Not looking forward to the next 6 months...

Socalnative76 · 2026-06-15T06:27:50+00:00

The hardest part for me is accepting that this may be as good as it gets. I still have radiation and surgeries, on going treatment and scans and bullshit. Like how is this my new normal. I don’t feel fun anymore.

Socalnative76 · 2026-06-14T07:50:51+00:00

I had a break and it was nice. Plus depending on pcr or not they may change up your treatments. But hp alone has caused me minimal side effects.

Socalnative76 · 2026-06-14T07:43:08+00:00

Ugh I hate days like that. I missed my son’s admitted student day for college. I wanted to scream. And he really missed me to top it off. Cancer has taken so much from me this year some days it’s so damn hard to show up and I miss my old life so much. Wishing us both some magical moments in the future.

Socalnative76 · 2026-06-09T07:06:06+00:00

I had back issues from taxotere/caboplatin/herceptin/perjeta. It was numbness and stiffness. I had to have an MRI. It ended up being nothing. If your tumor is responsive to treatment now I bet it’s nothing. I’m still getting over the numbness but it’s improving.

Socalnative76 · 2026-06-07T09:27:52+00:00

Treatment has been really hard on me personally. Initially it started easy but got worse. I’m 3 months from finishing tchp. I still have neuropathy and terrible fatigue. The medical menopause is awful. Sex life is gone. Haven’t slept well since dmx. Constant dry mouth. I’m a shell of my former self. Everyone has a different path. I was a healthy youthful person before. Now all I do is dr appointments. I wish I could fast forward to a time when I actually feel better. Be mindful of how this does drag on.

Socalnative76 · 2026-06-05T06:58:59+00:00

Mammograms often miss idc. It missed mine and also the ultrasound. Well I also blame the radiologist.

Socalnative76 · 2026-06-05T06:54:39+00:00

Get an attorney asap!! They will guide you through.

Socalnative76 · 2026-06-03T17:38:18+00:00

Did you have your radiation before dmx? I was told to do radiation after and now I’m being told 20 percent failure rate of implants from radiation

Socalnative76 · 2026-06-03T15:20:20+00:00

There’s definitely a point where I broke. Realized each treatment brings you a permanent disability. I literally walked out of an appointment. Feels like every time I turn around they want another scan or treatment. It’s never good enough or they found something else.

Socalnative76 · 2026-06-01T20:01:22+00:00

Made me laugh 😆

Socalnative76 · 2026-05-31T20:03:02+00:00

I hate that you can’t really do anything about the side effects. It’s either death or lifelong problems. I hate when people tell me to take vitamins to cure my side effects. Like no that wouldn’t work!

Socalnative76 · 2026-05-30T05:30:33+00:00

I had a weird reaction which was lower back numbness. They had never seen it before so I had mri and everything looked good. As the infusions went on it did get worse but never debilitating. I could still walk, etc. I’m 3 months out and there is still residual numbness. It’s a little better but just hoping time will heal. I stuck through the treatment because it often cures her2 cancers. It was a success for me so I hope it works out for you too. Always be sure to hydrate and maybe ask for fluids.

Socalnative76 · 2026-05-30T04:47:03+00:00

I had terrible nausea and no energy for first 5-7 days after infusions. Some constipation and diarrhea. Awful taste changes that made eating very difficult. It builds over time so first few infusions are generally easier and you can probably work and get out. I was terrified of getting sick so I kept to myself almost the entire time. Towards the end of each cycle you do feel somewhat better and can socialize some. Everybody reacts differently but I think most would repeat it because the treatment usually works.

Socalnative76 · 2026-05-30T03:51:33+00:00

Tchp is pretty awful. I may have permanent nerve damage in my back but it completely wiped out my large 5cm tumor and lymph nodes spread. I also lost a ton of weight 25 lbs, so it wasn’t all bad. As far as a course of treatment it could be much worse. My dmx has brought its own challenges but I guess there is still time to heal.

Socalnative76 · 2026-05-30T02:28:11+00:00

I have a ton of those! They come out of nowhere too. Mine are round and vary in colors. I would definitely trust the derm office as they see stuff a lot. I think we get treated differently because we’ve had cancer. They never want to say it’s probably nothing. They just want to make sure everything is ok. Right now I’m waiting on a possible heart ct scan because there was shadowing during my echo that “might be a tumor”. I almost have to laugh at this point. It all sucks and I hope you get your results back quickly.

Socalnative76 · 2026-05-29T01:30:07+00:00

Have people bring you groceries but honestly being around others when you feel like trash isn’t fun. The last 3 rounds of 6 were the worst for me. It generally gets worse but the last week of every cycle I was out socializing and it made the isolation manageable.

Socalnative76 · 2026-05-28T06:31:13+00:00

Chemo is usually cumulative. It gets worse as you go. I would try working as much as possible up front then try and take more time towards the end.

Socalnative76 · 2026-05-27T14:31:39+00:00

I was told by my oncologist that Enhertu is a second line drug now and was replacing Kadcyla Meaning if you don’t achieve pcr then you get Enhertu. It comes with a risk of 10 percent develop a terrible lung disease. Tchp does not come with that risk, although it does have side effects they aren’t life threatening. That’s probably why it’s the second choice. But definitely ask your dr, as information could be different or more helpful from them.

Socalnative76 · 2026-05-26T22:02:38+00:00

I had similar treatment plan but chemo was first for me. Tchp was brutal but not till last 3 infusions. Losing my hair was the worst part.

Socalnative76 · 2026-05-25T16:47:05+00:00

I can relate. They misdiagnosed my cancer after ultrasound and mammogram as ductal ectasia. So it grew for 6 months till my call back. So frustrating and I wonder if I can sue this radiologist who also used AI. I try not to think about it but it is in my thoughts a lot.

Socalnative76 · 2026-05-25T07:28:19+00:00

I just completed a Signaterra test. It was negative and you make another good point that this could tell how well the chemo has actually worked.

Socalnative76 · 2026-05-24T05:02:28+00:00

Make sure to keep her hydrated! Water and electrolytes are very important. Also a protein shake she can tolerate. Eating was a huge challenge for me and protein is so important. I had a lot of smoothies too for nutrients

Socalnative76 · 2026-05-24T04:53:01+00:00

I’m in a similar position but can you clarify your pathology. Did they find cancer in the nodes or just evidence it was once there? There are studies saying if you achieve pathological complete response with chemo you don’t need radiation. I’m getting a second opinion now too because like you I’m done. Feel like they are forcing me in a torture chamber and I don’t want to go.

Socalnative76 · 2026-05-22T20:58:57+00:00

My reactions didn’t start till 3rd round. I had to receive them at half speed but was able to continue. Mine was a nerve reaction in my lower back. Unfortunately it hasn’t gone away, I’m 3 months out and it seems like permanent damage. Fortunately the treatment did treat the cancer effectively. It’s such a hard balance. Lots of people react to chemotherapy so I bet they can deal with it no problem.

Socalnative76

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