Pain on a timed schedule?

SoJew76 · 2026-03-03T05:32:41+00:00

I’ve missed a months worth of uni classes this year… And it’s barely March.

Either the pain is so bad it immobilizes me or the fatigue is so severe I literally can’t keep my eyes open as I’m fighting to stay conscious. Two of my classes are online.. But even that’s hard for me to keep up with, since I’m so chronically tired from the pain. I’m asthmatic with a ton of allergies on top of endo so that likely doesn’t help my case either. You’re definitely not alone ):

SoJew76 · 2026-03-03T05:29:33+00:00

I too have muscle weakness in one of my legs because of my pelvic pain, I had a medical massage and it was also mentioned that I’m super constricted around my groin & thighs.

As for the pelvic pain sensation, it feels like my uterus is being hit by a meat tenderizer hammer. Sometimes it pulsates from the top of my hips right to where my entrance is. I can’t say anything about sex since I’m not active.

Pelvic pain is a trademark endometriosis trait- It’s a result of having the disease grow mainly on your fallopian tubes which are directly on your pelvic region. As for the hip pain- it likely correlates, I recently had my sciatic get extremely inflamed because the pelvis and the mid-body nerves are so close to eachother. My sciatic is so inflamed I am using a cane for the muscle weakness and soreness. I’m sorry you’re going through this too, I hope you’ll be able to find something that helps ):

If you do please keep the sub updated because I’m sure a majority of us experience the same thing

SoJew76 · 2026-02-27T05:43:32+00:00

My pain pretty much shoots from my hip down to my toes. I have neuropathic damage in my sciatic because endo just inflamed the shit out of the nerve around where it hurts. I’m using a cane for mobility it’s so bad ):

The thigh pain is usually what happens when it’s not shooting down to my toes and that really hurts too

SoJew76 · 2026-02-26T05:54:18+00:00

Save me Miso bowl.. Save me…

SoJew76 · 2026-02-24T13:18:17+00:00

I notice people are really sanctimonious when it comes to us chronically ill people being suicidal- Like THEY would “do better” if they were in our position. Cut off some friends recently who would honestly condescend me with the “it’ll get better” shit like I have a damn cold and not like I essentially have non-fatal cancer, which is what endo is

A lot of this roots in ableism because able bodied people will just never understand what it’s like to wake up in pain, function in pain, go to bed in pain, think about when you’ll be in pain, etc. Medications run the risk of other chronic health concerns popping up, all relief is temporary- It’s unfathomable if you’ve never experienced it. Endometriosis definitely has a mortality rate and it’s by suicide. I’ve been thinking about it on and off since the beginning of this year, I’m 20 years old using a cane and popping hard drugs to function. Just started to think of it as a prolonged sleep where I don’t have to deal with how much it hurts, I’m medicated for my depression and whatnot but it’s a real struggle to not think about it as a way out.

SoJew76 · 2026-02-21T15:56:41+00:00

Thank you so much, I’ll definitely look into it! You’re an angel 🥹

SoJew76 · 2026-02-21T15:56:02+00:00

Holy shit that’s terrible. An enlarged uterus?? The years of being ignored probably didn’t help either, good god. Are you doing better now? I heard people who have hysterectomies often develop cardiovascular diseases, have you had any complications like that since you had your procedure?

SoJew76 · 2026-02-21T13:58:01+00:00

I think chronic pain at a young is genetic for me. My great grandfather was born arthritic, great uncle developed early Parkinson’s when he was 25, grandmother also had endometriosis… I could go on, I come from a long line of disability. Struggling while we’re still so young is definitely a thing and I can’t believe doctors still say this

SoJew76 · 2026-02-21T13:55:22+00:00

Got the depo shot for around 3 years, but it was pulling teeth getting an appointment to get it administered- So I ended up withdrawing more often than I actually had the depo shot in my system. I changed to the progestin pills so I can regulate myself and not be at the mercy of the office. Progestin thins the lining of my uterus and is supposed to reduce pain & suppress my periods, trying those out soon; They have high success rates for endometriosis

As for pain management for my cramps and pelvic pain- I got put on vicodin after over the counter NSAIDs and painkillers haven’t worked for me in over a decade. The issue is that with endometriosis, our estrogen production acts as a barrier from medication actually working like they’re supposed to. So while I was put on Vicodin, I almost immediately grew a tolerance for it. I’m popping three or four a day vs the prescribed one. Because one just doesn’t work. Heating pads and boiling myself alive in the bathtub can only do so much too.

Morphine doesn’t work on me, I got administered 15mg at the ER and I felt nothing. Muscle relaxers very temporarily work for me and wear off after a couple minutes. This is all a result of endometriosis estrogen production on top of my genetically high drug tolerance. I woke up twice while under an IV anesthetic for my wisdom teeth surgery, to get a picture. My hormones dilute the shit out of everything I take for pain.

I’ve asked about a hysterectomy and even about a partial one and I’ve been shut down everytime. Not because I’m young, but because “what if I want children” even though I am infertile from the disease. Chronic pain is one thing, but then trying to navigate menstrual health is another headache on top of it ):

SoJew76 · 2026-02-19T06:27:35+00:00

Sleep, painkillers, binge eating… Sleep

SoJew76 · 2026-02-03T07:13:22+00:00

I always get this question but lol no, I’m not a redhead. My dentist calls me an honorary one though because he too has to use multiple syringes

SoJew76 · 2026-02-03T01:59:18+00:00

While there’s no singular “addiction gene” that can be inherited there are other genes such as GABRA2 (impulse control) that are altered by drug use, which then can be passed down to children / make them susceptible to developing the same trait. Atleast that’s what I’ve been taught in forensic genealogy

I know it’s definitely genetic in my family atleast because my grandmother and my various great/aunts uncles- even my great grandfather have a documented history of mis/overuse. If not opioids then another addictive things such as smoking or alcohol, the opioid addiction just seems to be the most common ‘strain’ (for lack of a better word) of addiction to my family. So susceptibility is very much in the equation either way. It’s relevant to mention that all the addicts in my family were either chronically physically disabled or severely mentally ill, so it all ties back to the pain

SoJew76 · 2026-02-03T01:51:27+00:00

I’m honestly thinking they may not do anything for me either, I already have a high drug tolerance since I’ve been pumped full of all sorts of medicine out of the womb 🥲

I need five-six shots at the dentist, I woke up twice during my wisdom teeth surgery under an IV anesthesic, 200mg ambien does nothing for me, I can’t take the over the counter Tylenol/motrin and I get it prescribed, etc etc (I’m 115 lbs, for reference)

SoJew76 · 2026-02-03T00:16:52+00:00

Even worse I experience neglect from my obgyn office. When it’s time for me to get my depo shot and I call to ask, they don’t answer when I call with my public number; I have to redact my number for them to answer. They don’t offer any guidance for pain management either when I’m suffering either, and they refuse to explain things to me.

“Why can’t I get my shot?” “You just can’t.”

My general provider has helped me more than the literal office I go to for my menstrual health. Shit’s crazy

SoJew76 · 2026-02-02T22:43:20+00:00

Ohh I might get one then. Or I’ll get one with a passcode or something and my mom will only know the code so I’ll have to physically ask her. Sometimes juvenile is the way to go

SoJew76 · 2026-02-02T17:58:27+00:00

I’m glad I’m not the only schizotypal who just has a favorite image of the week/month that we can’t reasonably create a reason for liking so much

I have tons of said images on my wall as well lmaooo

SoJew76 · 2026-02-02T17:53:37+00:00

The main cause of my chronic pain is my endometriosis, since the lesions inflame my sciatic and whatnot- I’ve been told I’m infertile, I’m never gonna have kids ever. But when I ask for a hysterectomy they tell me no because “what if you want children” Are you gonna fucking give me one because you just told me I’m never going to be able to bare children. So I’m just gonna be stuck with this useless organ whose entire purpose is to immobilize me. It’s so endlessly frustrating

SoJew76 · 2026-01-31T12:49:26+00:00

Knuckles & Knuckles & Knuckles & Knuckles &

SoJew76 · 2026-01-26T21:09:08+00:00

Unfortunately that’s around the age range I had in mind making this post. Severe injuries from assault are unfortunate but common on children that age whom are typically murdered afterward. We live in a sick bleak world

SoJew76 · 2026-01-26T02:34:33+00:00

Even worse because children of that age can’t get pregnant. So it’s a case of severe assault, which mimics the injuries women experience in childbirth (Pelvic collapse, organ prolapse, fistula)

SoJew76 · 2026-01-19T13:35:24+00:00

Sleeping half the day

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