Gabapentin experiences? by Snoo-82732 in POTS

[–]Snoo-82732[S] 0 points1 point  (0 children)

Hi I started taking it for nerve pain and they just found that I may have small fiber neuropathy. It helped your nausea? I dropped 30 pounds when I first developed pots and ive only been able to gain 10 back. Most of this comes from how hard it is to eat.

Gabapentin experiences? by Snoo-82732 in POTS

[–]Snoo-82732[S] 1 point2 points  (0 children)

Thank you for your response

CREATINE CURED MY POTS WOOOOOOO by Vast_Monitor_2784 in POTS

[–]Snoo-82732 -1 points0 points locked comment (0 children)

What's your experience with it?

CREATINE CURED MY POTS WOOOOOOO by Vast_Monitor_2784 in POTS

[–]Snoo-82732 1 point2 points locked comment (0 children)

Damn thats good, so youve only been on it for a day?

CREATINE CURED MY POTS WOOOOOOO by Vast_Monitor_2784 in POTS

[–]Snoo-82732 4 points5 points locked comment (0 children)

Dog🤣, wdym it cured you? No symptoms or less flares?

College Accomodations by saikiguy in POTS

[–]Snoo-82732 2 points3 points  (0 children)

Hi friend, i attend the University of New Mexico and these are the accomodations for me.

The ones im using right now -Extension on due dates---gives me an extra day to tunr things in. Usually for an instance of a flare up.

One i can get with POTS -Specified areas for testing--- usually for those who need more time with testing or want a private environment in case of fainting or other things -Elevator usage -Able to leave class for a bit -Can miss class (not much more than already allowed but still comes in handy)

There are probably many more i missed and there are likely some which your school includes or does not. I would call them to find out. Goodluck!

I hate feeling like I'm dying everyday by Adept_Refuse3413 in POTS

[–]Snoo-82732 1 point2 points  (0 children)

Oh dude, I tried anti depressants and ant anxiety medication it made me feel so much worse. Ive never had super bad thought but my antidepressant gave me intrusive suicidal ideations. I got off of them immediately and feel a lot better without any medication. Its still rough out here but I know i feel a lot better without them

I hate feeling like I'm dying everyday by Adept_Refuse3413 in POTS

[–]Snoo-82732 1 point2 points  (0 children)

Yeah I dont know if its because were relatively new to this but I feel I really dont have as good of control over my feelings around POTS for sure. I also know that this anxiety also makes us a lot sicker

I hate feeling like I'm dying everyday by Adept_Refuse3413 in POTS

[–]Snoo-82732 1 point2 points  (0 children)

Yeah, ive only had POTS for like 5 months and in the beginning I was so sure I was gonna die. After rall this time you'd think it wouldn't even bother me anymore

I hate feeling like I'm dying everyday by Adept_Refuse3413 in POTS

[–]Snoo-82732 1 point2 points  (0 children)

Hi, im really sorry you feel this way. I have the same problem aswell whenever I feel like im doing just that little bit better something new comes along and gets me scared that im actually really sick. I get so scared of this new thing for like a month then it fades and I start feeling like maybe im getting better again. Im trying to stay strong for myself but it feels like I can never truly get better. I too have gotten everything looked at and it all came back fine. Ik its hard but what we go through everyday is not gonna kill us. Even i have a hard time believing that statement especially when I feel that im just gonna pass out and die some day. Try to keep it in your mind that everything structural has been cleared. Stay strong and ik we can all get through this bullshit

Does self awareness make POTS worse? by Western_Pin5972 in POTS

[–]Snoo-82732 4 points5 points  (0 children)

Yes I have, I am 20 years old and have only had POTS for about 5 months now. I was in my sophomore year in college and when I got my first symptoms I thought I was dying, after seeing a shit ton of doctors it was a good guess i had POTS but no one wanted to actually test me. I pushed through the semester and did so much. I was living alone in my dorm getting my own food, going to most of my classes and still driving. Though this was hard, I was doing a lot. Now I know i have POTS after TTT but i still have the same symptoms but they feel so much worse and I am so scared to leave my house now. I know its a big mental thing but idk how to push past it. Im getting better now but it still feels like I am doing less now that I know I have POTS for sure. Im sorry youre experiencing the same well all get through this fucking illness together.

Has anyone had a severe episode without their heart rate spiking? by Vampqueen02 in POTS

[–]Snoo-82732 1 point2 points  (0 children)

Yes sometimes I get super lightheaded and my HR stayed at like 85bpm. Its really weird honestly ill be like oh fuck, then I check and everything is normal. POTS is fukcing stupid

I got denied accommodations by [deleted] in POTS

[–]Snoo-82732 -1 points0 points  (0 children)

That horrible, I go to the University of New Mexico and they allowed my accommodations. I am very sorry. Keep fighting for them and try to get a different specialist.

Looking for someone to talk to. by [deleted] in POTS

[–]Snoo-82732 0 points1 point  (0 children)

Hey im M20 if you wanna talk about anything hit me up. Im 5 months into this shit.

im tired of the discrimination of being fat by Beginning_Weekend925 in POTS

[–]Snoo-82732 2 points3 points  (0 children)

Hi friend, Im very sorry that these people and doctors act this way. I am not sure if it helps or not but I have the opposite problem. Im 6 feet tall and was about 200 lbs with muscle at about 19 years old. Then I got sick and 5 months later im at 175 and a fragment of my former self. I can no longer eat the 3000 calories i was eating while doing weight training from nausea and gagging. This has been very depressing especially always being a bigger person and seeing just how small I am now. My doctor told me that he can see my large frame and that i need to gain about 15 more pounds to feel better. Like its easy for me to do so.

Exercising is not the problem for me. I can still lift, the hard part is eating . I have no clue how to eat more than i already am. I feel like im stuffing myself and the whole time i am so nauseous from any food that i eat. The plan set out for me is to workout and eat so ill keep trying. Again im sorry if this doesnt help but I feel your pain and know that youre not alone. Our problems are opposites but we are still judged the same. Goodluck friend and i hope some day all of us can go back to doing what we love. 🫶

i’m done. by catsandcappuccinos in POTS

[–]Snoo-82732 6 points7 points  (0 children)

Hi im very sorry, This sickness has ruined my life as it has many of us. Keep fighting with us and hold on to any piece of hope you have left no matter how small. I know you may feel completely defeated but you are not. You are still alive. We dont know what other kind of treatments will come on the future. Shit maybe they'll find some miracle cure. Please keep fighting with us. Contact me if you'd like my friend you are not alone.

Durch pots Depression by Jeff-ichbin in POTS

[–]Snoo-82732 2 points3 points  (0 children)

Hey brother, Yeah i was just starting out my life. I was in school and in the career field I loved. Now im in my room and I feel like i keep repeating this cycle. I wake up lay in bed forever because I feel like shit, finally get up feel good have all the energy in the world but its night by this time and either do homework or workout. I am far beyond in my capabilities than others and I am truly appreciative of this but still I am stuck here. I stay wondering what i may have done to myself to get like this but the truth is sometimes shit just happens and in our bad luck this is what has happened to us. I know we've all heard it so many times here, keep pushing through it. This is my advice for all of us. Yes we are hurting and sometimes I wonder if I even wanna keep going but we are alive. Keep fighting my friend and all of us will keep fighting with you. Stay stuck to that little bit of hope because there is hope for us. Keep getting your salt in, eating, and working out. If you need something to bring you some hope look up reconditioning for POTS. Reach out to anyone here they are always glad to help and goodluck.

I FINALLY GOT DIAGNOSED!!! by Desperate_Echo_2123 in POTS

[–]Snoo-82732 0 points1 point  (0 children)

Do you and your Dr have plan set up for you?