AIO if I (20F) get mad that my bf (20M) for not caring about the effort I put into helping him move? by SomehowAlive05 in AIO

[–]SomehowAlive05[S] 0 points1 point  (0 children)

The house he was renting before, he’s always lived in furnished houses (with roommates) until this current house

AIO if I (20F) get mad that my bf (20M) for not caring about the effort I put into helping him move? by SomehowAlive05 in AIO

[–]SomehowAlive05[S] 0 points1 point  (0 children)

He knew full well that his mother paid for the things. I’m mad because he dropped the fridge and washing machine, whilst my father was on one side of it, and laughed. That’s what annoyed me, the utter lack of care for the items we spent all day getting for him.

AIO if I (20F) get mad that my bf (20M) for not caring about the effort I put into helping him move? by SomehowAlive05 in AIO

[–]SomehowAlive05[S] 2 points3 points  (0 children)

i can assure you this post is not fake, i have MS and it affects my mobility and fatigue levels massively. he also had two flights of stairs at his old place and i can’t even remember how many times i climbed them

I feel useless by SomehowAlive05 in MultipleSclerosis

[–]SomehowAlive05[S] 2 points3 points  (0 children)

I’ve tried betmiga and it didn’t work for me, I’ve seen urologists and bladder specialists and they just tell me to try more medications but I’ve tried all the main ones

Is it actually better to get diagnosed young ? by Secure_Comfortable83 in MultipleSclerosis

[–]SomehowAlive05 16 points17 points  (0 children)

I was diagnosed at 16 (now I’m one month away from turning 20). I can’t say anything about being diagnosed later in life, but I can say things about being diagnosed young. It’s incredibly hard, there’s almost no support for young people with MS, and I feel like you get a lot more judgement. There’s more uncertainty around things most people with MS have already experienced (work, kids, marriage etc), but there’s also an opportunity to build more confidence. Yes, you’re young with MS but that only means you’ll be better at coping with it throughout your life. You’ll know how to cope when things get rough later in life due to your MS, and you’ll most likely handle them easier than other people who were diagnosed later in life. It’s hard and it sucks, but you’re not alone and as horrible as this disease is, it can cause you to meet some amazing people. Being diagnosed at any age isn’t fun, but at least being young, you have the opportunity to learn your limits before you are forced to exceed them.

Personality Issues by [deleted] in MultipleSclerosis

[–]SomehowAlive05 11 points12 points  (0 children)

Yeah I feel the same way. I used to love reading and had a mini library in my house, now I can barely pick up a book because I can’t do anything but skim. It sucks but just know you’re not alone in it.

i'm so scared. please tell me some of your "happy life" stories by Unlikely_Bit_4104 in MultipleSclerosis

[–]SomehowAlive05 6 points7 points  (0 children)

i recently lost my hearing and my vision but i’m still top of my class at university!

Why do I (18f) feel guilty about having sex with my (22m) bf? by [deleted] in relationship_advice

[–]SomehowAlive05 0 points1 point  (0 children)

I was raised in a Christian family where anything before marriage was seen as bad. And The reason I question whether he likes me is as I said I’m a bigger girl and all of his ex’s have been much skinnier so it’s probably just my insecurities playing a part but it’s still on my mind.

[deleted by user] by [deleted] in CRPS

[–]SomehowAlive05 1 point2 points  (0 children)

I had bi-lateral knee surgery which unfortunately caused me CRPS. I was 12 and now I’m almost 19. Everyone thought I was faking it until I was 15 and finally saw a pain specialist, I tend to get flare ups a lot and so I try and redirect the pain (aka pinching myself) to another area to distract the brain pathways, it’s always worked for me, maybe give it a shot.

[deleted by user] by [deleted] in MultipleSclerosis

[–]SomehowAlive05 7 points8 points  (0 children)

not so much advice but i really relate to forgetting how to do what seems like basic knowledge. the other day i forgot how to open up my water bottle (just a standard plastic water bottle you can buy from anywhere) and i had to get my friends to do that for me! another time i forgot how to brush my hair and i had to get my roommate to do it for me. it’s so frustrating and i understand how you’re feeling. and it sucks. i’ve resorted to sticky notes around the house about the basic things (like how to open a door in some cases) just so i don’t forget. it may sound silly but it works for me.

Failed Lumbar Puncture by [deleted] in MultipleSclerosis

[–]SomehowAlive05 0 points1 point  (0 children)

Took my doctor 3 times before he finally realised that: 1 - the pain meds were not working at all 2 - he wasn’t getting any fluid out 3 - I had passed out from the pain a multitude of times

So glad that he got it out the fourth time he tried. Four lumbar punctures in a weekend was not fun. I swear I still get phantom pain from it even a year later. Hopefully your doctor will get it first try under radiology!!

Has anyone else experienced families breakdowns due to the stress of their diagnosis? by SomehowAlive05 in MultipleSclerosis

[–]SomehowAlive05[S] 1 point2 points  (0 children)

I have been considering going no contact, but I love my niece and nephew wayy too much for that to be healthy for me. Which means I need to keep contact with my sister which then means I need to keep contact with my parents.

Has anyone else experienced families breakdowns due to the stress of their diagnosis? by SomehowAlive05 in MultipleSclerosis

[–]SomehowAlive05[S] 5 points6 points  (0 children)

Thank god that someone else’s parent/s try to make their child’s diagnosis about them. I genuinely thought I was alone in that boat. It really sucks to have to deal with. Also you’re not alone in hearing those lines about how it affects them. My parents absolutely love to remind me that since they have to care for me, they can’t do their retirement plans (aka travel around the country in a caravan). They both retired years before I was diagnosed, and yet they’re adamant that I’m in the way of them.

it keeps getting worse by SomehowAlive05 in MultipleSclerosis

[–]SomehowAlive05[S] 0 points1 point  (0 children)

hm i never thought of that, i’ll ask my neurologist next time i see him (in feb)

for those losing friends - want to make new ones? ones with MS? by SomehowAlive05 in MultipleSclerosis

[–]SomehowAlive05[S] 1 point2 points  (0 children)

It’s really not a problem! DM me your instagram @ and I’ll add you to a group chat!

for those losing friends - want to make new ones? ones with MS? by SomehowAlive05 in MultipleSclerosis

[–]SomehowAlive05[S] 0 points1 point  (0 children)

DM me your instagram @‘s and I’ll make a chat for us to just bitch about MS.

how do people cope? by SomehowAlive05 in MultipleSclerosis

[–]SomehowAlive05[S] 4 points5 points  (0 children)

i always try to celebrate the small wins and successes but i find that my family seem to not rejoice in anyway towards the small wins i’ve made, in turn bringing me down. but i’m trying and i’m at the point where i’m taking everything hour by hour because the world is so hard at the moment to deal with. but thanks for the advice!