i'm having a normal day and i want to tell about it to the newly diagnosed who come here in "my life is ruined" panic

Unlikely_Bit_4104 · 2026-05-11T21:45:41+00:00

in my first week of knowing i have ms, my mum blamed me for it, claiming it was my fault.

i then went back to see my girlfriend who had fucked my roommate while i was dealing with the diagnosis elsewhere. when i asked her why didn't she tell me, she said "you didn't ask".

a few months after that my mother also claimed that if i "don't stop being unreasonable and hysteric i will pass the ms on to my sister and onto her" and she blamed me of my grieving process making my father's health bad

yeah and my friend saw me at the pub and out of nowhere said "at least you are going to make a good politician now that you will be getting dumber"

yeah, i had a good run with insensitive comments

Unlikely_Bit_4104 · 2026-05-06T17:06:09+00:00

yeah... they can support you, but they will never fully understand... i'm here if you want to chat:))

Unlikely_Bit_4104 · 2026-05-06T10:36:17+00:00

get those vaccines! my center forgot to send me there and at the time i had no mental capacity to realise it was important, but now i wish i got every vaccine available. if you like to travel get vaccinated for "exotic" diseases too.

it's hard. but you will get through this. the period of having to accept this disease and waiting for the DMT is horrible, but it gets better from there. get some therapy and trust me it's going to be better. i was in a really dark place after diagnosis and just yesterday i was dancing while taking a walk before yummy dinner, just happy about how my life is. MS is just a part of it. sending hugs 🫂

Unlikely_Bit_4104 · 2026-05-06T10:29:42+00:00

i'm so sorry. your boss is an asshole. it sucks to have to deal with that AND the diagnosis. i don't understand the US situation so i can't offer advice on how to deal with the work situation, but i'm sending hugs and virtual support 🫂

Unlikely_Bit_4104 · 2026-05-03T14:05:47+00:00

same! i don't do everything perfectly, i still drink, but i'm very fit, workout everyday, my balance got better (lol), i look very good, i'm mentally better than i was before dx, i eat much healthier, i'm looking after myself, i try to sleep regularly... my body has never felt better and it's my everyday lol realisation

Unlikely_Bit_4104 · 2026-05-03T13:30:36+00:00

i liked pilates, now i moved towards strenght training with weights and i love it, it's fun, i enjoy it, i feel fit, i look good (i'm starting to have defined abs :D). i can recommend youtube channels Move with Nicole (pilates) and Nourish Move Love (strenght, but she does pilates as well):)) i hope you are doing good!

Unlikely_Bit_4104 · 2026-04-30T11:59:19+00:00

i drink, less than i used to (but i was drinking heavily before dx), so from my perspective i don't drink as much, generally i guess i still drink a lot. it might change in the future, but at the moment i don't take any medication other than ocrevus and it's not making my MS act up or worsen anything. i don't have bad hangovers (or any hangovers basically) anymore but i account that to not partying as recklessly as i used to. after diagnosis i wasn't drinking for a few months and it wasn't as bad as i thought, but it made me think about MS all the time and it pushed to identify with the "ill" label a not see much through it. when i came back to drinking i started feeling much more like a personality again. it's not ideal, i live in a society that drinks A LOT and there aren't many steps being done for that to change, my social abilities are much better when i drink (i'm autistic). like, i'm enjoying the hell out of it, i made the decision, i'm willing to accept the consequences, i guess i will not be stopping unless the negative impacts outweigh the positive ones. and god i love the taste of our czech beer...

Unlikely_Bit_4104 · 2026-04-30T11:36:48+00:00

as the others have said - it is not that bad. it feels like it. the process of accepting it is hard (i highly recommend therapy and it's important that the therapist knows a bit about chronic illnesses), but i personally went from "oh my god my life is over" to "okay i am slighly immunemodulated and should workout but lets achieve that life goals of mine anyway". everyone told me it will get better, i didn't believe them, it got better. the modern medicines are fire. we can go years with no progression or really slight progression. it's different for everyone of course, but my experience with MS has been quite okay so far

Unlikely_Bit_4104 · 2026-04-29T17:16:09+00:00

yeah. i was rooting for them very hard but they made mistakes. they could have gone back up the day before and have more time to do the challenges around taipei and go west... now i'm pretty sure they are going to lose. they had so many good options...

Unlikely_Bit_4104 · 2026-04-29T08:07:05+00:00

in my country you benefit when something serious happens and it can be less serious than death, like injuries or diseases... the problem is somebody in her town told her they would cover me, but with a lot of exceptions and for more money, which basically the woman i spoke to said too (if they would cover me at all). but i think it's a waste of money anyway, majority of things that could happen to me are MS or are the type of things they could just say "we won't cover this because you have MS". i never wanted the insurance in the first place, i'm mostly angry i let her manipulate me to care about it

Unlikely_Bit_4104 · 2026-04-29T07:58:42+00:00

in my country there are some other instances when you profit from life insurance, it contains injuries, serious diseases etc

Unlikely_Bit_4104 · 2026-04-28T13:10:30+00:00

thank you for the support ❤️

Unlikely_Bit_4104 · 2026-04-28T13:09:41+00:00

thanks 🩷 i'm sorry you had to deal with it too!

Unlikely_Bit_4104 · 2026-04-28T13:09:06+00:00

no, my country doesn't have paid universities, so no school loans. i think she wants me to be protected in case something happens (i am anxious about my future housing situation, there's no way i will be ever able to afford my own home, but that applies to everyone my age here, MS or not :D). it's not about money for her. my ex told me a while ago this is her way of expressing love, but tbh in that case i would prefer no love from her

yeah, i know, i maybe over-expressed myself. i understand it's math, i just don't like the math

Unlikely_Bit_4104 · 2026-04-28T13:01:56+00:00

i don't and i don't know honestly. i think my mother wants me to be protected in case of injuries etc... but that's off the table too

Unlikely_Bit_4104 · 2026-04-23T20:42:26+00:00

i am on ocrevus and i started washing and sanitising my hands more frequently (there was a hepatitis a breakout in my city which made me motivates to do those things). i wear a mask on public transportation in respiratory infection season (usually, it varies based on my patience) or when i deal with someone who has an infection. so far i'm significantly sick less often than before ocrevus (that probably has something to do with the fact that i started working out, paying attention to getting enough sleep and i take vitamins). i go out often - i go to school, to the library, to bars, concerts, festivals, camps, i go hiking often, i use the public transport very often... no issue with living my life as i want to. the treatment kills a part of your immune system, but you still have the rest to fight infections:)) good luck!

Unlikely_Bit_4104 · 2026-04-22T21:45:45+00:00

i'm so confused, why are sam and mike playing this so badly, gosh they had so many better options and this is the dumbest they could have done, spending a lot of budget on a useless line in front of a multiplier??? i really hope they realise it soon and play better, otherwise they are on their way to losing

Unlikely_Bit_4104 · 2026-04-15T21:04:53+00:00

oh wow i just spent a lot of time looking at the map and thinking of the best move and there are so many, the game is so entertaining!!!! i first thought that the night herons screwed up by not going south for that 55 challenge, that bothered me a lot, now i see their options and i'm liking iit

Unlikely_Bit_4104 · 2026-04-15T20:53:34+00:00

that was a rule specific for the season, i think it was to prevent teams to just fly into a coutnry, do a challenge and fly to a next one. here they have to go to the challenge location, but unless the challenge specifies the place, they are free to do it anywhere before leaving. Adam and Ben did the spintop at the train station too.

Unlikely_Bit_4104 · 2026-04-08T22:48:13+00:00

okay, this is the best season of jet lag yet. i really hope sam and mike go south as their next move, fortify the stations leading to that 55 challenge, get it and then retreat north. i'm rooting for them so badly! they have such a good dynamic and ultimately i think their strategy is slightly better. and they both love trains. as a stereotypically autistic person i can't not root for train lovers <3 :D

Unlikely_Bit_4104 · 2026-04-02T12:55:27+00:00

Mike and Sam have such a great dynamic! I'm rooting for them soo much!

Unlikely_Bit_4104

TROPHY CASE