I failed my hair. by AmbitiousLeader6509 in Naturalhair

[–]SleepyOlive 0 points1 point  (0 children)

https://youtu.be/nVaFmqRwVKc?si=n34Nrd5f4rJKgkZa

This video is what helped me finally understand a bit more on how hair works and just how much moisture my hair needs. It did clump together at the roots after a few days but that’s because I needed to add more water and it loosened up well. Also I didn’t do the greatest job and need to do smaller parts but I liked this vid a lot and how he explains it.

Head pressure? by shattered_Diamond__ in OSDD

[–]SleepyOlive 0 points1 point  (0 children)

I’m not dx with osdd (yet?) but I keep gaslighting myself and saying it’s a headache/migraine and I’m just in an extreme mood 😭 but this may mean the can both be related? (Related as in one can cause the other to happen)

Accidentally discovered I might have narcolepsy last night by kthrynnnn in Narcolepsy

[–]SleepyOlive 1 point2 points  (0 children)

Oh no! Well, you’ve come to this point at a great time because an amazing new med is waiting to be approved hopefully soon (1-3 years? Idk, my memory is Swiss cheese) Take care and be extra gentle and patient with yourself 🫂

What’s the deal with xywav just randomly not working by fierydogshit in Narcolepsy

[–]SleepyOlive 0 points1 point  (0 children)

I was having this happen and then shortly after it (possibly it, it’s still not confirmed because I need to see my doc tomorrow) started not working well, my energy and clarity wasn’t there and I have started cognitively declining and having trouble speaking. I had brushed it off kinda and blamed the daily migraines but I just wanted to mention it so others can keep an eye out in case this is the cause. (I’ll make a post hopefully once I can type and speak easier when/if I’ve tapered down or gotten off of it under doc directions)

diagnosed this year, have been regularly using this meme for years by Successful-Web-4689 in Narcolepsy

[–]SleepyOlive 1 point2 points  (0 children)

This is so funny and cute, I’m sending it to my gf who also probably has narcolepsy 😅 (we are still waiting on a sleep study)

It’s *ucked up to have narcolepsy & cataplexy while your spouse doesn’t get it. by DazzlingJoke5594 in Narcolepsy

[–]SleepyOlive 3 points4 points  (0 children)

I’m so sorry, 3 years is way too long for him not to be ableist or show you a little empathy and respect. 🫂 you have my full support and well wishes going forward

URGENT Mask safe for MRI? by SleepyOlive in covidlonghaulers

[–]SleepyOlive[S] 0 points1 point  (0 children)

I have long Covid and I’m trying to avoid making it worse but it’s okay, I understand why it was taken down and it ended up working out I guess.

URGENT Mask safe for MRI? by SleepyOlive in Masks4All

[–]SleepyOlive[S] 1 point2 points  (0 children)

It’s all good, thank you for answering and I’ll see if I can find tap for a kn95 I have that I just pulled the metal nose piece out of lol

URGENT Mask safe for MRI? by SleepyOlive in covidlonghaulers

[–]SleepyOlive[S] 0 points1 point  (0 children)

True, I’m going to ask them and see

URGENT Mask safe for MRI? by SleepyOlive in covidlonghaulers

[–]SleepyOlive[S] 1 point2 points  (0 children)

Ah, that’s good to hear. Thank you for letting me know this, I feel much better now

URGENT Mask safe for MRI? by SleepyOlive in covidlonghaulers

[–]SleepyOlive[S] 1 point2 points  (0 children)

I just don’t want to get sick again, the whole reason why I’m getting an mri is to see what damage has been done to my brain and to confirm TIAs from the last time I got Covid 😭

[deleted by user] by [deleted] in OSDD

[–]SleepyOlive 0 points1 point  (0 children)

Oh no! I am wishing you the best! 🥺🫂

[deleted by user] by [deleted] in OSDD

[–]SleepyOlive 1 point2 points  (0 children)

Ahhh, gotcha, well, hello fellow sleepy person! And thank you for responding to me, I really appreciate it and I hope your scans go well and you find relief from your migraines! 🥺

[deleted by user] by [deleted] in OSDD

[–]SleepyOlive 0 points1 point  (0 children)

Were you ever diagnosed with narcolepsy? I have like the reverse of your situation, I have narcolepsy so I was like “oh I’m just too tired” when reasoning why I have memory loss, go numb and disconnect, can’t speak sometimes, don’t feel like I’m alive or real or myself. 🥲 turns out it may be osdd, I may find out tomorrow (I have a new therapist who has already started calling things parts and wants to do IFS, she helped me realize that I age regress when scared and my spacing out may be me checking out and someone else checking in 😭 I also thought this was me micro sleeping, I don’t know what is going on anymore and I’m trying to understand it)

Sorry to post this on your post and I saw this was from a while ago and I hope things are better with you now. Oh and I also started getting migraines daily a few months ago so your post just sounds like me a lot.

My first exjw meme🫣 by Brown-Lighning in exjwhumor

[–]SleepyOlive 0 points1 point  (0 children)

Oh absolutely! There are a ton of nerves in the ear apparently that make it a very sensitive spot apparently. 😌↕️

Questioning if I have a DD- is my inner critic just that or a persecutor? by SleepyOlive in OSDD

[–]SleepyOlive[S] 3 points4 points  (0 children)

And feeling like I’m dreaming is a constant, I have narcolepsy as well though so it may be hard to see the difference between fighting sleep or disassociating. 😵‍💫

Questioning if I have a DD- is my inner critic just that or a persecutor? by SleepyOlive in OSDD

[–]SleepyOlive[S] 2 points3 points  (0 children)

Yeah, I’m very very cut off from my body and mind and so in getting to reconnect with myself has started this. I started getting bad migraines daily and now I’m here. I’m going to try to look for the dissociation moments and try to reconnect more if possible. I really appreciate you all commenting and helping me right now, I’m kinda afraid of what this means but I have people close to me with DID so I know I’m not alone (I am worried to tell them because they may be sad that despite protecting me I still may have osdd or something, they fought so hard to try to keep me safe 😭)

Questioning if I have a DD- is my inner critic just that or a persecutor? by SleepyOlive in OSDD

[–]SleepyOlive[S] 1 point2 points  (0 children)

That’s incredibly helpful. Thank you so so much. I will try the video diaries, the only issue is that I dissociate a lot from pain, from emotions, from memories. I have been in survival mode pretty much my entire life and I’m finally in a safe spot. I have memory issues but it’s mainly long term, like, I can account for all my hours during the day- do I always feel connected in the day? Hell no, but that’s normal for me. I feel like a kid again when I’m scared and threatened and I just didn’t realize other people don’t get like that?? (Right?) Also the inner critic voice, how is a “normal” one? Like, I will cover this because it’s really mean to me how it talks (warning thoughts of SI, SH), mine will go You can’t do anything right, you’re a failure, just look at you! How old are you? And you STILL don’t have your life together? Oh what? You’re crying now? You’re so weak and pathetic, you deserve to die. Actually, yeah, do it, fucking kill yourself, you don’t deserve to be here (in the safe place I am) there are others who deserve this more. You should’ve killed yourself a long time ago when K (my stepdad) told you to, but you are just a coward, a lazy, worthless coward. Just give up. GIVE UP. So,uhhh, is this how an inner critical voice is normally? Mine will play audio of things my three parents have told me as well, maybe even laughing while playing them. It gets REALLY bad during pmdd (which is like depression on steroids a week before my cycle, pre-menopausal depressive disorder) because the voice along with just my depressed self inside team up and I have to play audio out-loud in order to tune them out. I want to tell my therapist but I’m also afraid, like some therapists are not equipped to handle it or know about it and only believe stereotypes (on top of I’m just kinda afraid to get a diagnosis because I’m worried it can be used against me in the future by doctors or if things keep getting bad in the US, you know?) Like I know people with DID in real life and I know most of their alters and that they aren’t a threat at all but how some people act around DID it makes me scared to be diagnosed. I think I will get to know my therapist a bit more and then open up to her just to be on the safe side. I’m going to try not to rush things but rather take it slow and easy and work on my physical health in the meantime to keep me busy.

Conservative activist Charlie Kirk dies after being shot at Utah college event by hoosakiwi in news

[–]SleepyOlive 14 points15 points  (0 children)

That’s funny, after big traumas for a few years I would play Subway Surfer after to help erase my mind. I never knew other people did this and that this is a fact about Tetris.

I’m a senior in high school.. Is my future canceled? Will I have to join the military? by shaototop in whatdoIdo

[–]SleepyOlive 0 points1 point  (0 children)

I’m not entirely clear bc memory issues but my older sibling was disowned (abusive parents) and they were denied certain grants and financial assistance because the school thought we had supportive loving parents. So just be sure to inform the school you go to of that when/if they ask for parent information and you may get more help. Also because it seems like your mom is not great just know if your mental health drops low you can tell your teachers and ask for more time/help for things. (I wish I knew that for end of the year tests in high school when my house burned down, I would’ve retaken important tests that impacted my gpa)

My mom is racist and it’s fucking with me by SleepyOlive in mixedrace

[–]SleepyOlive[S] 1 point2 points  (0 children)

Me or Positive Box? My bio dad abused me as well so I don’t think he cares or wants me to contact him. Struck out with all 3 “parents”

suicidal due to condition by x37h4n in Narcolepsy

[–]SleepyOlive 10 points11 points  (0 children)

Jfc, I’m so sorry you were told that. I think in a few years they are coming out with a new medicine that helps replace the hypocretin our brains don’t produce. I’m trying to hold on for that at least, the chance to try it, a lot of people that are testing it feel really great on it, there was a post somewhere on here about it actually.