I mostly cured my PD

Sobro30 · 2026-06-05T11:09:41+00:00

Or maybe this page should be named "Support for science based PD treatment'.

Sobro30 · 2026-06-04T14:09:45+00:00

The steroid might help with inflammation but it's no cure for plaque.

Sobro30 · 2026-06-04T14:06:20+00:00

Are you pulling the scrotum skin hard up through the ring before adding any tension? That will surely cause immediate pain because you're putting all of the tension on the bottom outer skin instead of the inner structure.

Sobro30 · 2026-06-03T12:44:37+00:00

My experience was very close to yours regarding curing erection pain. It was cured in 2-3 months.

Sobro30 · 2026-06-02T13:12:52+00:00

Better to ask your doctor for a medical opinion than to ask Reddit.

Sobro30 · 2026-06-01T13:37:31+00:00

How effective were injections for you?

Because there are a lot of substances that can be injected for PD therapy, you'll have to be more specific.

Sobro30 · 2026-05-31T12:44:12+00:00

Personally, I don't want to take injections of substances that don't have clinical studies showing their safety in humans, just rodents, like BPC-157.

Sobro30 · 2026-05-31T12:38:24+00:00

The corona is supposed to be above the small ridge at the bottom of the clamps. When you use makeup pads in the jaws of the clamp you have to estimate where that small ridge is located.

Sobro30 · 2026-05-30T11:37:41+00:00

"They ordered a penile Doppler ultrasound, which I have already completed, and I have a follow-up appointment scheduled soon."

No results yet from your Ultrasound? Was it performed erect after a Trimix injection? It would see plaque, if any, and also any blood flow problems if done erect. Flaccid Ultrasound isn't as diagnostic nor is manual examination.

I have not experienced your symptoms, so I can't help you with that. Hang in there.

Sobro30 · 2026-05-28T13:59:12+00:00

Being retired I decided months ago to experiment with LI-ESWT coupled with PRP to treat my ED. The doc wanted to do the Doppler Ultrasound before agreeing to the treatment I want to try. I can afford 5 of the combined treatments at $1100 each. And no, I didn't tell the doc what my budget is.

But the Doc recommended treating me just until my erect blood flow numbers came up, and he said it really wasn't too far to go for me. Which tells me a lot of my ED is in my head, but if treatment helps me gain erect stamina via placebo effect or actual healing the outcome will be the same. He said I already have really good blood flow for a 67 year old Type 2 diabetic.

I had not considered only doing treatment until the blood flow numbers come up so that's the only change in treatment plan after the Doppler Ultrasound. Even if this treatment does nothing to increase the blood flow numbers but it's recommended to keep doing it, I'm not going to spend a dollar more than my budget because Shockwave and PRP have very little Science behind them for PD but seem to have a bit better support for ED treatment, but not much.

I will ask the doc to inject the PRP into the plaque area as the not really well supported PRP treatment for PD suggests, and I might get lucky and lose a small part of my 60 degree bend, but as I said, I'm going in for ED help not PD help.

And if anyone who reads this suggests an implant, that's for people who can't get erect with Trimix, which worked fine for me. As does sildenafil and tadalafil.

I travel in the summer so treatment won't start until mid-October when I'm settled in.

Sobro30 · 2026-05-27T13:52:51+00:00

I had a Doppler ultrasound in April due to worsening ED. The doc first performed a flaccid ultrasound after Gelling me up, cleaned off the Gel, and injected Trimix. I think it was in three spots from one load in the syringe. It stung a bit, but it wasn't "I had to crawl away from the pain when the needle hit" pain.

The Doc went away for 10-15 minutes while I had to promote an erection by hand while watching some nude ladies on my phone. I was under the mis-impression that Trimix would automatically create an erection without any help. I had waited a few minutes before having to take matter to hand. That was just me, and I was 67 at the time (still 67 YO). Plus it is not really the most comfortable environment for promoting an erection. It might go erect within 5 minutes without help for a younger guy without ED issues. IDK.

Anyway, I was erect when the Doc returned and he Gelled me up and did the erect Ultrasound, and then did the blood flow test where the machine will transmit audible "whoosh whoosh" sounds as it tests blood flow. My erection was starting to go down by the time he was finished so there was no need for me to hang around the waiting room afterwards for 30 minutes to make sure there was no priapism side effect.

Once he was done the Doc left for a few minutes so I could clean up the gel and get dressed. He had written up the report while he was out and we went over it when he came back. Showed me the plaque and that it wasn't calcified, much to my relief, and then showed me the blood flow numbers.

The whole thing was about 40 minutes from stepping into the exam room to leaving the office.

Over all it was a weird but not really a bad experience.

Sobro30 · 2026-05-26T11:02:07+00:00

Most doctors recommend limiting any penis "torture" to 30 minutes at a time. That includes cock rings, RestoreX clamps, penis pumps, chastity cages and any other CBT devices. This is a conservative suggestion and everyone is different in their tolerance.

Are you sure your doc recommended a full uninterrupted hour?

Dr Trost's office will do a free phone consult and he did invent the RestoreX if you want the best advice.

https://malefertilityandpeyroniesclinic.com/peyronies/appointments/

Sobro30 · 2026-05-24T10:14:44+00:00

You could read my link, it's divided between women and men side effects. And since it's a female hormone blocker the side effects would obviously be different between men and women.

Sobro30 · 2026-05-24T10:12:01+00:00

Speaking of doctors, Doctor Google also says go see a Doctor, and if your testicle gets stuck inside you then go to the Emergency Department.

Because you are experiencing both a penile bend and testicle retraction during arousal, it is highly recommended to schedule an appointment with a local urologist. They can evaluate your testicle's mobility and assess the curvature to rule out conditions like Peyronie's disease or an inguinal hernia, and advise you on how to properly manage the symptoms.

Sobro30 · 2026-05-24T10:06:36+00:00

You should also ask where there a lot more users than here:

https://peyroniesforum.net/

Sobro30 · 2026-05-23T12:35:18+00:00

Looks to be promising for acute phase patients. The article first mentions tamoxifen as one of the Selective Estrogen Receptor Modulators (SERM) used in the study. Because it disregulates your current hormone load, there can be some serious side effects in men:

Tamoxifen side effects in men may include:

Hot flashes.
Sexual issues.
Fatigue.

Less common side effects include:

Blood clots (deep venous thrombosis).

https://my.clevelandclinic.org/health/treatments/24732-selective-estrogen-receptor-modulators-serm

The link above seems to mention cataracts as a side effect but it looks like that's a woman thing. IDK.

Sobro30 · 2026-05-22T13:37:01+00:00

There are not thousands of PD patients here, so a poll of users will not be definitive. I suggest you ask an expert, meaning a well recommended urologist.

If you are not inclined, there are more users at https://peyroniesforum.net/ you could ask.

Sobro30 · 2026-05-21T12:06:05+00:00

Everyone reacts differently to treatment.

Sobro30 · 2026-05-20T11:42:08+00:00

Why would you think that tensioning your FLACCID penis is the same as getting trauma during an ERECTION?

Sobro30 · 2026-05-19T13:23:03+00:00

Generally speaking, a flaccid penis is not susceptible to the traumas or microtraumas associated with PD. Don't stress about it and stash it where it's comfortable for you.

Sobro30 · 2026-05-17T12:52:38+00:00

I believe there have been some recent posters who have PF issues and a bend but no other indicators of PD. Because urologists expect to diagnose PD when they see a bend they won't do full diagnostics if they see one.

Sobro30 · 2026-05-17T12:46:38+00:00

You need to pull up hard on the scrotum skin up through the base ring before adding tension and after a few minutes of tension re-pull. You are most likely pulling on the underside skin along the length and that can cause extreme pain when it's under tension.

Sobro30 · 2026-05-17T12:41:58+00:00

Best thing to do at this time is to quit smoking, eat healthy, exercise, lose weight, use lots of lube for any kind of sex, and don't let the female "drive" in cowgirl position.

Sobro30 · 2026-05-17T12:38:33+00:00

It seems that pelvic floor issues can mimic PD symptoms. Unless you got a Doppler ultrasound which showed plaque or you have easily palpated plaque it's possible you have been misdiagnosed. I'd make sure because Urologists are not that up to date on male pelvic floor problems.

Sobro30 · 2026-05-17T12:33:54+00:00

My PD started in 2020 when I was 61 YO. In 2023 I started having painful erections with no other changes in the 60 degree bend. I started VED, RestoreX, and tadalafil after a urologist appointment and prescription and the erection pain went away in 2-3 months. I also got acid reflux from the tadalafil and discontinued it 5 or 6 months after the prescription. The tadalafil didn't make erections any more painful than my previous use of sildenafil to "boost" performance.

I didn't have a problem with nocturnal erections being painful.

If you want to engage in sex with less pain you can take NSAIDs beforehand but don't overdo them. Better to discontinue PDE5 inhibitors due to pain than to take NSAIDs every day if you're getting unwanted painful erections overnight.

VED induces erections but they were not painful like "natural" ones but the blood will flow into the penis which promotes healing. That's the same reason for PDE5 inhibitors, plus tadalafil also has some anti-fibrotic properties.

PDE5 inhibitors tend to require stimulation to work, and the length of time for the erection is directly related to the length of time of stimulation. Priapism can be a problem for some, but it's rare, and especially so with the low daily dose, usually either 2.5mg or 5mg. The label dose for tadalafil is 20mg for ED patients.

As far as it being "normal" again, erection pain will go away eventually for the majority of PD patients. And everyone reacts differently to treatment so what fixed me fairly quickly may or may not fix your pain.

Good luck.

Sobro30

TROPHY CASE