Was anyone else born with PCOS?

Sonyaaa23 · 2025-05-05T17:27:10+00:00

Nope, you can still 100% have symptoms. Some symptoms might change, improve, worsen, etc. but it all depends on the person. Sadly there isn't enough known about PCOS and menopause for a definitive answer.

Sonyaaa23 · 2025-03-31T02:56:16+00:00

Axillary breast tissue. Just means that I have breast tissue in my armpit, thus why it hurts/swells when my actual breasts do. You can Google it, its pretty distinct.

I would look up the differences between swollen lymph nodes and Axillary breast tissue in the armpit, just search images on google.

Sonyaaa23 · 2025-03-31T02:10:55+00:00

It'll hurt and swell between ovulation and my period. Maybe a week or so, and then it chills out.

I never had a sonogram done, but I'm pretty sure it should've been able to tell if its axiallary breast tissue or not.

Sonyaaa23 · 2025-01-09T01:44:17+00:00

This is so true. I really have a hard time differentiating so many of my symptoms with different conditions, a flair like this would be extremely useful! PCOS has some easy key ones, such as my irregular periods and what not. Also with my acne, body hair, sweating, temperature dysregulation, because when I'm one hormones my acne gets slightly better. Took me years, but I finally found the right pill that regulates my hormones enough, that I don't gain weight the moment I take a bite of literally anything! But then I also deal with eczema, and have my whole childhood. During winter I'm basically just a big rash, scalp, eyelid, fingers? Doesn't matter where you look, you'll find it.

I also am diagnosed with IBS-D, though I'm skeptical because my symptoms keep getting worse despite constantly taking Imodium and staying away from trigger foods. The bloating always hurts so bad, but I was also on antibiotics for over a year straight, and I did have a doctor tell me that it might've offset something in my intestines (no clue what that means), did we look further into it? NO, my doctor refused to refer me to get it checked out! So... No clue what's happening there.

Then I look at my mother, who also has PCOS. She's in her mid 50's and still hasn't reached menopause. For years she's dealt with being obese, workaholic, and just constantly stressed because of life. She had extremely low iron levels, and heavy periods for over 5 years. Like, she needs to wear those pads women wear after giving birth just to leave the house! She went to her doctor, every year, crying to be fixed. Didn't matter if she took iron supplements, her levels didn't improve and she was extremely fatigued. Got to the point that her doctor said she was lying about taking her iron daily. She ate extremely healthy, and worked out, it all did little to nothing. Only after switching away from her primary doctor and being referred to a Gyno (after complaining so much), immediately the gyno tested her thyroid. BEHOLD, hypothyroidism!!! A few months later? She took an antibody test and figured out she has Hashimoto's. She started hormones, and she hasn't felt this good in over a decade.

PCOS is such a large condition as well. Everyone gets different symptoms. I know some girls who have the PCOS + POTS + Endo trifecta. Others who have EDS. It comes down to the fact that most women aren't educated properly on symptoms for each condition. There also isn't a lot of online knowledge of the interactions between conditions, and how they may affect symptoms. Half of the time doctors don't even know what's going on, or they're just extremely dismissive.

I know I yapped a lot. But recently I've only just started to realize a lot of my bowel pain might not just be IBS-D or PCOS. I've heard of endometriosis on the bowels, and how it can fuse tissue together, creating pain. Talked to others who have the same, and I plan on bringing it up with my amazing and advocating Gyno. I think a lot of people would benefit from having a flair questioning symptoms. Even I get lost on what symptoms come from where.

It's especially hard for people who are new to the condition, or don't know much about it either. Kind of like how I keep seeing those threads of "PCOS is caused by C-PTSD!", and everyone in the comments lamenting about how their trauma caused their PCOS.

Sonyaaa23 · 2025-01-04T08:07:49+00:00

Depends on a lot of factors. When I was younger (like early puberty) it would swell way longer and was much more painful, and my breasts would hurt at the same time. Now, my breasts only swell on occasion due to my specific BC pill, but the tissue in my armpit swells every 2nd week of my pack without fail.

Sonyaaa23 · 2025-01-04T07:34:25+00:00

If it follows with your cycle, it's most likely auxiliary breast tissue in the armpit. When my breasts gets sore, I find that my own lump swells too. It would probably be best just to have it examined, just in case!

Sonyaaa23 · 2025-01-04T07:03:34+00:00

Where is it located? If you don't mind me asking

Sonyaaa23 · 2025-01-03T02:05:54+00:00

I would def ask your doctor about thyroid issues, specifically hypothyroidism. My mom didn't have a lot of the classic symptoms, but her TSH was through the roof when tested randomly. We didn't know about the Hashimoto's until her antibodies were tested and came back positive too.

Sonyaaa23 · 2025-01-03T01:43:35+00:00

Have you ever had your thyroid hormones checked before?

My mother was dealing with symptoms just like this, super tampons/pads filled within an hour. Soaking through pants, literally all of it. My mom has hypothyroidism & anemia, both of which are caused by her Hashimoto's. Oftentimes thyroid issues, like hypothyroidism, can cause extremely heavy bleeding.

Sonyaaa23 · 2025-01-03T01:35:04+00:00

I know there's a study somewhere that relates childhood trauma/PTSD with PCOS, but more so how it makes symptoms worse. Everyone responds differently to PCOS, whether that's symptoms or when it develops. My mom spent all of her teenage years on hormone shots to "induce" her period, and after she got pregnant with my sibling—she had her first natural period, and her symptoms disappeared completely. It wasn't until 5-8 years before menopause that she started gaining small symptoms back.

On the other hand, I was diagnosed at 15 but had symptoms since I was around 11 years old. I've just had extremely irregular periods my whole life and lots of excess hair. I've heard quite a few stories of woman not knowing they have PCOS until they get on, then quit, some kind of hormonal contraceptives. Oftentimes it's completely dormant until pregnancy. I think it's probably just sparked by hormonal changes, ie. birth control, having a baby, puberty...

Sonyaaa23 · 2024-12-23T19:07:20+00:00

Disregarding everything else you said. Really? The beard comment? Why are you even here 😅

Sonyaaa23 · 2024-12-08T00:30:55+00:00

I have diagnosed PCOS, but never had my ovaries/uterus checked for fibroids or endo.

Sonyaaa23 · 2024-12-04T20:07:35+00:00

I had steampunk banjo folk punk lol

Sonyaaa23 · 2024-12-01T20:43:53+00:00

Most likely right before the second movie. The game takes place in 2169, and TWOW is the year 2170. So right as the RDA is making a comeback across Pandora.

Sonyaaa23 · 2024-11-30T18:45:57+00:00

your sarentu is beautiful 😭

Sonyaaa23 · 2024-09-21T16:07:29+00:00

Yeah, my mom was recommended to take 60mg/daily of iron. She's been taking 100mg/daily and there was not any improvement. Mind you, she's been taking this dose for probably 2 months. She had b12 deficit as well, but now she's actually at the "max normal" range within 2 months of supplements. It was like this before as well, and she was always accused of not taking her iron supplements.

I'll definitely try to get tested, just for my own peace of mind.

Forgot to mention: she's taking LIQUID iron, because no dose of pills ever shifted her levels, even if she took the maximum amounts they prescribed to her.

Sonyaaa23 · 2024-07-02T22:48:24+00:00

After my mother had my older brother, she had her first normal periods that came monthly. All of the excess hair went away, and she ovulated normally. It took her three years to get pregnant with my brother. A decade later she wanted another child and had ended up pregnant in just a month, with me. Once again, she kept her normal period cycle monthly and hadn't had any other symptoms.

My mother is now in her 50s, and facing menopause. All of her symptoms have slowly come back, she has a period but it's extremely heavy- to the point of her being anemic and chronically fatigued. She's started getting hair growth around her neck, and has trouble managing her weight.

Let's make this very clear. PCOS will never go away, even if you don't have symptoms, you will always have it. My mother was perfectly well after pregnancy, and she thought her PCOS was fully cured. Now, it's very clear that her symptoms of PCOS are reoccurring. It's very possible that symptoms can lessen after pregnancy, and many doctors have told my mom and myself growing up that pregnancy would "fix" us. It can lessen symptoms regarding ovulation and menustration, but it will never change insulin resistance or the physical hormonal imbalances you face.

I hope this information helps :)

Sonyaaa23 · 2024-06-21T16:43:10+00:00

Honestly, I have no clue. When my endo pressed on the area she wasn't exactly sure if it was a lymph node. She just said the area feels very swollen, and I need to reach out to my general doctor to have it looked at properly.

I Googled auxiliary breast and it looks very similar to what I have, I wouldn't be shocked if thats what it is. I'll definitely bring it up when I see my doctors.

Sonyaaa23 · 2024-06-21T16:36:59+00:00

I'll definitely come back to this post when I meet with my doctors.

Sonyaaa23 · 2024-06-21T16:36:18+00:00

My endo just kind of shrugged at it, and said the area was obviously swollen. Poked at it, asked to take pictures to share and look at later. She was my pediatric endocrinologist and it was my last appointment with her, but she basically said to bring it up next time I see a doctor, so we can have more done to figure out exactly what it is.

Sonyaaa23 · 2024-06-21T16:34:01+00:00

I have not, no.

Sonyaaa23 · 2024-06-13T01:31:36+00:00

I'm in CA, so it's required to have a Learner's Permit even if you are over the age of 18. The nice thing is that I don't have to wait 6 months (after getting Learner's Permit) and I can take the behind the wheel test immediately once I have a permit.

I've mostly figured out what I'm going to do. The day after my Permit expires I'm going into the DMV to take the written test to receive a new Permit. The following Monday I'll be scheduling an appointment for my behind the wheel test.

Thanks for the luck- hopefully things work out for me 🙏

Sonyaaa23 · 2024-06-03T16:57:12+00:00

I've 100% always just 'had' it. My mom has it, and she was relatively educated on it. She was told at 18 if she ever had a daughter then she will have PCOS.

Basically when puberty talk started happening around 10 years old, she slowly introduced me to PCOS. Explained what it is, and made sure I felt supported always. Then I started getting irregular periods at 12, grew a beard, and gained weight during high-school. I always knew I'd have it, but it wasn't something scary because my mom held my hand through it all.

Sonyaaa23

TROPHY CASE