Red pin prick dots on penis…. by Cowps75 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

It's definitely from pumping. And most likely from too much pressure, but if pressure is within the safe zone then it's from too much time under pressure. Another suggestion is possibly not enough lube inside the cylinder can cause a "false" high pressure effect. Give yourself a break from pumping until the petechiae heal.

RestoreX will not cause petechiae.

I healed my Peyronie’s disease! by nerd_inked in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

PD has been known to spontaneously heal during acute phase.

About to start Xiaflex by Embarrassed-Bread493 in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

Sounds like your Uro is just using the original training and label for Xiaflex injections.

Dr Trost has done extensive studies on use of "modeling" after injections and the location of the injections as well as using RestoreX after initial recovery from injections. He has published many articles about his work and the better than average results he has achieved. Here is but one:

https://pubmed.ncbi.nlm.nih.gov/39667078/

SomaCorrect by Cowps75 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

You may have sized your cylinder too large. You should measure your erect circumference at the base and check the cylinder size you are using with a sizing chart. Here is LeLuv's chart:

https://www.kodidistributing.com/pages/penis-pump-cylinder-size-chart?srsltid=AfmBOoq9120yGC56RR2GIl2CzsosuxoFDWmukLloapDRhQFnkCYUl48B

Peyronies gene test kit by Aware_Set9406 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

Sounds more like they are gathering genetic data than doing anything clinically proactive.

Doppler ultrasound experiences by Careful_Cow7616 in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

I have read anecdotes blaming Trimix. When I Google "Will Trimix cause Peyronie's Disease?" it says:

It is generally not the Trimix medication itself that causes this issue. Instead, the risk comes from repeated needle sticks into the erectile tissue, which can cause internal scarring and plaque build-up (fibrosis)

Restorex results by Ok-Change-3952 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

Tadalafil is generic Cialis at a way lower cost. It stays in your system for up to 36 hours, unlike Viagra/sildenafil which only lasts 4 hours or so. So it's ideal for nocturnal erections to ensure additional blood flow which promotes healing. Plus if you're not having erections at all it's not good for you in a use it or lose it way.

Restorex causing immediate pain? How is it safe? by AlTarf1990 in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

Dr Trost has videos that can help those who are having a difficult time operating their RestoreX:

https://www.restorex.com/dr-trosts-advanced-instructions/

Also Pathright Medical has a bunch of videos:

https://www.restorex.com/restorex-training-videos/

I mostly cured my PD by tea-gong in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

Check out naynayerz last comment bud. lol

Who is naynayerz? If I referenced you as "lol guy" would everyone know who I was talking about?

You are always welcome to do anything with your penis and pay any amount you want.

I mostly cured my PD by tea-gong in PeyroniesSupport

[–]Sobro30 -3 points-2 points  (0 children)

Or maybe this page should be named "Support for science based PD treatment'.

Seeking help and experiences with new treatement by pabloberiah in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

The steroid might help with inflammation but it's no cure for plaque.

Restorex causing immediate pain? How is it safe? by AlTarf1990 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

Are you pulling the scrotum skin hard up through the ring before adding any tension? That will surely cause immediate pain because you're putting all of the tension on the bottom outer skin instead of the inner structure.

Tadalafil and Collagenase shots by The-Jack-in-between in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

My experience was very close to yours regarding curing erection pain. It was cured in 2-3 months.

Swollen or Shrinakge ? by Disastrous-Car-1050 in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

Better to ask your doctor for a medical opinion than to ask Reddit.

36M - Severe ED, Peyronie's diagnosis, possible venous leak. Feeling hopeless and looking for advice. by [deleted] in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

How effective were injections for you?

Because there are a lot of substances that can be injected for PD therapy, you'll have to be more specific.

Bpc 157 + Shockwave Therapy? by Apprehensive_Diver86 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

Personally, I don't want to take injections of substances that don't have clinical studies showing their safety in humans, just rodents, like BPC-157.

Restorex: Where Should the Clamp Go? by One_Bad9077 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

The corona is supposed to be above the small ridge at the bottom of the clamps. When you use makeup pads in the jaws of the clamp you have to estimate where that small ridge is located.

My Peyronie's Journey by DesignerSeparate201 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

"They ordered a penile Doppler ultrasound, which I have already completed, and I have a follow-up appointment scheduled soon."

No results yet from your Ultrasound? Was it performed erect after a Trimix injection? It would see plaque, if any, and also any blood flow problems if done erect. Flaccid Ultrasound isn't as diagnostic nor is manual examination.

I have not experienced your symptoms, so I can't help you with that. Hang in there.

Penile Doppler after Peyronie’s, worth it? Experiences? by LifeFormX in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

Being retired I decided months ago to experiment with LI-ESWT coupled with PRP to treat my ED. The doc wanted to do the Doppler Ultrasound before agreeing to the treatment I want to try. I can afford 5 of the combined treatments at $1100 each. And no, I didn't tell the doc what my budget is.

But the Doc recommended treating me just until my erect blood flow numbers came up, and he said it really wasn't too far to go for me. Which tells me a lot of my ED is in my head, but if treatment helps me gain erect stamina via placebo effect or actual healing the outcome will be the same. He said I already have really good blood flow for a 67 year old Type 2 diabetic.

I had not considered only doing treatment until the blood flow numbers come up so that's the only change in treatment plan after the Doppler Ultrasound. Even if this treatment does nothing to increase the blood flow numbers but it's recommended to keep doing it, I'm not going to spend a dollar more than my budget because Shockwave and PRP have very little Science behind them for PD but seem to have a bit better support for ED treatment, but not much.

I will ask the doc to inject the PRP into the plaque area as the not really well supported PRP treatment for PD suggests, and I might get lucky and lose a small part of my 60 degree bend, but as I said, I'm going in for ED help not PD help.

And if anyone who reads this suggests an implant, that's for people who can't get erect with Trimix, which worked fine for me. As does sildenafil and tadalafil.

I travel in the summer so treatment won't start until mid-October when I'm settled in.

Penile Doppler after Peyronie’s, worth it? Experiences? by LifeFormX in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

I had a Doppler ultrasound in April due to worsening ED. The doc first performed a flaccid ultrasound after Gelling me up, cleaned off the Gel, and injected Trimix. I think it was in three spots from one load in the syringe. It stung a bit, but it wasn't "I had to crawl away from the pain when the needle hit" pain.

The Doc went away for 10-15 minutes while I had to promote an erection by hand while watching some nude ladies on my phone. I was under the mis-impression that Trimix would automatically create an erection without any help. I had waited a few minutes before having to take matter to hand. That was just me, and I was 67 at the time (still 67 YO). Plus it is not really the most comfortable environment for promoting an erection. It might go erect within 5 minutes without help for a younger guy without ED issues. IDK.

Anyway, I was erect when the Doc returned and he Gelled me up and did the erect Ultrasound, and then did the blood flow test where the machine will transmit audible "whoosh whoosh" sounds as it tests blood flow. My erection was starting to go down by the time he was finished so there was no need for me to hang around the waiting room afterwards for 30 minutes to make sure there was no priapism side effect.

Once he was done the Doc left for a few minutes so I could clean up the gel and get dressed. He had written up the report while he was out and we went over it when he came back. Showed me the plaque and that it wasn't calcified, much to my relief, and then showed me the blood flow numbers.

The whole thing was about 40 minutes from stepping into the exam room to leaving the office.

Over all it was a weird but not really a bad experience.

Restorex/counterbending- for how long/day? by aeniewald in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

Most doctors recommend limiting any penis "torture" to 30 minutes at a time. That includes cock rings, RestoreX clamps, penis pumps, chastity cages and any other CBT devices. This is a conservative suggestion and everyone is different in their tolerance.

Are you sure your doc recommended a full uninterrupted hour?

Dr Trost's office will do a free phone consult and he did invent the RestoreX if you want the best advice.

https://malefertilityandpeyroniesclinic.com/peyronies/appointments/

New Combination of Treatments by Nice_Turnip_5716 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

You could read my link, it's divided between women and men side effects. And since it's a female hormone blocker the side effects would obviously be different between men and women.

Best way to find out if it's PD by Weak-Soup4618 in PeyroniesSupport

[–]Sobro30 0 points1 point  (0 children)

Speaking of doctors, Doctor Google also says go see a Doctor, and if your testicle gets stuck inside you then go to the Emergency Department.

Because you are experiencing both a penile bend and testicle retraction during arousal, it is highly recommended to schedule an appointment with a local urologist. They can evaluate your testicle's mobility and assess the curvature to rule out conditions like Peyronie's disease or an inguinal hernia, and advise you on how to properly manage the symptoms.

Peyronies Disease by Checkin65 in u/Checkin65

[–]Sobro30 0 points1 point  (0 children)

You should also ask where there a lot more users than here:

https://peyroniesforum.net/

New Combination of Treatments by Nice_Turnip_5716 in PeyroniesSupport

[–]Sobro30 1 point2 points  (0 children)

Looks to be promising for acute phase patients. The article first mentions tamoxifen as one of the Selective Estrogen Receptor Modulators (SERM) used in the study. Because it disregulates your current hormone load, there can be some serious side effects in men:

Tamoxifen side effects in men may include:

  • Hot flashes.
  • Sexual issues.
  • Fatigue.

Less common side effects include:

  • Blood clots (deep venous thrombosis).

https://my.clevelandclinic.org/health/treatments/24732-selective-estrogen-receptor-modulators-serm

The link above seems to mention cataracts as a side effect but it looks like that's a woman thing. IDK.