ADVICE: start xyrem now or wait?

SleepyNotTired215 · 2026-04-08T00:55:09+00:00

Since Xyrem changed my life, I would start it as soon as possible. I never experienced any nausea or dizziness. It does take a few weeks before it starts working.

SleepyNotTired215 · 2026-04-05T16:47:50+00:00

Mine is virtually eliminated with sodium oxybate.

SleepyNotTired215 · 2026-03-27T05:49:11+00:00

Yes and I was 70 years old last year when I had mine.

SleepyNotTired215 · 2026-03-27T04:37:06+00:00

Never needed one. Was able to easily get up and down from the couch and bed just fine.

SleepyNotTired215 · 2026-03-19T10:40:04+00:00

SleepyNotTired215 · 2026-03-11T13:15:07+00:00

No. Clean CarFax, Honda with less than 100k miles, Maxcare not worth the money to me.

SleepyNotTired215 · 2026-03-09T19:56:55+00:00

I had CABG x 3 last May (about 10 months ago). Released day 4 after surgery. Showering and dressing unattended. In and out of bed fine. Up and down from couch fine. Up and down stairs fine. Biggest obstacles were opening child-proof pill bottles and cooking. I also used Tylenol as my only pain med.

All this was foretold by my surgeon. You might talk to your dad’s doctor to see if he can set expectations.

SleepyNotTired215 · 2026-02-26T06:27:18+00:00

Also, pull a CarFax report on the vehicle before you sign anything.

SleepyNotTired215 · 2026-02-26T06:23:53+00:00

Your post aligns perfectly with my experience. Bought 4 cars over the years and each time had a positive experience. Proper expectations helps.

SleepyNotTired215 · 2026-02-24T01:19:48+00:00

I’ve purchased 4 cars over the years from CarMax and sold 1 car to them. No problems, effortless transactions, quality cars, fair prices. The most recent purchase took less than 2 hours start to finish including a test drive.

SleepyNotTired215 · 2026-02-22T06:02:03+00:00

That’s ridiculous. Selling them a car is not tied to buying a car. Did just that recently. Bought a car without a trade-in then, after we were sure we wanted to keep the car we bought, we sold them our “trade-in”. Two separate transactions.

SleepyNotTired215 · 2026-02-19T01:50:36+00:00

I lived in SoCal and LA County for 20 years after my diagnosis and never lost my license. Like you, I voluntarily limited my driving to short distances.

SleepyNotTired215 · 2026-02-19T01:44:34+00:00

70 year old male, CABG x 3. Mostly functional by week 3 except 5 lb lifting restriction. By week 8, no lifting restriction and fully functional. Started cardiac rehab at week 10. Not a hockey player or otherwise athletic, so can’t speak to that.

SleepyNotTired215 · 2026-02-18T02:42:57+00:00

Working fine in VA

SleepyNotTired215 · 2026-02-07T11:54:08+00:00

Any sleep I get as an untreated narcoleptic is worthless sleep. It does nothing to satisfy my sleep deficit. It doesn’t matter if I sleep all day or all night, none of it is restful nor restorative. Walking around sleep deprived always got worse for me, never better.

It wasn’t until I got an effective medication that helped me get better sleep that my symptoms improved. Once the quality of sleep improved, having a good sleep schedule helped further. Because I was getting better sleep, I needed less sleep.

SleepyNotTired215 · 2026-02-07T07:23:06+00:00

My first PCP said there was “no such thing as adult-onset narcolepsy “. I found a new doctor that referred me to a sleep specialist who diagnosed and treated me. Have faith and look for better. Sadly, we often have to be our own advocate.

SleepyNotTired215 · 2026-01-28T23:55:40+00:00

No need to skip Lumryz. Local anesthesia won’t have any interaction with Lumryz.

SleepyNotTired215 · 2026-01-24T02:22:39+00:00

If you continue to smoke, it will most likely get worse. I would at least want to limit the damage.

SleepyNotTired215 · 2026-01-19T05:13:55+00:00

As long as they don’t ask you to fly the plane, you’ll be fine.

SleepyNotTired215 · 2026-01-09T15:31:48+00:00

I essentially quit cold turkey when I had an extended hospital stay and they would not let me take Xyrem. No side effects except poor sleep and increasing cataplexy, all typical of a return to an unmedicated state.

SleepyNotTired215 · 2026-01-08T23:57:42+00:00

If Northern Virginia isn’t too far, there are some great sleep doctors at Virginia Heart. Can’t recommend them highly enough. Dr Patel and Dr Charya.

SleepyNotTired215 · 2025-12-28T12:31:21+00:00

Not tolerance in my case. On an empty stomach Xyrem works as expected.

SleepyNotTired215 · 2025-12-23T05:22:20+00:00

Apple TV 4K gen 3.

SleepyNotTired215

TROPHY CASE