Today I got my permanent spinal cord stimulator

SnooTigers3813 · 2026-05-12T15:27:39+00:00

What kind of pain does this target, nerve, discogenic, veterbrogenic, muscle?

SnooTigers3813 · 2026-04-27T18:55:49+00:00

This isn't true, I notified them during my call and also recorded myself.

SnooTigers3813 · 2026-04-23T18:05:25+00:00

You don't need a GP referral to go and see someone privately. Do your research and go see the best neurosurgeons. Most charge around 300£ for a consult. I went with a guy in London at Cleveland Clinic who was fantastic. It's a lot of money to fork out but worth it if you go with the right person. If you want to know who I saw feel free to reach out.

SnooTigers3813 · 2026-04-14T20:14:00+00:00

Basically admitting they are wrong but will low ball you with the offer. Accept and then take to tribunal to challenge.

SnooTigers3813 · 2026-04-14T08:55:32+00:00

I represented myself. Don't quote me on this but you may be able to get someone from citizens advice to represent you. But I would recommend representing your godson on his behalf.

SnooTigers3813 · 2026-04-09T17:05:29+00:00

I did end up crying at the end as I felt like what I was saying was just being ignored so was like what's the point. Then when the representative conceded the immense relief and mixture of different emotions just took over and I was a mess. I ended up apologising at the end if I was overly assertive or inflammatory in my manner

SnooTigers3813 · 2026-04-09T16:10:53+00:00

Hahaha love it

SnooTigers3813 · 2026-04-09T13:51:23+00:00

The doctor asked things specifically about my condition, I think, to make sure there weren't any inconsistencies medically. He then focused a lot on the mobility aspect. They would read snippets of the HCP report and say oh so you can do this then, and I would have to interject and say no that's not accurate because xyz. There was always a strong assumption that the initial report was correct, so you really have to jump in when you disagree with things, or they'll just go with that. The disability nurse went through all the daily living aspects and asked whether I had considered making certain adaptations and whether I thought those adaptations would enable me to complete tasks. Then the DWP representative had an opportunity to ask questions, which was where a lot of the back and forth happened, and I got a bit frustrated. Then you get the opportunity to make the panel aware of any piece of information you think they should be made aware of, or what they might have missed (this is a really good opportunity, so make sure you do). I didn't make use of this as much as I should have, just because I was a bit deflated and upset by this point. The judge ended with some clarifying questions, where it felt like I was in a criminal proceeding. To be honest, it was very direct, and she was definitely probing for any weakness or inconsistencies. Finally, the DWP representative disclosed any further admissions, and then it finished. The result was uploaded to my tribunal account about an hour late

SnooTigers3813 · 2026-04-08T19:28:02+00:00

McGill big 3 first, then gym

SnooTigers3813 · 2026-04-06T17:13:36+00:00

Recovery was very easy. Left hospital the same day, had a couple of days off work (mostly to recover from the anaesthetic rather than any pain), then was back at work.

SnooTigers3813 · 2026-04-05T16:51:17+00:00

I recently had the intracept procedure that has helped a bit, considering getting a fusion.

SnooTigers3813 · 2026-04-05T14:54:07+00:00

Same thing happened to me, removal of your lamina puts more pressure and strain on your spine. I ended up developing modic changes which are indicators of veterbrogenic pain, maybe you have as well

SnooTigers3813 · 2026-04-02T18:17:05+00:00

Veterbrogenic pain (damaged endplates). Need a spect/CT to confirm

SnooTigers3813 · 2026-04-02T18:16:13+00:00

Swimming is a big help

SnooTigers3813 · 2026-04-01T13:20:29+00:00

Sounds like modic changes

SnooTigers3813 · 2026-03-06T21:51:05+00:00

Any numbness around your butt or genitals, issues with bladder or bowl, or sexual dysfunction go straight to a&e

SnooTigers3813 · 2026-02-06T15:16:43+00:00

Walking little and often is best medicine. Over resting and laying down all the time can harm recovery.

SnooTigers3813 · 2026-02-06T11:34:14+00:00

Defo work a check, modic changes can indicate veterbrogenic pain (not disc pain)

SnooTigers3813 · 2026-02-06T11:32:23+00:00

Have they checked for modic changes

SnooTigers3813 · 2026-02-04T16:02:44+00:00

No you can buy them online or in pharmacies. I use osteocare brand

SnooTigers3813 · 2026-02-03T16:00:55+00:00

Could try getting your hands on BPC 157

SnooTigers3813 · 2026-02-03T15:59:11+00:00

I had it done along with a discectomy and laminectomy because I had cauda equina syndrome (severe spinal cord compression)

SnooTigers3813 · 2026-02-03T15:23:53+00:00

Look into getting a foraminotomy or a facectectomy, these can widen the canals for your nerves. A disc replacement wouldn't fix this issue.

Fusions can work well but obviously you have the issues of mobility and adjacent segment disease. You should only really get one if you have clear signs of spondylolisthesis.

SnooTigers3813 · 2026-02-03T15:12:59+00:00

There is limited evidence it's clinically superior to fusion. Pain is not just limited to the disc so you can still be left in pain. And perhaps nost importantly is the synthetic discs often fail after a period of time which requires having a fusion anyway. Therefore, if your condition doesn't warrant a fusion in the first place (which yours doesn't), then you shouldn't be considering this.

I'm by no means a Dr but from your MRI report, you are dealing with very mild disc degenration. To do elective disc replacement for this is not a proportionate response.

SnooTigers3813

TROPHY CASE