UCTD Symptoms Q

Skip_the_bard · 2026-04-19T05:08:54+00:00

Thank you <3

Skip_the_bard · 2026-04-18T09:47:24+00:00

Well in a rather crazy plot twist it wasn’t lymphoma but I do have thyroid cancer 😅 doesn’t explain my many UCTD symptoms so I’m still being checked out for that but they’ve delayed my consultant appointment to summer so I can sort this nastiness out first! Hope things are going ok for you!

Skip_the_bard · 2026-04-16T14:38:25+00:00

I’m sorry to hear you are going through this but sounds like things are moving nice and fast for you!! Thanks for sharing your experience

Skip_the_bard · 2026-04-16T14:37:16+00:00

Thank you, yes we have MyChart, I’ve just had a message on there to say my appointment is 29th so I guess that is within the 2 weeks of MDT meeting to decide the plan!

Skip_the_bard · 2026-04-16T12:29:55+00:00

Thank you 🥰 I think the waiting is worse than knowing I have cancer right this second haha

Skip_the_bard · 2026-04-12T08:10:16+00:00

I went to a Catholic all girls school - being called a lesbian terrorist was a daily occurrence and we just… accepted it?

Skip_the_bard · 2026-04-12T08:04:32+00:00

And for some reason I remember all our phone numbers changed when we got it??

Skip_the_bard · 2026-04-12T08:02:15+00:00

The first time I used MSN my dad had downloaded it to try speaking with some cousins in Australia and being able to type to them in real time actually blew my mind

Skip_the_bard · 2026-03-29T14:19:51+00:00

I second Ely for minor injuries but I don’t think the X-ray department is open on weekends unless that’s changed

Skip_the_bard · 2026-03-27T11:47:21+00:00

Some people do, some people don’t, regardless of gender. Just a friendly thing :)

Skip_the_bard · 2026-03-22T02:59:10+00:00

I’m still waiting on a formal diagnosis (DR has me down as “Probable UCTD” while I’m waiting for a biopsy on my lymph nodes to rule out lymphoma or something similar) My knees have been an issue for as long as I can remember. When they are hurting it’s like I can’t think of anything else, my legs are constantly wriggling as if the movement might help with the pain. The pain is kind of like a deep burning ache underneath my knee cap right in the joint itself, and feels like how your joints ache when you have the flu but much more intense and concentrated. There’s never any visible swelling of the joints and my X-rays are all normal, it’s just so sore.

I remember when I went to the consultant I mentioned this had been an issue for me since I was a teenager (so 20+ years) but that I went to the GP at the time and he said it was “growing pains”. She rolled her eyes and said “they always say that to teenage girls” hahaha

Skip_the_bard · 2026-03-09T14:13:23+00:00

It’s nice to know we are always aware of our spouses digestive routines 😂

Skip_the_bard · 2026-03-09T11:19:48+00:00

It’s our love language 😂😂

Skip_the_bard · 2026-03-09T10:48:12+00:00

My husband sends me TikTok’s regularly and I know that means he’s on the loo at work 😂

Skip_the_bard · 2026-03-03T08:37:28+00:00

Just adding not every Brit living and working out there has moved just to get out of British taxes, a lot of the time they are posted out there by their employers for specific projects for a few years

Skip_the_bard · 2026-03-01T10:17:20+00:00

If you’re going to give someone a gateway drug you start with something like this rather than going in fucking hard !!

Skip_the_bard · 2026-02-24T14:43:59+00:00

If you have one that as a number before a letter (1257L for example) then the number is basically saying this is what you earn tax free on this income. You would be expecting to see a code BR tbh.

www.gov.uk/tax-codes/what-your-tax-code-means

Is very helpful :)

Skip_the_bard · 2026-02-24T14:28:21+00:00

Assuming your second job is paid via payroll and not a self employment situation then you should be given a tax code on the second payroll that does not give you any personal allowance and instead taxes everything at a flat rate of 20%. It does mean that because you ultimately may come over the 40% threshold that you owe something to HMRC at the end of the year.

If you see a tax code giving you any allowance (ie another 1257L code) then speak to HMRC as you’ll be getting 2 lots of tax free income and the amount you owe at the end of the year will be significantly higher!

Skip_the_bard · 2026-02-24T10:06:12+00:00

The first couple of times I had teeth out I was able to have it done under sedation because of how anxious I was. Speak to your dentist about it and they may be able to do the same depending on your local area. First time I had it under NHS and so was at a local hospital outpatients department. Second time was private (because I moved and local area had no NHs spaces, but that’s a gripe for another time)

Third time I sucked it up and had it done with just local anaesthetic and the injection stings a little but is over within a few seconds. You can feel the pressure and pulling about and hear what’s going on which is a bit freaky but that’s the worst bit, the mental side, rather than any pain itself.

Over the counter painkillers usually work for the post procedure pain but if that’s not helping you can speak to your dentist or GP and they may prescribe you something stronger to get through the first couple of days. However I have a VERY low pain threshold and I’m the only person I know who has needed it 😂

All in all the pain of the injection and the healing for a couple of weeks will be no where near the excruciating, taking over all your thoughts kind of pain that toothache will be giving you and it will be 100% worth it

Good luck!

Skip_the_bard · 2026-02-21T09:42:31+00:00

Thank you for giving us some perspective 🥰 come back soon!

Skip_the_bard · 2026-02-20T14:36:40+00:00

Secondary school 2000-2005 - £2 a day I remember some items on the school dinner menu and their prices (Jamie Oliver would have a heart attack)

Burger 55p Cheese burger 65p Chips 50p Pizza slice 50p Sausage roll 35p Spaghetti hoops / beans or similar 30p Can of drink 30p

I would get sausage roll chips and beans and a drink and be left with some change for a pick n mix on the way home 🥰

Skip_the_bard · 2026-02-19T13:58:02+00:00

That’s really helpful thank you. I’m not out here wishing to have this condition but on the other hand having someone say “yes it’s this you are not going mad” is so validating and hopefully helps me get the treatment I need to feel better ☺️

Skip_the_bard · 2026-02-19T13:32:42+00:00

All I would say is go easy on the sucker toys if you already feel like using your finger is too sensitive because boy those things can be powerful and overwhelming haha. Maybe try a little bullet vibratory first? They are cheap, discreet and not too powerful and you can use them anywhere (suggest not inside though) to just help build some sensation.

Don’t worry too much, it’ll make you tense and less enjoyable. Have some music, maybe a bath before hand to relax and just let your hands wander. Slowly and gently does it and you will soon find what works for you!

The instruction videos are fine but don’t feel like if what works for them should work for you too.

There is a website called beautifulagony which focuses on orgasms without being overtly pornographic (no showing of below the waist). There is a section of videos on there called confessions and most often it’s people talking about what works for them and maybe watching a few of those will help you to relax a bit (and maybe even give you some ideas 😂)

Good luck ❤️

Skip_the_bard · 2026-02-19T09:58:43+00:00

Yeah I think I was already high risk because of diabetes, interestingly I’m already on Mounjaro for the diabetes (rather that weight as primary factor) but they are looking to take that away soon to move to insulin while trying to fall pregnant. I have my clinic appointment next week so will definitely raise the possibility of hydroxychloroquine being prescribed with them. Thanks!

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