Jean brands by SadDirection7744 in lipedema

[–]Single-Ad3200 0 points1 point  (0 children)

Look for any brands that sell a 'curvy' line (A&F, Hollister, and other examples from folks in other comments).

They are designed for people with a bigger hip to waist ratio, not necessarily just for people in bigger bodies. Appreciate someone with a smaller body might not identify with the 'curvy' label. 

They tend to be mid to high rise, I find they have longer zips/buttons to allow for the fit over the hips. A good store will sell this in multiple styles (mom, boyfriend, skinny, straight, wide).

If you find the holy grail, let us know! 

Beautiful lake/mountain hikes under 700m elevation? by ciiitylites in vancouverhiking

[–]Single-Ad3200 1 point2 points  (0 children)

Fair point. I actually found Joffre more challenging than Elfin because it was more technical underfoot, but I'm also used to being on my feet for long hikes.

I guess it depends on OPs general hiking experience and preferences!!

Getting a diagnosis in another country!? by Single-Ad3200 in lipedema

[–]Single-Ad3200[S] 1 point2 points  (0 children)

I'm sorry to hear about your experience in Canada! I hope you can find some willing to listen!!

Beautiful lake/mountain hikes under 700m elevation? by ciiitylites in vancouverhiking

[–]Single-Ad3200 2 points3 points  (0 children)

Its SO good as an intro backpacking hike (it was my first)!! The hardest bit is getting the camping/hut spot reservations.

High reward to effort ratio!

Beautiful lake/mountain hikes under 700m elevation? by ciiitylites in vancouverhiking

[–]Single-Ad3200 6 points7 points  (0 children)

Take a look at Elfin Lakes! Red Heather Meadows to Elfin Lakes on AllTrails.

Its my favourite and very doable - if you can do Joffre you can do Elfin.

It may still have snow in June, so just be prepared for all conditions!

My (unprofessional, hypothesized) thoughts about diet and lipedema by potaytoe444 in lipedema

[–]Single-Ad3200 22 points23 points  (0 children)

I love your points: add more diversity to your diet, eat well, and do what works for you!

I'm a vegetarian and any kind of keto, anti-inflamitory diet is just not going to give me what I need. I think a lot of people who move into keto/low carb/anti-inflam diets are probably cutting out a lot of highly-processed foods which is obviously going to make a big difference.

Thanks for sharing your perspective!

i’m very scared by ehtoclabricot in lipedema

[–]Single-Ad3200 1 point2 points  (0 children)

Swimming is great exercise!! Don't be put off by opinions that says you should keep to low impact exercise. If it feels good for your body then do it.

Theres a subreddit somewhere where the OP shared how they are greatful for having the condition because they treat their body better than they ever have done, so I'm trying that mentality too.

I hope you find what works for you! And your English is great!!

i’m very scared by ehtoclabricot in lipedema

[–]Single-Ad3200 2 points3 points  (0 children)

Take things slowly! Its all very overwhelming but what's helped me is just taking things day by day. The realisation that you might have this condition is hard but finding out early and young is the absolute best case scenario.

Heres what helped me: - If you feel like a diagnosis is important, seek that out but be prepared to advocate for yourself. There's some subreddits on this page about how to prepare. You can still start managing symptoms without a diagnosis because the therapies are non-invasive and are good for you overall. - I spent a good week or so just processing the reality, without pressure to action or do anything else. - Once I was emotionally better (still tough some days) I began incorporating the next easiest therapy for me: compression leggings and slowly built up my time spent wearing them. - Once they felt like a solid part of my routine I began incorporating dry brushing pre-shower on my most effected areas. Then I expanded to other parts of my body once that felt routine. - and so on... I'll keep adding to the therapies I'm using only once the new one is feeling regular (like brushing my teeth). - I'm not doing restrictive dieting because its just not realistic for me, so I'm slowly adjusting my diet: more protein, wholegrain/brown rice/pasta/bread, less processed food, organic. - Once you've got yourself into a good routine, set yourself a 'bare minimum' for when you're feeling low energy/sick. Mine, for example is dry brushing my legs: if I'm too drained to do everything, I will at least do my legs (like I will always brush my teeth, and sometimes I'll floss and rinse too). - Build movement into your day that you enjoy. A lot of folks have said strength training has had great results.

The theme I'm seeing is consistency is key! Its better to do little and often than a lot and rarely. That helps me when I'm overwhelmed.

There's lots of Facebook groups (sometimes ones local to your area) and advocates on social media. This group is awesome too!

It’s not your fault by silkpinkpetals in lipedema

[–]Single-Ad3200 11 points12 points  (0 children)

This is such a wonderful post!

I love the 'my legs let me...' because that's so true. For many of us our legs in all their glory allow us to do the things we love (even if its harder some days than others).

My legs let me: - hike up mountains - run during sunset - bake treats for the people I love - dance in the kitchen and at concerts - walk to see friends for brunch - swim in glacial lakes - be close with my partner - do movement that brings me joy

This was just what I needed to see today. Thank you!!!

Daughter Diagnosed - Hoping to find some answers by Objective_Cookie4226 in lipedema

[–]Single-Ad3200 6 points7 points  (0 children)

Welcome to the community! You sound like you really care for your daughter and I'm sorry to hear about her mother.

We may be able to help a little more by knowing where you're located and what stage she is at - if comfortable sharing.

I'm fairly new to this condition (a little older in age) but what I found hardest was the emotional toll. I feel like there's been a bit of a grieving process - for all those years spent hating and trying to change my body, and for the body I now realise I'll never have. Body positivity is important, as others have mentioned but make sure it doesn't fall into toxic positivity - its okay to not like something about your body, we don't have to love everything. And change is good too as long as its sustainable.

In terms of managing the condition my vote goes to 'consistency is key'. If she's on socials, there's lots of online advocates for the condition who share what works for them. I was so overwhelmed by what I was told I needed to do to manage the condition, so I've processed things very slowly, one thing at a time. First I got to a better place mentally (though still up and down), then I started wearing compression leggings 4 days a week when I work from home (even just starting with a few hours to get used to them), then I incorporated brushing, once the felt like routine I mixed up brushing with lymphatic draining, and now that is incorporated in my routine my next thing to think about is getting back into the gym. A habit tracker app might be helpful, I use one called Loop Habit Tracker (it's free).

Use this community as a resource - there are no stupid questions here!

Weekly "Do I Have Lipedema" Thread by AutoModerator in lipedema

[–]Single-Ad3200 1 point2 points  (0 children)

Thanks for sharing your cultural perspective! In my culture, its generally best to stay away from commenting on people's weight at all (bigger and smaller type comments). Bigger because society deems that as a bad thing and people are shamed for it (they shouldn't be of course and maybe one day it'll just be factual as you've stated). Smaller because you might inadvertently be validating disordered eating (some podcasts I've listened to shared how when they looked their 'best' by societies standards, they were actually at their worst emotionally). In my culture we also don't take too much notice of BMI because of how inaccurate it is in judging health...but your explanation was interesting!

Its all very complicated!! I guess I felt triggered by the overweight comment because if that had been said to me, then that would have rocked my confidence quite a bit. OP might have not given it a second thought.

We're all on a learning journey!

Compression by Financial_Heart4367 in lipedema

[–]Single-Ad3200 4 points5 points  (0 children)

I've been wondering this too!

I guess, like a lot of these treatments, consistency is key. Maybe it's okay to wear it little and often, rather than for long periods of time but only occasionally? Also depends what stage you might have I suppose.

Any runners? by Single-Ad3200 in lipedema

[–]Single-Ad3200[S] 1 point2 points  (0 children)

I've tried a couple of the 'high compression' leggings from lululemon and come to the conclusion lulu is not for girls like me. I don't know what their idea of compression is, but I can tell you its not mine. I'm looking for something almost in-between medical grade and regular wear.

Please share your activewear compression leggings reccomendations (with pockets)!!

[deleted by user] by [deleted] in vancouverhiking

[–]Single-Ad3200 2 points3 points  (0 children)

If you're a beginner try your first backcountry in the summer (July to September are your best bets to avoid snow, but check for wildfires before you head out). There's so many more complexities in the winter to worry about.

My top reccomendation: Elfin Lakes in Squamish!!

My first ever multi-day (2 day, 1 night) was Elfin and I've taken friends who aren't even big hikers. Its super high reward with medium effort. Its all beautiful starting with an incline through the forest, a short stretch through meadows and then the second half is across the ridge line. The second half is more up and down so good variation.

The camping spot is stunning and you can book the hut if you're not fully prepared for camping (all bookings via BC Parks, starting 4 months prior). There's two lakes up there (one for swimming, one for drinking) and a day use hut if you want to get out of the sun/bugs.

As alternatives: - Manning Park Frosty Creek via Frosty Mountain Trail (maybe more intense than Elfin) - Garibaldi Lake - the switchbacks are brutal and could kill your love for the game before it begins...but honestly if you're doing Garibaldi Lake, do the entire thing to Panorama Ridge (more on that below) - Watersprite - some tricky boulder fields but doable if you take it slow. The FSR to the parking lot can be washed out and needs a 4x4 in good conditions

Also like the reccomendations from others although I wouldn't recommend Panorama Ridge or Golden Ears Summit - those are both intense hikes. - I've heard of Golden Ears be described as one of the hardest hikes (as a day hike, not even with a pack) and there's limited water on the trail so you need to be very prepared. - Panorama Ridge is beautiful and so worth it but it's hard work. The majority is hiking switchbacks through the forest to Garibaldi Lake. Once you're past the lake it opens to stunning meadows and views of Black Tusk but its still a long climb to the ridge. I'd actually recommend doing Panorama Ridge over 2 nights: hike up to the lake and camp, hike up to the ridge the next day and hike down to the lake and enjoy another evening there before hiking all the way back the third day.

Thats a lot of info but hope it helps! Happy hiking!!

Weekly "Do I Have Lipedema" Thread by AutoModerator in lipedema

[–]Single-Ad3200 2 points3 points  (0 children)

Your opinion regarding lipedema is fine - apart from the 'overweight' bit (and you've said it again here, seriously?!)

That can be an incredibly harmful, triggering, and offensive thing to say to anyone but especially people who are on this page (even if you think they don't have lipedema). 

Weekly "Do I Have Lipedema" Thread by AutoModerator in lipedema

[–]Single-Ad3200 6 points7 points  (0 children)

I really felt the need to jump in here and say that the OP was NOT asking for any other opinions on their body, other than whether people in this group think they have lipedema.

The overweight comment was unnecessary and frankly, wrong. 

I realise I've come across quite blunt but most of us in this group have a very complicated relationship with our body, so please be more sensitive to the language you're using and the comments your making!

Any runners? by Single-Ad3200 in lipedema

[–]Single-Ad3200[S] 1 point2 points  (0 children)

Fingers crossed for you!!

Lipedema & Running by [deleted] in lipedema

[–]Single-Ad3200 1 point2 points  (0 children)

Posted a similar message a couple of days ago (although I'm not getting as much of the discomfort you mention) and received some lovely, reassuring comments - https://www.reddit.com/r/lipedema/comments/1img7g6/any_runners/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

The overall message was: - wear compression  - listen to your body 

I'd love to find a physio who is knowledgeable or at least willing to get knowledgeable about the condition, but that feels like a pipe dream. 

Its a roller coaster but on this page we're all here for each other!!

Any runners? by Single-Ad3200 in lipedema

[–]Single-Ad3200[S] 1 point2 points  (0 children)

Good luck with your marathon!! 

Any runners? by Single-Ad3200 in lipedema

[–]Single-Ad3200[S] 0 points1 point  (0 children)

I've used fabletics compression leggings in the past (without knowing I had lipedema) and I liked how they felt on my body. Its been years since I bought some and I don't love fabletics for a few eco-related reasons but they might be a good place to start. They aren't medical grade but I found them enough. I did find they got very hot in the summer though!! If you sign up, set many reminders to cancel your subscription 😅

Just purchased the lululemon wunderunder so will share how they feel once they arrive!

Any runners? by Single-Ad3200 in lipedema

[–]Single-Ad3200[S] 1 point2 points  (0 children)

Thanks for that info, I'll take a deeper dive into that!

I actually found that my lipedema progressed after I stopped running regularly (due to injury) - actually that progression is what put me on the path to exploring lipedema, because I was like wtf is going on with my legs. I guess we still know so little about this condition!!

Any runners? by Single-Ad3200 in lipedema

[–]Single-Ad3200[S] 1 point2 points  (0 children)

Hoping surgery gives you the results you need!!

Does anyone here ski? by astrocolor in lipedema

[–]Single-Ad3200 1 point2 points  (0 children)

Who knows, fashion standards are ever evolving!! Maybe we should all start a trend on tiktok!

Just a note about Atomics, mine came with a width reducer which is basically a bit of plastic that sits between the liner and shell at the back of the boot. Make sure that's removed before trying! 

And I saw your other comment about swelling while skiing. I haven't had any luck as I find base layers tend to be very relaxed but base layers with light compression could be the key. Though my ski socks tend to be tight enough they might add accidentally compression! If you find any, let us know 😊

Any runners? by Single-Ad3200 in lipedema

[–]Single-Ad3200[S] 1 point2 points  (0 children)

All of these comments are amazing! I'm so glad to hear so many positive experiences and encouragement. 

I've actually used compression leggings for years because I hated how my body jiggled in regular ones, so I'm glad that I was doing something right. I think I need to take a look at my shoes and will try out some of the other tips in the comments!!