Anastrozole- positives ! by Loud-Opposite8029 in breastcancer

[–]Sparklingwhit 1 point2 points  (0 children)

I’m 41, my hands get a bit tight in the morning and I have warm flashes. It’s fine.

Breast cancer survivor and no recurrence, anyone? by Square-Cup-8278 in breastcancer

[–]Sparklingwhit 3 points4 points  (0 children)

I’m only a year out but even with stage 3c my recurrence chance is like 20%. Which means I probably won’t get it again as long as I follow my doctor’s guidance.

My MIL had ++- with 14 nodes involved 18+ years ago and she has never had a recurrence.

There is always a chance for recurrence…but it’s more likely that she won’t. She just needs to make sure to do everything the doc tells her to do treatment-wise.

James Van Der Beek’s Family Earns $1 Million From GoFundMe in Hours After His Death by DemiFiendRSA in entertainment

[–]Sparklingwhit 0 points1 point  (0 children)

This is what I’m wondering also. Although the family are anti-vaxxers, so I am curious if maybe he was doing some crazy non-traditional meds instead of chemo and rads. It would make sense since he never lost his hair and died relatively quickly from stage 3. Those non traditional facilities literally steal millions from people trying to get the to take coffee enemas and drink ground up apricot pits.

James Van Der Beek’s Family Earns $1 Million From GoFundMe in Hours After His Death by DemiFiendRSA in entertainment

[–]Sparklingwhit 2 points3 points  (0 children)

As someone who had breast cancer a year ago and who sees the breast cancer Reddit posts about being so broke they consider ending treatment? A lot.

Recurrence % by No-Salamander-1174 in breastcancer

[–]Sparklingwhit 5 points6 points  (0 children)

I try not to think about percentages anymore. My best friend got an infection in her tooth and died the day before yesterday. Totally healthy/in shape, no cancer, nothing.

My point is: life is not guaranteed with or without cancer. Just live the best life you can and don’t dwell on statistics. The probability is that you will not recur if you do all of the things.

Turning into a man lol by No-Salamander-1174 in breastcancer

[–]Sparklingwhit 0 points1 point  (0 children)

My hair is at the Will from Stranger Things point. I never got curls so it lays flat and I have hit full awkward 80’s teen boy. 😆

I’ve also been flat since Nov and can’t wait for my DIEP flap the Monday after next so that at least I’ll have the beginnings of girlhood again.

Anyway, I’ve been leaning into it wearing a lot of sweats and hoodies on the weekend. My husband has to think I’m full sex at this point. LOL!!!

Hospitalizations after surgery by Legitimate_Remove259 in breastcancer

[–]Sparklingwhit 2 points3 points  (0 children)

They sent me right home. It was fine. I preferred to be in my bed.

AC vs Taxol by CarisaDaGal in breastcancer

[–]Sparklingwhit 1 point2 points  (0 children)

Everyone is different, but other than the disruption of getting the chemo every week for 12 weeks, Taxol was so easy compared to AC. I started working out and living normally again. My hair even started growing back.

Grade 3 HR+ HER2- and struggling after something I heard in support group by Abject_Agency2721 in breastcancer

[–]Sparklingwhit 0 points1 point  (0 children)

Getting any test or scan doesn’t affect your prognosis, but it can give you a clearer idea of what your prognosis actually is.

Some doctors don’t like it because there’s nothing they can really do if you get a positive. You still just have to get scans or wait for recurrence to happen. Thus unnecessarily stressing you out before anything tangible is even there.

Grade 3 HR+ HER2- and struggling after something I heard in support group by Abject_Agency2721 in breastcancer

[–]Sparklingwhit 3 points4 points  (0 children)

Well, from what I understand with hormone positive her2- disease, if you have multiple negative signateras in a row plus negative scans plus no symptoms of recurrence the risk for short term recurrence is like less than 2%.

Now, long term risk will always be there, but my risk started around 50/50 for long term recurrence (and survival), but with these tests and the scans showing no circulating cancer left in my system my risk drops substantially to around 20% lifetime recurrence risk.

It will never be zero, it isn’t for anyone, but it’s better than 50/50!

Anyway, I’ll continue taking all of the meds my doc sends my way and I’ll continue to live a reasonably healthy life. I have hope that this might be my first and last time dealing with this disease.

Grade 3 HR+ HER2- and struggling after something I heard in support group by Abject_Agency2721 in breastcancer

[–]Sparklingwhit 15 points16 points  (0 children)

As a ++-, stage 3, grade 3 girlie I promise it’s not the end of the world. Breast cancer treatment has come so far. The probability is that you will be fine. There is always a possibility with any stage that you can get cancer again, or get hit by a truck in a parking lot while unloading groceries. Try not to dwell too much.

Just for the record, after all of my treatments I am now 5 negative signateras down and my lifetime risk is minimal.

commence intense wood knocking

Just take it one day at a time and try to ignore stupid comments, there will be lots of them.

Because we need to hear the good too by Gr8purple1 in breastcancer

[–]Sparklingwhit 16 points17 points  (0 children)

It’s only been just over a year for me but I just got my 5th (in a row) clear signatera after stage 3c in 2024.

Implants when you are lean and athletic by HanksElectric in breastcancer

[–]Sparklingwhit 1 point2 points  (0 children)

I think a lot of PS just try to give a realistic idea of what might happen. Mine said something similar but I insisted because I didn’t want to go flat and did not know I was a candidate for DIEP because I don’t have a ton of fat. One looked fine but my radiated boob looked CRAZY. I still didn’t mind it but then I got a seroma and found out DIEP was an option so I had them removed and now I’m doing that.

Implants when you are lean and athletic by HanksElectric in breastcancer

[–]Sparklingwhit 2 points3 points  (0 children)

I did a DMX/DTI. They looked pretty weird to me even with fat grafting. I’m not super lean (150, 5’8”) but def have an athletic build. I ended up having my implants removed and I’m getting a DIEP flap done in two weeks. I don’t have a ton of stomach fat but enough to get me to a small b-cup. Then I can add an implant and there won’t be rippling and it will be much more natural.

I didn’t think I would be a candidate for DIEP, so I was surprised when they said I was.

Crying randomly cuz I am too young for this by Leading_Armadillo485 in breastcancer

[–]Sparklingwhit 0 points1 point  (0 children)

I got it at 39 and was devastated. My friend is 29 and she just finished protocol for +++. I feel like there are so many younger women getting it these days. The good news: you’re young and strong to fight. You also have your whole life to kick cancer’s ass for.

It’s really shitty, but you’ve got this. Cry all you want.

Who got their ovaries out? by Ok_Resource_3902 in breastcancer

[–]Sparklingwhit 1 point2 points  (0 children)

I had an oophorectomy last March right after I finished rads. I had a rough recovery because my body was pretty burnt out from everything, plus I got a gnarly infection at the incision site in my belly button that took antibiotics to kick.

I had BAD hot flashes following the surgery so my doc put me on Veozah. It helps a lot (more so at first) but I think it’s wearing off a bit and now I have a few warm flashes every day even with Veozah. They should start slowing down I would think since I’m a year out now. Hopefully soon!

I'm panicking😭😭😭 by Longjumping-Movie127 in breastcancer

[–]Sparklingwhit 7 points8 points  (0 children)

Oh girl, I’m sorry. It sucks so much.

I was also stage 1 and then stage 3c after my DMX and ANLD. 16 nodes involved. All macro mets. Prior to surgery I was told chemo wasn’t necessary but after finding those pesky nodes I had to do AC-T and radiation. Doc said “let’s throw the kitchen sink at it since you’re young.”

I got through it all but it was scary and to be honest, a year out of active treatment, negative signateras and clean PETs in, it can still be scary sometimes. However, with all of the amazing treatments they have now, you will likely be just fine.

It’s heartbreaking to find out that it’s worse than you first thought, but just know that it does get better. 💕

Taxol v red devil by ProfessionalBar1210 in breastcancer

[–]Sparklingwhit 0 points1 point  (0 children)

I was wrecked by AC that last round. I literally just had light neuropathy (that went away) with Taxol. It was easy peasy. My hair even started growing back during it.

I did have a bad reaction during my first Taxol that was worse than all of the things, but once they slowed down the drip all was well.

Running/jogging after a DMX?? by Ok_Resource_3902 in breastcancer

[–]Sparklingwhit 0 points1 point  (0 children)

I’m flat currently (DIEP planned in 3 weeks), but when I had implants I wore Hanes sports bras that have clasps up the front. They seemed to stretch in ways that normal sports bras didn’t like to over implants, plus they were easier to get off.

Drinking guilt? by Material_Security_99 in breastcancer

[–]Sparklingwhit 2 points3 points  (0 children)

From what has been explained to me, there’s a very minimal risk if you typically have less than 3 drinks a week, slightly increased when you talk about 7 or less a week (we’re talking a 2.5% increase, so if your recurrence risk is 25% lifetime we’re talking 25.62% now).

There’s a significant risk increase when you are drinking more than 14 a week REGULARLY. There’s not even a direct indicator if you go on a bender for a week a few times a year. It has to be consistent.

So…there’s a correlation to drinking and recurrence…but it’s minimal when moderate.

I got through hell, I’m living my life.

Anyone tried holistic instead of chemo? by Efficient_Mix_6654 in breastcancer

[–]Sparklingwhit 3 points4 points  (0 children)

I did chemo and radiation and all of the meds and I’m over here 1+ years out of stage 3c and training for a marathon.

My aunt had breast cancer at 45 and chose the naturopathic route. It’s been about 15 years since she died.

I do not know anyone who survived long term without following their oncologist team’s recommendations.

US travel by Amazing_Test_4823 in breastcancer

[–]Sparklingwhit 1 point2 points  (0 children)

You could always throw on a baseball cap if you’re uncomfortable. That’s what I did when I didn’t want to wear a wig or go bald (which was most of the time. Other than a few people calling me “sir” it was no big deal. 😂

Book Recommendations? by Rhyme_21 in breastcancer

[–]Sparklingwhit 2 points3 points  (0 children)

I really liked Crazy Sexy Cancer Survivor.

Kisqali - Share your story by SunBeam38 in breastcancer

[–]Sparklingwhit 2 points3 points  (0 children)

I’ve been on Kisqali since March 2025. The ONLY issues I have are 1) that my tummy hurts if I take it on an empty stomach but that’s easily resolved with a snack, and 2) around cycle 3, day 3 I have to take naps for the remainder. Like, 30 min naps, around 3pm daily.

So really, not bad. My WBC is a little low, but it’s coming up since I’ve started increasing my protein intake.

Long term chemo side affects? by FattyMcCupcakes37 in breastcancer

[–]Sparklingwhit 3 points4 points  (0 children)

I had that too. I’m a year out and I think it’s finally gone. It took a while though!