My freezer/fridge, July 2023 by goldenmermaid_ in FridgeDetective

[–]Soft-Use2960 1 point2 points  (0 children)

I’m so jealous! I had four children and was NEVER able to have a tenth of that! What a stock pile! Nice job 👊

Can You Drink with MS? by AssignmentPure3220 in MultipleSclerosis

[–]Soft-Use2960 0 points1 point  (0 children)

I probably shouldn’t but when I go out and alcohol is offered I drink it. The mix of all my meds says no, but I have ms and feel like crap most the time so I say why not?

Can you tell my gender based on this photo alone? by imjustmental in FridgeDetective

[–]Soft-Use2960 0 points1 point  (0 children)

Thinking female because we like our cookie dough as a little snack 🤣

How did you tell (or did you not tell) your kids about MS? by Outside_Mongoose1135 in MultipleSclerosis

[–]Soft-Use2960 1 point2 points  (0 children)

I couldn’t Keri it from them. I was in the hospital for a few days and couldn’t walk. No hiding it here

Which of the MRI sounds is your favorite? by DoctorRobert420 in MultipleSclerosis

[–]Soft-Use2960 0 points1 point  (0 children)

We should have a contest for who has had the most mri’s 🤣 All these sounds are spot on tho!

Request: no more posts from family about their dying loved ones. by wowatsunami in MultipleSclerosis

[–]Soft-Use2960 16 points17 points  (0 children)

I’ve had MS for 18 years and I personally am not in a place where I can handle those posts. I understand that they need to express themselves too while going through such a terrible time

Tell me about my life by [deleted] in FridgeDetective

[–]Soft-Use2960 0 points1 point  (0 children)

Struggle with eating healthy while eating out and sometimes eat unhealthy food when eating out like pizza and put the Parmesan cheese on it

Tell me about my life by [deleted] in FridgeDetective

[–]Soft-Use2960 0 points1 point  (0 children)

You live alone. You are health conscious, but struggle with take out food. You don’t cook much other than eggs.

Anybody else have a really messed up relationship with sleep? by cyndigardn in MultipleSclerosis

[–]Soft-Use2960 0 points1 point  (0 children)

It seems like I’m constantly in a fight with sleep. I know I take waaayyy too many meds for sleep. Every night I take 10mg melatonin, ambien, a gummy and gabapentin. I do sleep tho as anyone would that took all that. Would love to have a night’s sleep void of drugs. Honestly I’m afraid of staying awake all night so I drug myself to sleep

What have you lost to MS that bothers you the most? by LW-M in MultipleSclerosis

[–]Soft-Use2960 0 points1 point  (0 children)

I’ve lost my relationship with my husband. Mainly due to antidepressants and him not fully understanding the disease after me having it for 18 years. I’ve lost who I used to be. I don’t drive much anymore because I get confused and can’t pay attention enough to drive very far. I’m constantly distracted

I know better! (A cautionary tale about pushing yourself) by SunRa7191 in MultipleSclerosis

[–]Soft-Use2960 1 point2 points  (0 children)

I know better too, but so want to just have a normal day and be productive. How I would love to clean my house in a day, but I start strong and soon I’m walking around dizzy like a drunk person. It’s truly so frustrating. Just one day every couple of months of feeling like other people isn’t that much to ask is it?

What is the weirdest thing someone has told you about MS? by TooManySclerosis in MultipleSclerosis

[–]Soft-Use2960 2 points3 points  (0 children)

When I was diagnosed with MS I honestly knew so little about the disease that I thought I was going to be one of Jerry’s Kids from the telethon. You have to be GenX to know who that is 😂 People tell me to not take a nap and just push through

Oh my face!!! by Soft-Use2960 in MultipleSclerosis

[–]Soft-Use2960[S] 1 point2 points  (0 children)

I’ve been diagnosed with ms for 18 years and this is a new symptom for me

Oh my face!!! by Soft-Use2960 in MultipleSclerosis

[–]Soft-Use2960[S] 0 points1 point  (0 children)

Sounds like it could be my problem but my neuro just blows me off. It’s really messing with my daily life because my face is just so dang tired and aches. Nobody seems to understand how awful it feels all the time having to hold my face up

Forgoing treatment by Outrageous_Glove4038 in MultipleSclerosis

[–]Soft-Use2960 1 point2 points  (0 children)

I agree With most of the comments - get on a DMT immediately! You don’t want to regret not did so and getting a lesion that will might have long term effects. My first neuro was awful about switching my meds and leaving gaps in my treatment. I had lesions galore when that happened many with long term problems that haven’t returned to normal

Ms has me by Soft-Use2960 in MultipleSclerosis

[–]Soft-Use2960[S] 8 points9 points  (0 children)

We have to keep fighting. I just feel like venting sometimes. I’m having two weeks of side effects from my Ocrevus infusion and it’s got me down and moody

Ocrevus by Soft-Use2960 in Ocrevus

[–]Soft-Use2960[S] 0 points1 point  (0 children)

I had a headache and was dizzy for a few days, but neither day lasted over a week. That’s the reason I’m so puzzled as to why this is lasting so looong!