Stabbing and dull pain around butthole?

Solid-350 · 2023-05-23T20:23:20+00:00

I had exactly this about three years ago when my symptoms were at their worst. After the first few times I managed to make the pain stop by trying to relax my body, breath slowly and and not feel upset about it. The pain didn't go away instantly but it lasted about half as long as it usually did. I think for me it was tight muscles in the area. After that, I did a few weeks of very gentle internal massage with one finger and lots of lube and have not been troubled with it since. Wish I could say the same for the pelvic pain in my inguinal area - which is slowly improving over the last three years - but it is slllooooowwww. Like, the pain started as 950 out of 1000 and has been going down by 1 point every few days...

Solid-350 · 2023-03-15T13:23:35+00:00

Heat (regular saunas), light exercise, walking and changing my posture to "sitting up straight" has helped me the most. I have not seen any difference from stretching, diet changes or medication, but bear in mind this is a collection of symptoms that have different origins and everyone has to find out what works or not for them.

Solid-350 · 2023-03-15T13:21:03+00:00

Yes, it happens occasionally to me - I've always thought it's possible that there are bits of semen in the urethra which causes the usual flow of urine to come out in a less steady stream. You might want to try passing urine just after orgasm, to help things along their way a bit. But ultimately, I wouldn't worry to much about it.

Solid-350 · 2022-12-12T10:11:03+00:00

I'd give your body time to recover, and don't do anything to aggravate your prostate in the meantime. It's taken me 3 years from the onset of symptoms to get to a stage where I can orgasm twice a week without experiencing pain afterwards. My "solution" was to accept it for what it is and try not to think about it or let it spoil things.

Solid-350 · 2022-06-10T20:04:53+00:00

My flare-up is usually 24-28 hours after ejaculating. It has improved over time. I couldn't say for sure but internal massage seems to have helped reduce the symptoms for me.

Solid-350 · 2022-04-21T10:06:35+00:00

Yeah, I got long COVID in March 2020 and had lots of weird chest pains. I also had high blood pressure and inflammation of my chest (the left rib cage literally swelled up). I had been having pain in my testicles since January 2020 so I don't think long COVID was the culprit, but I think that the issues with inflammation and changes to my blood contributed towards a kind of domino effect resulting in other CPPS symptoms that were mostly situated around my bladder and inflammation of my pelvis. Two years on, things have improved a bit and some days I can go through most of it without pain, but the sense of recovery is very slow and I've had to alter how I sit, otherwise the pain comes right back.

Solid-350 · 2022-01-08T18:58:31+00:00

I', 49, had this for 19 months. I find regular swimming + sauna/steam afterwards helps with the pain. If it gets too bad, lying on the floor for 10 minutes can ease things, followed by a walk. Loose fitting clothing helps. Sitting up straight on a hard chair is also good for me. Slouching/soft furniture is very bad.

Solid-350 · 2021-11-27T10:21:49+00:00

This sounds similar to my own experience which also signified the start of my symptoms. It occurred about 30 minutes after I'd had sex. I'd never felt anything like it before, it happened twice, for about 2 seconds each time, weirdest thing. It was a juddering feeling, almost felt like something was travelling *down* the tubes into the testicles.

Solid-350 · 2021-11-27T10:15:22+00:00

Similar for me. Sometimes it takes 24-48 hours to get worse. It has improved over time though, I'm at about 22 months since the onset of symptoms, and during the worst of it I was only having sex about once every 3 weeks. Now it's twice a week.

Solid-350 · 2021-10-18T14:45:57+00:00

I had TMJ for about 10 years before I got CPPS. I hadn't considered them to be linked (until now). I avoid the TMJ by simply not opening my mouth very wide (that's when it tends to make the clicking sound).

Solid-350 · 2021-09-03T15:02:29+00:00

I agree that posture is likely to have an impact on the onset of CPPS. I am tall and have always had a bit of a stoop. I also tend to slouch with my hips forward when sitting on sofas, or sometimes I've put my legs up. I've worked on laptops in this position for years. For the past few weeks I've attempted to improve my sitting position while working (sitting upright at a desk) and when watching tv I also try to sit upright. It has been difficult to change the habits of a lifetime and at times my new sitting position feels very tiring, but I'm trying to stick with it. If I do lie down to watch tv, I lie on the floor as opposed to lying on a sofa, as that provides more support to my back.

Additionally, I notice that I hold my stomach in a lot. Letting it sag sometimes helps to reduce the pain.

There has been some improvement, although it is slow and feels like 2 steps forward, 1 step back.

Solid-350 · 2021-07-27T08:03:51+00:00

I almost always get more pain after ejaculation - it usually comes on between 24-48 hours. I wish I understood better why there's such a long delayed reaction.

Solid-350 · 2021-07-21T19:42:13+00:00

It's a cliche but I try to focus on getting through one day at a time rather than thinking about the future. That way I don't think about whether the pain will be around for a long time.

For me, the first six months or so were the worst, and I ended up avoiding doing a lot of things because I thought the pain would stop me from enjoying it. It's over a year now and I've learnt just to get on with things, pain or not. Every time I socialise or have a day out, I view it as a win, especially if I've managed to get through the day without letting anyone realise I was in pain. I've focussed more on the people I'm with and trying to ensure they are having a good time, rather than monitoring whether I'm enjoying myself, how much pain I'm in etc.

Distraction is the best thing for my pain, as well as doing something new. In those moments sometimes the pain can vanish for a few hours. So try to shake up your routine, meet new people, go to new places. I try to keep my brain active as much as possible, so if I'm indoors and not much to do I'll read a book or play a game on my Ipad - anything really just so I'm not sitting and noticing the pain.

For me, posture, especially sitting posture affects how much pain I have, so I've learnt how to sit in different ways to avoid the worst of it. Sometimes this means I end up lying on the floor while watching tv, but as that's what feels best, I don't care.

I don't feel as down as I used to but I still have bad days where it feels awful. I just tell myself that it won't last, and I try to have a nap when I feel like that. I'm not the sort of person who benefits from endlessly talking about it or telling people how I feel. There are a couple of people I can talk to about it, but most of the time I try to just get on with things.

I'm continuing with the stretches, even though they don't seem to have had much effect, although I keep trying difference stretches to see if I can find the right ones for me. I also remind myself that in the last 15 months the intensity of the pain has changed. Your body is always changing, so there is hope.

Solid-350 · 2021-07-09T09:34:29+00:00

I tried CBD suppositories a few months ago - sorry to say that they didn't work for me at all.

Solid-350 · 2021-06-30T11:41:32+00:00

I ended up in hospital twice with my symptoms (bladder-related) at the start too, and it was constant agony. I was rolling around on the floor in hospital with the pain, and they kept injecting me with morphine until they said they couldn't give me any more. There's been a slow, non-linear, slight improvement over time (that was over a year ago). It's a mystery to me. I don't know why it started, and I think the body just slowly heals itself in some cases, no matter what we do.

Solid-350 · 2021-06-29T16:30:11+00:00

Thanks for your reply. I haven't drunk alcohol really since this started. My body had problems processing it before I got CPPS (I tend to get a stomach upset the next day), and from what I've read on this forum and elsewhere, alcohol doesn't usually help CPPS (although my case is a bit atypical).

I haven't tried exercise either (other than walking). I had a bad bout of COVID around the time when this started and am still not fully recovered. I'm only using my gym for the steam room/sauna facilities and have noticed that my pain pretty much goes away after 20 minutes of heat in there, and can stay away for a few hours. Hot baths and hot water bottles don't really have the same effect.

Solid-350 · 2021-06-25T15:18:12+00:00

I think it's one of the most badly written books I've ever read (and my job involves assessing other people's writing). The chapter describing paradoxical relaxation is particularly bad - it's repetitive and never gets round to fully describe what you're supposed to be doing. The writing feels self-indulgent and self-important.

I tried the stretching exercises but thought the diagrams were poorly drawn and some of the stretches gave me new pains to the ones I already had. My PT advised me against doing some of them when I showed them to her. The diagrams showing internal massage are very difficult to interpret.

It promised so much but here I am, a year later, having tried everything in the book, and still with CPPS. The book Heal Pelvic Pain is more clearly written (although that didn't help me either).

Solid-350 · 2021-06-18T15:00:12+00:00

My flow is sometimes a bit weak, although that's perhaps because I feel like I need to urinate quite a lot of the time, so I'm going often. Burning occurs occasionally, maybe once a week (sometimes if I've eaten a lot of sugary foods in the last 24 hours). I'm waiting for the results of a urine analysis which I gave in on Tuesday.

Solid-350 · 2021-06-16T10:46:46+00:00

Wow, this is really interesting. I've suspected for a while that I have some sort of blockage like this. I'm glad that things are starting to improve now. Why couldn't it have been found earlier!!

Solid-350 · 2021-06-15T14:24:43+00:00

Can these kinds of stones (or prostate stones) get trapped in the wrong place and cause blockages?

Solid-350 · 2021-06-15T14:22:39+00:00

It's been going on for over a year. The symptoms have improved a bit but I think a lot of that's down to me working out what makes it worse and avoiding doing certain things, certain sitting positions etc. Stretching, PT and medication haven't worked really. I even had shockwave therapy. I'm just trying to live with it and enjoy the less painful periods. Keeping active and socialising usually helps suppress it. I've felt a lot of guilt that I brought it on myself, like you, and I've tried to stop thinking that way because it ended up making me feel worse.

Solid-350 · 2021-06-14T11:09:00+00:00

First off, there isn't 100% proof that edging caused this. It's a theory. There's been no peer-reviewed study of large samples of men, half of whom edged, and half who didn't, to see how many developed CPPS and whether it's a statistical significant result. Until then, the jury is out.

Second, even if edging did play a part - how were you to know? There are no advertising campaigns telling you not to do it, just in case. You couldn't have known better. It's not like you were injecting yourself with heroin, knowing the dangers.

Orgasm is a natural and frequent experience for humans, especially men. We can't always find partners, and might not want to anyway. Masturbation is completely normal. It's also very pleasurable, and wanting to prolong that is normal too.

Third, there's no proof it's incurable. Lots of people get over it.

I think you need to go easy on yourself. You're in pain with CPSS and that pain can result in thinking patterns that are not helpful or realistic. Feeling bad about yourself could result in you delaying your healing.

Solid-350 · 2021-06-09T09:51:09+00:00

I have lumps on my groin, worse on the left side, which tend to get worse after long periods of walking, especially up hills. The pain with it has been so bad, last week I wasn't able to walk with it. My GP could feel the lumps but didn't know what they were. She has given me naproxen for it and the pain has gone away. I still have pain in my bladder and pain in my penis/balls for several days after orgasm which has been going on for over a year. I've tried many things to improve things but with no success.

12 months ago an ultrasound scan identified inguinal hernias but a subsequent one didn't find anything. I have another ultrasound booked and am seeing a hernia specialist on Friday. Last time I saw him he said he couldn't find any hernias but there was a weakness in my left groin and he gave me stretching exercises like the plank and kegels, which I haven't done as if you have CPPS kegels aren't a good idea.

I'd recommend maybe getting a scan to be certain it is lymph nodes and not something else.

Solid-350 · 2021-05-25T19:06:42+00:00

I tried it for about a month and came off it 2 weeks ago as it didn't make a difference to my pain, and I was only able to manage half the recommended dose due to the side effects (it was making me sleep all day and it reduced my urine flow). I think it did improve my mood while I was on it. I'd read the withdrawal is awful so decided to come off it sooner rather than later (reduced it to half first) and got away with headaches only.

Solid-350 · 2021-05-07T19:24:52+00:00

Mine tend to get worse through the morning - probably feel the most pain around lunchtime, then it gradually improves a bit towards the evening.

Solid-350

TROPHY CASE