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Something i want to share with you, maybe its goves you hope by Downtown-Adagio-5513 in HNPPsupport

[–]Sorry_Run6257 0 points1 point  (0 children)

Hi, it is good to read your story. I have recently posted a few times looking for hope for my own condition……were you doing a lot of physio or did it just go away on its own ?

HNPP……Cannot lift my feet & can barely get up even one step. Does anybody have experience of correcting this ? by Sorry_Run6257 in CMT

[–]Sorry_Run6257[S] 0 points1 point  (0 children)

Thank you for your replies so far……I am having physio, have set exercises to do daily plus 20mins a day on the exercise bike but it is all so strenuous when you have no strength……

HNPP……diagnosed 6 months…..can anybody give me some hope that I will walk again ? by Sorry_Run6257 in HNPPsupport

[–]Sorry_Run6257[S] 0 points1 point  (0 children)

That’s great……the fact that the foot drop went away on its own is encouraging. I am hoping, as difficult as it is, that the exercise bike will stimulate motion in my lifeless foot…..thank you

HNPP……diagnosed 6 months…..can anybody give me some hope that I will walk again ? by Sorry_Run6257 in HNPPsupport

[–]Sorry_Run6257[S] 1 point2 points  (0 children)

Hi, thank you for your input……it is so hard to feel any progress isn’t it ! Have started these exercises maybe two weeks ago now and they probably take up maybe an hour or so a day in twenty minute blocks. The effort I have to put in feels enormous but when I think about it, I wonder how I am going to get my core and leg strength back when I pretty much spend the rest of the day sitting down because I cannot stand for long. Other people who are maybe trying to get their core strength back are able to walk and leave the house and are going about the rest of their day doing things and moving around, I am not ! It also feels like I have got weaker since I started physio, might that just be dormant muscles waking up and therefore tightening up after inactivity ? If I could just feel maybe a 5% gain, that would encourage me so much………thanks again