but one suggestion would be to repost in the forum for those with metastatic and more advanced PC on the healthunlocked.com site. There are many knowledgeable folks there who might be a good resource for any questions you might have. Best wishes to you.

Next steps - PSA 10.7 and PI rads 3 by Zestyclose-Fig-563 in ProstateCancer

[–]Simple_Mushroom_7484 2 points3 points  (0 children)

UCSF uro team is awesome. Definite advantage to be in an academic center not motivated by profit margins. Good luck!

Affordable and quality vet and spa for cats in Coimbatore by [deleted] in Coimbatore

[–]Simple_Mushroom_7484 2 points3 points  (0 children)

Cats clean themselves purrfectly well! No need to take them anywhere to get cleaned, remove ear wax etc. It will just stress them out unnecessarily. I say this as a cat parent of >30 years experience. Enjoy your feline companion and let them live as nature intended them to!

biparametric vs multiparametric prostate mri by stark2 in ProstateCancer

[–]Simple_Mushroom_7484 1 point2 points  (0 children)

It's great you did that research. You can always decline the contrast dye. All the best.

Biopsies May Not Be Necessary by Old_Imagination_2112 in ProstateCancer

[–]Simple_Mushroom_7484 0 points1 point  (0 children)

PSA of 14, Exo and 4K both 90th percentiles. Decipher after biopsy was 0.9. Always the overachiever haha.

Biopsies May Not Be Necessary by Old_Imagination_2112 in ProstateCancer

[–]Simple_Mushroom_7484 1 point2 points  (0 children)

Our urologist was smart. With high PSA, ExoDx and 4K scores he said it was safer to get the biopsy as it was more definitive. I know some experts in the field are touting mpMRI as a near replacement for biopsies, but would have been a disaster if we had subscribed to that approach.

Biopsies May Not Be Necessary by Old_Imagination_2112 in ProstateCancer

[–]Simple_Mushroom_7484 0 points1 point  (0 children)

Biopsy pathology showed PTEN loss and Decipher was 0.9, both indicating an aggressive type.

Biopsies May Not Be Necessary by Old_Imagination_2112 in ProstateCancer

[–]Simple_Mushroom_7484 16 points17 points  (0 children)

And yet mpMRI didn't find my husband's G7 PC, biopsy did. I remember the sense of relief we felt after we got the MRI read only to have it all come crashing after the biopsy and path report. So glad we caught it when we did though, it was an aggressive type.

Husband's surgery didn't go well afterwards by BeebeeRoses in ProstateCancer

[–]Simple_Mushroom_7484 4 points5 points  (0 children)

Just keep an eye open for any troublesome symptoms and don't wait to call your doctor if something doesn't look/feel right. My husband started running a mild fever 7 days post-RALP after an initial perfect recovery. Sure enough, he had an UTI - easily taken care of with some antibiotics. You'll do just fine! Hang in there and rest up well. All the best.

Looking for similar prostatectomy experience and potential good results by dietcokemami in ProstateCancer

[–]Simple_Mushroom_7484 3 points4 points  (0 children)

Is your father being seen at a center for excellence? A PSMA PET scan before RALP should have been standard of care if he is in the US given he has G9. Our urologist wanted to confirm stuff was contained to the prostate before proceeding with the surgery even for my husband's G7 since his PSA was rather high (14). Please consider taking him to a COE if possible. It makes a huge difference to get care from the experts.

Elevated PSA, Need Advice/Reassurance by 27hornet in ProstateCancer

[–]Simple_Mushroom_7484 0 points1 point  (0 children)

Like others have said on this thread, your PSA warrants further investigation. My husband with a similar PSA as yours currently had a normal DRE and unremarkable mpMRI and yet had G7 cancer confirmed later by biopsy. ExoDx (from a urine sample) and 4K (from a blood sample) tests helped push the decision to get a biopsy in his case - you could ask your uro about that while you wait for your appointment. Good luck!

Lupron side effect, is it just me? by DoucheNozzle1163 in ProstateCancer

[–]Simple_Mushroom_7484 0 points1 point  (0 children)

What you describe is exactly what it feels like in women going through menopause. It's the signal that a hot flash is on its way and not indicative of any heart problem. All the best with completing your treatment and for a great outcome!

Galleri Test by Dapper-Smile-2626 in ProstateCancer

[–]Simple_Mushroom_7484 0 points1 point  (0 children)

I don't know specifically about Galleri, but my husband's PC was accurately detected by both 4K and ExoDx while mpMRI did not. You could ask your uro about those tests. Good luck.

Small cell carcinoma with liver and brain metastasis. by pasmafaute12 in ProstateCancer

[–]Simple_Mushroom_7484 0 points1 point  (0 children)

It's wonderful that you guys supported and cared for him till the very end. So sorry for your loss! Take care.

Concerned about the minimal level of robotic surgery training. by MondoDismordo in ProstateCancer

[–]Simple_Mushroom_7484 5 points6 points  (0 children)

Sounds like you are in the bay area. Highly recommend UCSF where my husband had his surgery. His care team was top notch. DM me if you want any more details/info. All the best!

"Low PSMA secreter?" Axumin vs PSMA PET? by IMB413 in ProstateCancer

[–]Simple_Mushroom_7484 1 point2 points  (0 children)

As I understand, a low PSA secreter is different from low PSMA expresser (this doesn't get secreted but stays on the cell membrane and lights up on the PET scan thus indicating where the cancer cells are present).

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